FSR (@stopsarcoidosis) 's Twitter Profile
FSR

@stopsarcoidosis

The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care.

ID: 322872702

linkhttp://www.stopsarcoidosis.org calendar_today23-06-2011 21:52:48

4,4K Tweet

3,3K Followers

606 Following

FSR (@stopsarcoidosis) 's Twitter Profile Photo

Love golf, soccer, scavenger hunts—or scrapbooking, car shows, or hiking? Turn your passion into a purpose and raise funds for sarcoidosis research 💜 FSR can help you get started!! 📩 [email protected] #StopSarcoidosis #FundraiseYourWay

Love golf, soccer, scavenger hunts—or scrapbooking, car shows, or hiking? Turn your passion into a purpose and raise funds for sarcoidosis research 💜
FSR can help you get started!!
📩 Amber@stopsarcoidosis.org
#StopSarcoidosis #FundraiseYourWay
FSR (@stopsarcoidosis) 's Twitter Profile Photo

🚨 Big news! The FSR-SARC Patient Registry has a new home — easier login, better features, and more power for sarcoidosis research! 💪 📝 Enroll or update now: loom.ly/rOEc9zQ 📧 [email protected] #Sarcoidosis #FSRSARCRegistry #StopSarcoidosis

🚨 Big news! The FSR-SARC Patient Registry has a new home — easier login, better features, and more power for sarcoidosis research! 💪
📝 Enroll or update now: loom.ly/rOEc9zQ
📧 registry@stopsarcoidosis.org
#Sarcoidosis #FSRSARCRegistry #StopSarcoidosis
FSR (@stopsarcoidosis) 's Twitter Profile Photo

FSR is honored to recognize the American Thoracic Society (ATS) as a founding partner of the Champions for Change – Paid Time Off (PTO) Initiative. Together, we’re working to make clinical trials more accessible for all. Read more: loom.ly/-JIsu

FSR is honored to recognize the American Thoracic Society (ATS) as a founding partner of the Champions for Change – Paid Time Off (PTO) Initiative.
Together, we’re working to make clinical trials more accessible for all. Read more: loom.ly/-JIsu
FSR (@stopsarcoidosis) 's Twitter Profile Photo

What role do infectious pathogens play in neurosarcoidosis? Don’t miss this opportunity to hear from one of the leading voices in neuroimmunology. Register now: loom.ly/Ev2vjPw #Sarcoidosis #Neurosarcoidosis #RareDiseaseResearch #FSRResearch

What role do infectious pathogens play in neurosarcoidosis?
Don’t miss this opportunity to hear from one of the leading voices in neuroimmunology.
Register now: loom.ly/Ev2vjPw

#Sarcoidosis #Neurosarcoidosis #RareDiseaseResearch #FSRResearch
FSR (@stopsarcoidosis) 's Twitter Profile Photo

Happy 4th of July! Wishing everyone a safe and joyful Independence Day from the Foundation for Sarcoidosis Research. #4thOfJuly #StopSarcoidosis

Happy 4th of July!

Wishing everyone a safe and joyful Independence Day from the Foundation for Sarcoidosis Research.

#4thOfJuly #StopSarcoidosis
FSR (@stopsarcoidosis) 's Twitter Profile Photo

Connect with others living with sarcoidosis in our peer-led support group, guided by experienced FSR Patient Volunteers. This group provide a safe space for sharing experiences, emotional support, and open discussions. loom.ly/pg8MT1c #SarcoidosisSupport

Connect with others living with sarcoidosis in our peer-led support group, guided by experienced FSR Patient Volunteers. This group provide a safe space for sharing experiences, emotional support, and open discussions.  loom.ly/pg8MT1c #SarcoidosisSupport
FSR (@stopsarcoidosis) 's Twitter Profile Photo

Considering a clinical trial? Participating can provide access to expert care while moving research forward. Sign up for updates and view active trials here: loom.ly/CmRH3_4 Questions? [email protected] #StopSarcoidosis #ClinicalTrials #SarcoidosisResearch

FSR (@stopsarcoidosis) 's Twitter Profile Photo

Our skin is more than just a barrier; it plays a crucial role in overall health and well-being. From protecting us against infection to regulating temperature, our skin is essential! #WorldSkinHealthDay #CSDSkinHealthDay2025 Coalition of Skin Diseases

Our skin is more than just a barrier; it plays a crucial role in overall health and well-being. From protecting us against infection to regulating temperature, our skin is essential!  #WorldSkinHealthDay #CSDSkinHealthDay2025 <a href="/USskincoalition/">Coalition of Skin Diseases</a>
FSR (@stopsarcoidosis) 's Twitter Profile Photo

🚨 The NEW FSR-SARC Patient Registry is Here! 🚨 More powerful. More accessible. More patient-focused. 🔗 Join or update at stopsarcoidosis.org/patient-regist… 📧 Questions? Email [email protected] #Sarcoidosis #FSRSARCRegistry #PatientPowered #RareDiseaseResearch #StopSarcoidosis

🚨 The NEW FSR-SARC Patient Registry is Here! 🚨
More powerful. More accessible. More patient-focused.
🔗 Join or update at stopsarcoidosis.org/patient-regist…
📧 Questions? Email registry@stopsarcoidosis.org
#Sarcoidosis #FSRSARCRegistry #PatientPowered #RareDiseaseResearch #StopSarcoidosis
FSR (@stopsarcoidosis) 's Twitter Profile Photo

Episode 142: Dr. Courtney Montgomery | Director, Center for Biomedical Data Sciences, Oklahoma Medical Research Foundation & FSR Scientific Advisory Board Member loom.ly/8T4RX7U #Sarcoidosis #RareDisease #SarcFighter #FSRPodcast #GeneticResearch #SarcoidosisAwareness

Episode 142: Dr. Courtney Montgomery | Director, Center for Biomedical Data Sciences, Oklahoma Medical Research Foundation &amp;
FSR Scientific Advisory Board Member
 loom.ly/8T4RX7U
#Sarcoidosis #RareDisease #SarcFighter #FSRPodcast #GeneticResearch #SarcoidosisAwareness
FSR (@stopsarcoidosis) 's Twitter Profile Photo

Big news in #Sarcoidosis research! FSR awards $450K to support 3 early-career investigators advancing breakthroughs in imaging, cardiac care, and metabolism. Congrats to Dr. Lippitt, Mr. Quijano-Campos & Dr. Ettel! Learn more:loom.ly/Cz4PXsQ #FSRFellowship #RareDisease

Big news in #Sarcoidosis research!
FSR awards $450K to support 3 early-career investigators advancing breakthroughs in imaging, cardiac care, and metabolism.
Congrats to Dr. Lippitt, Mr. Quijano-Campos &amp; Dr. Ettel!
Learn more:loom.ly/Cz4PXsQ
#FSRFellowship #RareDisease
FSR (@stopsarcoidosis) 's Twitter Profile Photo

Stay Connected with FSR! 📩 Sign up today and join our community dedicated to advancing awareness, support, and hope for those impacted by sarcoidosis. 👉loom.ly/lMV1HBg Stay informed. Stay empowered. Together, we make a difference.

Stay Connected with FSR!

📩 Sign up today and join our community dedicated to advancing awareness, support, and hope for those impacted by sarcoidosis.
👉loom.ly/lMV1HBg
Stay informed. Stay empowered. Together, we make a difference.
FSR (@stopsarcoidosis) 's Twitter Profile Photo

What role do infectious pathogens play in neurosarcoidosis? Don’t miss this opportunity to hear from one of the leading voices in neuroimmunology. Register now: loom.ly/Ev2vjPw #Sarcoidosis #Neurosarcoidosis #RareDiseaseResearch #FSRResearch

What role do infectious pathogens play in neurosarcoidosis?
Don’t miss this opportunity to hear from one of the leading voices in neuroimmunology.
Register now: loom.ly/Ev2vjPw
#Sarcoidosis #Neurosarcoidosis #RareDiseaseResearch #FSRResearch
FSR (@stopsarcoidosis) 's Twitter Profile Photo

📚 Clinicians: Join FSR’s Sarcoidosis Journal Club 🗓️ Aug 14 | 🕓 4–5PM CT | 💻 Virtual Discuss: “Trends in All-Cause Mortality Among US Veterans With Sarcoidosis” (CHEST) Free to attend. Register now 🔗loom.ly/re87yBg

📚 Clinicians: Join FSR’s Sarcoidosis Journal Club
🗓️ Aug 14 | 🕓 4–5PM CT | 💻 Virtual
Discuss: “Trends in All-Cause Mortality Among US Veterans With Sarcoidosis” (CHEST)
Free to attend. Register now 
🔗loom.ly/re87yBg
FSR (@stopsarcoidosis) 's Twitter Profile Photo

📣 Happening Tonight! 7/27 Looking for support on your sarcoidosis journey? 💜 Join FSR’s virtual Sarcoidosis Support Group tonight from 5:00–6:15 PM CT for a safe, welcoming space to connect, share, and be heard. 👉 loom.ly/pg8MT1c

📣 Happening Tonight! 7/27
Looking for support on your sarcoidosis journey? 💜

Join FSR’s virtual Sarcoidosis Support Group tonight from 5:00–6:15 PM CT for a safe, welcoming space to connect, share, and be heard.

👉 loom.ly/pg8MT1c
FSR (@stopsarcoidosis) 's Twitter Profile Photo

You are not alone in your sarcoidosis journey. 💜 Join the FSR community to connect, learn, and fight for a cure—together. 📬 Get updates, support, and ways to take action. 🔗loom.ly/lMV1HBg #StopSarcoidosis #SarcoidosisAwareness #YouAreNotAlone #JoinTheFight

FSR (@stopsarcoidosis) 's Twitter Profile Photo

Be Part of the Sarcoidosis Conversation in Ottawa – For Free! WASOG • AASOG 2025 Patient Conference — a one-day, in-person event just for patients on Monday, August 25, 2025, in Ottawa, Canada. 🔗 Register now – it’s FREE for patients! tinyurl.com/WASOG2025

Be Part of the Sarcoidosis Conversation in Ottawa – For Free!
WASOG • AASOG 2025 Patient Conference — a one-day, in-person event just for patients on Monday, August 25, 2025, in Ottawa, Canada.
🔗 Register now – it’s FREE for patients!
tinyurl.com/WASOG2025
FSR (@stopsarcoidosis) 's Twitter Profile Photo

Your story matters. 💜 Whether it’s your first time sharing or a new chapter in your journey, we want to hear it. Blog, quote, or photo—every voice helps others feel less alone. Share Your Story: stopsarcoidosis.org/share-your-sar… #FacesOfSarcoidosis #StopSarcoidosis #SarcoidosisAwareness

Your story matters. 💜
Whether it’s your first time sharing or a new chapter in your journey, we want to hear it. Blog, quote, or photo—every voice helps others feel less alone.

Share Your Story: stopsarcoidosis.org/share-your-sar…

#FacesOfSarcoidosis #StopSarcoidosis #SarcoidosisAwareness
FSR (@stopsarcoidosis) 's Twitter Profile Photo

The FSR Sarc Fighter Podcast just hit 100,000 downloads! Hosted by John Carlin who is a member of the FSR Board of Directors, a sarcoidosis patient and FSR advocate, this podcast has been amplifying voices and building community since 2020. stopsarcoidosis.org/fsr-sarc-fight…

The FSR Sarc Fighter Podcast just hit 100,000 downloads!
Hosted by John Carlin who is a member of the FSR Board of Directors, a sarcoidosis patient and FSR advocate, this podcast has been amplifying voices and building community since 2020.
stopsarcoidosis.org/fsr-sarc-fight…
FSR (@stopsarcoidosis) 's Twitter Profile Photo

What role do infectious pathogens play in neurosarcoidosis? Don’t miss this opportunity to hear from one of the leading voices in neuroimmunology! Register now: loom.ly/Ev2vjPw #Sarcoidosis #Neurosarcoidosis #RareDiseaseResearch #FSRResearch

What role do infectious pathogens play in neurosarcoidosis?
Don’t miss this opportunity to hear from one of the leading voices in neuroimmunology!
Register now: loom.ly/Ev2vjPw
#Sarcoidosis #Neurosarcoidosis #RareDiseaseResearch #FSRResearch