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Good luck to our #LondonMarathon runners, Jamie Plummer and Georgia Dandy, for this Sunday! To support Jamie: justgiving.com/page/sudep-cha… To support Georgia: 2025tcslondonmarathon.enthuse.com/pf/georgia-dan… #SUDEP #epilepsyawareness

Inspired by our group fundraisers? Come together with your friends or family and raise awareness of epilepsy, simply email [email protected] to access our fundraising toolkit! #SUDEP #epilepsy #epilepsyawareness

“Memories… let them fill your mind, warm your heart, and lead you through.” – Unknown. If you need help following an epilepsy-related death, call 01235 772852 or email our team on [email protected] #SUDEP #epilepsy

"We regularly saw consultants with Amber, she had great care, and that whole time nobody ever mentioned SUDEP. Not once." Amber died from SUDEP aged 22 in 2023. Read as her parents, Amanda and Martin Walker, talk to Metro News: metro.co.uk/2025/04/26/dau… #epilepsy #SUDEP #seizure

We look forward to seeing those who are coming to our Maidstone Coffee Club this weekend ☕ If you haven’t had a chance to attend one of our coffee clubs then please get in contact with Pierce and Vicky at [email protected] #SUDEP #epilepsy #epilepsyawareness

“My mum Fidan was one of those people who were always full of life... Aged 51, with no medical complications, her life was sadly taken from her and us.” Read Fidan’s story, written by her daughter Gulten: sudep.org/stories/fidan/ #SUDEP #epilepsy #epilepsyawareness

Remember to book your place at our Memorial Service 🌸 Places are freely available – as many members of a family who wish to come can attend in memory of a loved one lost to #epilepsy. Book by calling 01235 772850 or email our team at [email protected]

Have you lost a loved one to an epilepsy-related death? Could you consider reporting to our Epilepsy Deaths Register? Every death reported is one step closer to preventing future deaths. Report today: epilepsydeathsregister.org #SUDEP #epilepsy #seizures

A big well done to Whairigail Lynch who completed the Glasgow Kiltwalk 2025 in memory of her best friend’s sister, Lee-Anne Kelman. She raised an amazing £755! #SUDEP #epilepsy #epilepsyawareness #glasgowkiltwalk

Our amazing London Marathon 2025 runners, Georgia Dandy and Jamie Plummer, managed to collectively raise £2085! Keep your eyes peeled for our London Marathon 2026 ballot details tomorrow! #SUDEP #epilepsy #epilepsyawareness #londonmarathon

Did you know that we offer free and confidential support to anyone who has lost someone to any #epilepsy related death, including accidents, injuries or #SUDEP? Find out more about our bereavement support by going online to sudep.org/bereavement-su… or email [email protected]

We have 4 places available for the #LondonMarathon 2026! If you would like to enter our ballot, head online to be in with a chance to win a place: sudep.org/london-maratho… If you have any questions, contact our fundraising team at [email protected] #epilepsyawareness

In honour of Sarah Pearmain, her closest family are coming together to take on numerous events in Gateshead this Sunday. “Sarah's epilepsy was only ever considered to be very minor. We never considered that it would lead to her death.” justgiving.com/page/sarahpear… #SUDEP

The SUDEP Action office and support line will be closed for the early May Bank Holiday on 5th May. We will reopen Tuesday 6th May. For more information about our work, please head to sudep.org #SUDEP #epilepsy #epilepsyawareness

We can support you as you move forward from an epilepsy-related death, providing information and guidance in your personal journey of grief. Talk to our experienced bereavement service by calling 01235 772852 or emailing [email protected] #SUDEP #epilepsy #bereavement

Many who are bereaved find comfort knowing that someone, somewhere understands a little of how they feel. Come along to one of our coffee clubs and meet others who have lost a loved one to epilepsy. For more information, email Pierce and Vicky at [email protected] #SUDEP #epilepsy

There is still time to join us at our Memorial Service 2025, Saturday 7th June at St James’s Church, Piccadilly. To book, simply call 01235 772850 or email our team at [email protected] #SUDEP #epilepsy #epilepsyawareness

“I lost my brother at the age of just 37 to SUDEP who was the life and soul of any party." Cheryl Morgan will be taking on the Welsh 3 Peaks Challenge on the 6th June in memory of her brother Martin. Support Cheryl: justgiving.com/page/peakrepea… #SUDEP #epilepsy #epilepsyawareness

Sharing your story can make a real difference to others. Your experiences have the power to make an impact and help us break down barriers for change. If someone close to you has died because of #epilepsy and you would like to share your story please contact us at [email protected]

Newly published UK Guidance from the The Royal College of Pathologists of Australasia takes on board SUDEP Action policy recommendations for families to be a timely and critical source of information & for sudden seizure-related deaths before diagnosis to be considered as potential #SUDEP