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Bumped into the one and only Gustavo Kuerten, Brazilian tennis icon 🎾 in São Paulo 🇧🇷

Dr. Vinícius Boldrini, researcher, biologist and TSF Ambassador of Brazil 🇧🇷 presented his poster, “M23 isoform is superior to M1 for detecting AQP4-IgG seroreversion during NMOSD” at The Update on #NMOSD & #MOGAD Meeting in São Paulo organized by The European Charcot Foundation FDN 👏🏽

Could have never imagined I’d end up in neurology but I’m happy to be here 🧠 Thank you BCTRIMS, European Charcot Foundation & MEDEN for organizing a fantastic meeting. Looking forward to the 2026 meeting in Tokyo 🇯🇵! Vou ter muitas saudades do Brasil 🇧🇷

Reunited with my Saudi brothers & collaborators, د . سلمان الجارالله and أحمد المطلّق. Excited for all of what we will achieve in KSA & beyond! 🇸🇦🌍 #INIC25

Looking forward to reconnecting with many colleagues & friends this week in WPB for #ACTRIMS 🏝️🧠 ACTRIMS was the 1st medical conference I ever attended on behalf of The Sumaira Foundation in 2022. I did my first CME alongside Dr. Dean Wingerchuk and Amy Kunchok ☺️

🌴☀️This afternoon, we spoke with Sumaira Flower 🍉, of The Sumaira Foundation, who discussed updates in the realm of care for #NMOSD from the patient perspective at the 2025 #ACTRIMSForum! ACTRIMS®🎥🧠

✂️📹 In this video clip, patient advocate Sumaira Flower 🍉, founder and executive director of The Sumaira Foundation, shared what she loves about attending the #ACTRIMSForum! ACTRIMS® #NMOSD

Happy #RareDiseaseDay 🖤🦓🤍 Let’s light the internet up with our #raredisease stories! My name is Sumaira and I live with a rare disease called #neuromyelitisoptica also known as #NMO / #NMOSD 🫶🏽

رمضان كريم ☪️ Praying for world peace more than ever this Ramadan 🤲🏽

Here’s to never letting our diagnoses keep us from doing the things we love… DANCING! Happy NMO Awareness Month 2025! 🩷🧡💛

Ce soir, la Tour sera fuchsia pour marquer le Mois de sensibilisation à la maladie du spectre des anticorps anti-MOG (MOGAD). Organisme : Sumaira Fondation du Canada | The Sumaira Foundation sumairafoundation.pulse.ly/upmcpyazpa

Delighted to be in San Diego for #AANAM 🏝️ if you’re from the world of #NMOSD, #MOGAD or neuroimmunology, do say hello 🩷🧡💛

There's no such thing as coincidence. Guess who I ran into at #AAN2025 in San Diego between thousands of attendees? Sumaira Flower 🍉 The Sumaira Foundation

Puppy kisses at #AANAM 🐶 American Academy of Neurology this is BRILLIANT 😍😍😍

I am very grateful to The Patient-Centered Outcomes Research Institute for funding our clinical trial on the comparative effectiveness of immunotherapies in NMOSD. Huge shout-out to our entire team: The Sumaira Foundation, Prof. Friedemann Paul, and Dr. Marcelo Matiello, without whom this would not have been possible.

It has been a magical week on so many fronts… thank you City of Chicago ! 💕💞💓💗🩷 #MOGAD

🏃🏾🇸🇦🥇 Best wishes to my friend/brother, Abdulrahman Y. Sabbagh عبدالرحمن ياسين صباغ, who is running the Boston Marathon on Monday which will make him one of 3 Saudis to complete all 6 World Majors! مبروك

Was so happy to visit Prof. Deiva in Paris, one of the world’s top pediatric neuroimmunologists & truly one of the kindest people I’ve met. He offered unexpected comfort, wisdom and care when I was grieving a family member last year. His patients are so lucky to have him.

Today, we visited the U.S. FDA & learned about how they support Phase IV trials. #NMOSD is fortunate to have 4 highly-efficacious FDA-approved therapies that have completely transformed the prognosis of the disease.