TANGO2 Research Foundation (@tango2research) 's Twitter Profile
TANGO2 Research Foundation

@tango2research

Our mission is to lead the way in finding a cure for TANGO2 related disease. #raredisease

ID: 940227773242724352

linkhttp://tango2research.org calendar_today11-12-2017 14:32:24

1,1K Tweet

599 Followers

79 Following

TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

We're always looking for passionate and committed people to volunteer their talents and time to help further our mission! ⠀ ⠀ Visit our website to learn more about our current volunteer opportunities! ⠀ ⠀ #TANGO2ResearchFoundation #TANGO2Disease #RareDiseaseCommunity

We're always looking for passionate and committed people to volunteer their talents and time to help further our mission! ⠀
⠀
Visit our website to learn more about our current volunteer opportunities! ⠀
⠀
#TANGO2ResearchFoundation
#TANGO2Disease
#RareDiseaseCommunity
TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

📘 Exciting news for the TANGO2 community! Request your copy here: form.jotform.com/251125050098146 #TANGO2ResearchFoundation #TANGO2Community #TANGO2Caregivers #RareDiseaseSupport

TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

Jamie’s message is a heartfelt reminder that, while the road may be tough, we don’t have to walk it alone. Through hope and community, we can face the future with courage, knowing that together, we are stronger, more resilient, and ready to make a difference.

TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

In case you missed it, we’re thrilled to share a truly remarkable discovery—the oldest known person ever diagnosed with TANGO2 Deficiency Disorder has just been identified… at 61 years old! Read the full story: 👉 tango2research.org/a-remarkable-d…

TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

Your fundraising dollars are hard at work! With your incredible support, we’re funding $193,500 in research this cycle! 🎉 🔗 Review and learn all about all of the Grant Cycle 5 projects: lnkd.in/eCvqec_r #TANGO2ResearchFoundation

Your fundraising dollars are hard at work! With your incredible support, we’re funding $193,500 in research this cycle! 🎉

🔗 Review and learn all about all of the Grant Cycle 5 projects: lnkd.in/eCvqec_r 

#TANGO2ResearchFoundation
TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

Thanks to Dr. Sam Mackenzie and a team of movement disorder experts, new analysis of family-submitted videos has identified dystonia and ataxia as key features in what many families call “TANGO2 spells.”

Thanks to Dr. Sam Mackenzie and a team of movement disorder experts, new analysis of family-submitted videos has identified dystonia and ataxia as key features in what many families call “TANGO2 spells.”
TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

Congratulations and Thank to Ann Geffen on her 5-Year Anniversary with the TANGO2 Research Foundation!! 🔗 Read the new blog post here: lnkd.in/eZyHSqeT #TANGO2ResearchFoundation

Congratulations and Thank to Ann Geffen on her 5-Year Anniversary with the TANGO2 Research Foundation!!

🔗 Read the new blog post here: lnkd.in/eZyHSqeT

#TANGO2ResearchFoundation
TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

🔗Here's a look back at all of the projects we funded during Grant Cycle 1! View our full research funding portfolio at: tango2research.org/research/resea… #TANGO2ResearchFoundation #CureTANGO2 #HopeThroughResearch #RareDiseaseCommunity

TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

Want to share your TANGO2 story with other families in our community? Head over to our website and submit your written or video story under the "For Families" tab at bit.ly/45ntT2g. Your story matters, and we can't wait to hear it! #TANGO2ResearchFoundation

Want to share your TANGO2 story with other families in our community?

Head over to our website and submit your written or video story under the "For Families" tab at bit.ly/45ntT2g. 

Your story matters, and we can't wait to hear it! 
 
#TANGO2ResearchFoundation
TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

🎥 Just received a rare disease diagnosis for your child? You're not alone—and we’re here to help. Watch, share, and remember—you are part of a powerful community. 💙✨ #TANGO2ResearchFoundation #RareDiseaseSupport #TANGO2Community #CaregiverLife

TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

The TANGO2 Research Foundation has awarded over $1.1 million (USD) in funding since its inception. View current and past research projects at tango2research.org/research/resea… #TANGO2ResearchFoundation #TANGO2Disease #RareDiseaseCommunity #TANGO2

The TANGO2 Research Foundation has awarded over $1.1 million (USD) in funding since its inception.

View current and past research projects at tango2research.org/research/resea… 

#TANGO2ResearchFoundation
#TANGO2Disease
#RareDiseaseCommunity
#TANGO2
TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

💙 TANGO2 parents, we want to hear from you! What’s one thing your child has taught you that you never expected to learn? #TANGO2ResearchFoundation #TANGO2Community #TANGO2Warrior #RareDiseaseParenting #LessonsFromMyChild

💙 TANGO2 parents, we want to hear from you!

What’s one thing your child has taught you that you never expected to learn?

#TANGO2ResearchFoundation
 #TANGO2Community
 #TANGO2Warrior
 #RareDiseaseParenting
 #LessonsFromMyChild
TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

Join us in congratulating Dr. Andreas Roos and Dr. Bert Klebl, both from University Medicine Essen at Duisburg-Essen University, on being awarded a $18,500 research grant! Learn more about all the funded Cycle 5 projects: lnkd.in/eCvqec_r

Join us in congratulating Dr. Andreas Roos and Dr. Bert Klebl, both from University Medicine Essen at Duisburg-Essen University, on being awarded a $18,500 research grant!

Learn more about all the funded Cycle 5 projects: lnkd.in/eCvqec_r
TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

Here's a look back at all of the projects we funded during Grant Cycle 1! View our full research funding portfolio at: tango2research.org/research/resea… #TANGO2ResearchFoundation #CureTANGO2 #HopeThroughResearch #RareDiseaseCommunity

TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

Learn more about TANGO2 and its role in the body by visiting our website. #TANGO2Awareness #TANGO2ResearchFoundation #TANGO2Gene #RareDiseases

Learn more about TANGO2 and its role in the body by visiting our website.

#TANGO2Awareness
#TANGO2ResearchFoundation
#TANGO2Gene
#RareDiseases
TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

🎉🎂 Happy 11th Birthday, Thea! 🎂🎉 Today we’re cheering for someone truly unforgettable—Thea, a fierce and fabulous TANGO2 warrior who’s officially turning 11! 💙🌟 #TANGO2ResearchFoundation #TANGO2Warrior #TANGO2BirthdayClub #TANGO2Community

🎉🎂 Happy 11th Birthday, Thea! 🎂🎉

Today we’re cheering for someone truly unforgettable—Thea, a fierce and fabulous TANGO2 warrior who’s officially turning 11! 💙🌟

#TANGO2ResearchFoundation
#TANGO2Warrior
#TANGO2BirthdayClub
#TANGO2Community
TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

This dedicated hotline connects healthcare providers with expert, real-time support during hospitalizations, medical crises, or when a patient is at risk of one. 📞 TANGO2 Hotline: 1 (860) 598-0955 #TANGO2ResearchFoundation

TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

Here, you're part of a powerful global network of families, researchers, doctors, and volunteers—all united in the fight to understand, treat, and one day cure TANGO2 disease. #TANGO2ResearchFoundation

TANGO2 Research Foundation (@tango2research) 's Twitter Profile Photo

🎉 TANGO2 Families—Join Our Birthday Club! 🎉 Visit bit.ly/45hCPGh to sign up in minutes! It’s quick, easy, and a wonderful way for our community to come together and spread love. 💌🎈 📲 Sign up today and let’s start celebrating! #TANGO2ResearchFoundation