Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile
Tatton Brown Rahman Syndrome (TBRS) Community

@tbrscommunity

The Tatton Brown Rahman Syndrome Community supports research and educates individuals with TBRS and their families, friends, and service providers.

ID: 1197851839070384128

linkhttps://linktr.ee/tbrscommunity.info calendar_today22-11-2019 12:18:37

221 Tweet

171 Followers

180 Following

Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

Whether you give your time, voice, skills, or money, your support is critical to our organization. Together we are stronger, and together we will make a difference for our loved ones! This #GivingTuesday please consider how you can get involved: tbrscommunity-bloom.kindful.com/?campaign=1223… #tbrs

Whether you give your time, voice, skills, or money, your support is critical to our organization. Together we are stronger, and together we will make a difference for our loved ones! This #GivingTuesday please consider how you can get involved: tbrscommunity-bloom.kindful.com/?campaign=1223… #tbrs
Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

We are #hiring a Science Director to chart a course toward translational research for TBRS. Please share with your networks! #RareDisease tbrsyndrome.org/news/the-tbrs-…

Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

Registration for the 2023 TBRS Summit is open! Join us in San Antonio at Morgan's Wonderland Camp for a fully inclusive gathering of families, researchers, clinicians, and friends! October 11-15. Abstract submissions will open soon...stay tuned! tbrsyndrome.org/events/2023-tb…

Registration for the 2023 TBRS Summit is open! Join us in San Antonio at <a href="/MorgansWndrlnd/">Morgan's Wonderland</a> Camp for a fully inclusive gathering of families, researchers, clinicians, and friends! October 11-15. Abstract submissions will open soon...stay tuned!

tbrsyndrome.org/events/2023-tb…
Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

šŸ“£ We are now excepting abstract submissions for the TBRS Summit in October! Be sure to register and please share with colleagues! Topics include: #Autism #RareDisease Genetics/epigenetics Neurodevelopment DNMT3A Overgrowth Oncology …and more! tbrsyndrome.org/events/2023-tb…

šŸ“£ We are now excepting abstract submissions for the TBRS Summit in October! Be sure to register and please share with colleagues! Topics include:
#Autism 
#RareDisease 
Genetics/epigenetics 
Neurodevelopment
DNMT3A
Overgrowth
Oncology 
…and more!
tbrsyndrome.org/events/2023-tb…
National Organization for Rare Disorders (NORD) (@rarediseases) 's Twitter Profile Photo

The 2023 Tatton Brown Rahman Syndrome (TBRS) Community Summit is combining their Family Conference and Collaborative Research Network (CRN) Conference into one joint Summit! The event will be held October 11-15 at Morgan’s Wonderland Camp in San Antonio, TX! Learn more: bit.ly/43eJsYB #TBRS #DNMT3A

Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

šŸ“£We are now accepting abstract submissions for the TBRS Summit in October! Be sure to register and please share with colleagues! Topics include: #Autism #RareDisease Genetics/epigenetics Neurodevelopment DNMT3A Overgrowth Oncology …and more! tbrsyndrome.org/events/2023-tb…

šŸ“£We are now accepting abstract submissions for the TBRS Summit in October! Be sure to register and please share with colleagues! Topics include: #Autism #RareDisease  Genetics/epigenetics  Neurodevelopment DNMT3A Overgrowth Oncology  …and more! tbrsyndrome.org/events/2023-tb…
Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

Are you a caregiver or someone who is diagnosed with Tatton Brown Rahman Syndrome (TBRS) or another Overgrowth Syndrome? Please fill out this short survey to help drive patient-centered research for Overgrowth Syndromes. form.jotform.com/231714617886061

Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

🧬 Calling all #researchers! Join us for the Overgrowth Syndromes Alliance Speaker Series. First up: Dr. Harrison Gabel, exploring mechanisms of overgrowth & intellectual disability syndromes. 🧠 šŸ—“ļø Nov 22, 2024, 10 AM EST šŸ”— ow.ly/VeqE50U1Iuv Register now!

🧬 Calling all #researchers! Join us for the Overgrowth Syndromes Alliance Speaker Series. First up: Dr. Harrison Gabel, exploring mechanisms of overgrowth &amp; intellectual disability syndromes. 🧠

šŸ—“ļø Nov 22, 2024, 10 AM EST
šŸ”— ow.ly/VeqE50U1Iuv
Register now!
Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

We’re just $10,855 away from reaching our $30,000 goal to launch the TBRS drug development and repurposing program on January 1st! This program could bring life-changing treatments to our community. Every contribution makes a difference. givebutter.com/TBRSTreatments

Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

Wishing you and your loved ones a season filled with joy, love, and hope. We are so grateful for your support and for being part of our journey to create a brighter future for TBRS families. From all of us at the TBRS Community—Happy Holidays! šŸ’™

Wishing you and your loved ones a season filled with joy, love, and hope. We are so grateful for your support and for being part of our journey to create a brighter future for TBRS families.

From all of us at the TBRS Community—Happy Holidays! šŸ’™
Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

šŸŽ‰Your TBRS Community PRESENTS are ready (part 1 of 3)! Click through to see all we have accomplished in research in 2024! šŸŽ‰ #TBRSCommunity #CollaborativeResearch #TattonBrownRahmanSyndrome

šŸŽ‰Your TBRS Community PRESENTS are ready (part 1 of 3)! Click through to see all we have accomplished in research in 2024! šŸŽ‰ #TBRSCommunity #CollaborativeResearch #TattonBrownRahmanSyndrome
Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

šŸŽ‰TBRS Community PRESENTS (part 2 of 3): Curious what support we've offered this year? Click through to see a recap for 2024! šŸŽ‰ #TBRSCommunity #Communitysupport #TattonBrownRahmanSyndrome

šŸŽ‰TBRS Community PRESENTS (part 2 of 3): Curious what support we've offered this year? Click through to see a recap for 2024! šŸŽ‰ #TBRSCommunity #Communitysupport #TattonBrownRahmanSyndrome
Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

As we say goodbye to 2024, we look forward to the promise of 2025. From all of us at the TBRS Community, thank you for being part of our journey. Wishing you a joyful and hope-filled New Year!

As we say goodbye to 2024, we look forward to the promise of 2025. From all of us at the TBRS Community, thank you for being part of our journey. Wishing you a joyful and hope-filled New Year!
Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

TBRS Mom, Zoe Wisnoski's story "The System is Broken" made @Story Collider's "Stories That Changed Our Perspective in 2024" list. Congrats, Zoe! megaphone.link/ADL4681946097

Tatton Brown Rahman Syndrome (TBRS) Community (@tbrscommunity) 's Twitter Profile Photo

Calling All TBRS Champions! Each year, TBRS families raise over $100,000 through fundraisers—cornhole tournaments, wine tastings, and more. Join us! Contact Jill to host your event. Let's make an even greater impact! [email protected]

Calling All TBRS Champions! Each year, TBRS families raise over $100,000 through fundraisers—cornhole tournaments, wine tastings, and more. Join us! Contact Jill to host your event. Let's make an even greater impact! jill@tbrsyndrome.org