TTP Network (@ttp_network) 's Twitter Profile
TTP Network

@ttp_network

Patient Support Group. Registered Charity. Supporting patients, families and professionals dealing with Thrombotic Thrombocytopenic Purpura in UK and Eire.

ID: 2283895686

linkhttp://www.ttpnetwork.org.uk calendar_today09-01-2014 17:41:01

315 Tweet

252 Followers

111 Following

TTP Network (@ttp_network) 's Twitter Profile Photo

Today we celebrate World Mental Health Day 💛 A diagnosis of TTP can have a significant impact on mental health, so it’s important to remember to reach out if you’re struggling. You are never alone 💛 ttpnetwork.org.uk

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This is such an innovative film and will be a fabulous resource for patients and their families. We are proud to have been invited to the premiere!

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On this very #rarediseaseday we are delighted to launch our new website ttpnetwork.org.uk thank you to Takeda and AppCentric for your support and expertise

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Dr Will Thomas ran a marathon on Sunday in an incredible 3.5hrs. After months getting up super early to train. We are so grateful for his support. justgiving.com/page/will-thom…?

Dr Will Thomas ran a marathon on Sunday in an incredible 3.5hrs. After months getting up super early to train. We are so grateful for his support. justgiving.com/page/will-thom…?
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Another fabulous TTP consultant running for us this year. Dr Rachel Evans from Newcastle is bringing up the north with this ULTRA MARATHON!!! You can support her here: justgiving.com/page/rachel-ev…

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A huge thank you to all our volunteers including our Trustees who volunteer their time. We couldn’t do it without you.

A huge thank you to all our volunteers including our Trustees who volunteer their time.  We couldn’t do it without you.
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Make your voice heard: take the new Rare Barometer survey on the impact of rare diseases on everyday life! To make your voice heard & share your experience, take the survey by clicking here, before 8 September: tiny.cc/RB_DailyLifedis EURORDIS-Rare Diseases Europe

Make your voice heard: take the new Rare Barometer survey on the impact of rare diseases on everyday life!

To make your voice heard & share your experience, take  the survey by clicking here, before 8 September: tiny.cc/RB_DailyLifedis
<a href="/eurordis/">EURORDIS-Rare Diseases Europe</a>
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Are you a TTP Patient? Would you like to know more about relapses? join us for our free webinar: buytickets.at/ttpnetwork/131…

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Are you planning a trip abroad? Take a look at the Your Travel and Health website yourtravelandhealth.com Lots of tips about what to pack, where to put your medications and travel insurance for a pre-existing condition &more.

Are you planning a trip abroad?  Take a look at the Your Travel and Health website  yourtravelandhealth.com  Lots of tips about what to pack, where to put your medications and travel insurance for a pre-existing condition &amp;more.
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Don't forget to take your TTP Travel letter, translated into the language you need: ttpnetwork.org.uk/resources/trav…

Don't forget to take your TTP Travel letter, translated into the language you need: ttpnetwork.org.uk/resources/trav…
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As Christmas approaches we are offering two opportunities to support TTPNetwork. Send an e-card or pick a penguin! dontsendmeacard.com/ecards/chariti… visufund.com/ttpnetwork-chr…

As Christmas approaches we are offering two opportunities to support TTPNetwork.  Send an e-card or pick a penguin! dontsendmeacard.com/ecards/chariti…

visufund.com/ttpnetwork-chr…
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Missed the last post? no need to worry - send an e-card and support TTPNetwork at the same time! dontsendmeacard.com/ecards/chariti… #DontSendMeACard #Christmas2024

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The 2025 TTPNetwork Patient event is happening soon. Get your ticket here: buytickets.at/ttpnetwork/156… Learn more about TTP, meet others with cTTP and iTTP and their families. Have fun! Plus refreshments and lunch included.

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Are you a patient with iTTP? Would you like to take part in research on the Psychological Impact of iTTP? read more here: liveuclac-my.sharepoint.com/personal/ucjum… take part here: forms.cloud.microsoft/pages/response…

Are you a patient with iTTP?  Would you like to take part in research on the Psychological Impact of iTTP?
read more here: liveuclac-my.sharepoint.com/personal/ucjum…

take part here: forms.cloud.microsoft/pages/response…