Cure TBM Foundation (Tracheobronchomalacia) (@tbmcure) 's Twitter Profile
Cure TBM Foundation (Tracheobronchomalacia)

@tbmcure

Cure TBM. Tracheobronchomalacia (airway Malacia ) is a 501 c (3) non-profit that helps raise awareness and funding for research for both Peds and Adults

ID: 1142608433436397576

linkhttp://curetbm.org calendar_today23-06-2019 01:40:53

888 Tweet

270 Followers

641 Following

Cure TBM Foundation (Tracheobronchomalacia) (@tbmcure) 's Twitter Profile Photo

All of our funding comes from families. @lillazlife is a teen who owns an Etsy shop. She has #TBM and donates the money that she earns to us to help others suffering with #Tracheobronchomalacia Our donors are mighty and we are honored. Every penny counts and is a treasure.

All of our funding comes from families.  @lillazlife  is a  teen who owns an Etsy shop. She has #TBM and donates the money that she earns to us to help others suffering with #Tracheobronchomalacia 

Our donors are mighty and we are honored.  Every penny counts and is a treasure.
Cure TBM Foundation (Tracheobronchomalacia) (@tbmcure) 's Twitter Profile Photo

Founders of nonprofits don’t start a “business“ for any reason except the utter Burning passion in their heart to change a situation. It isn’t a business to them but Rather an extension of their soul, Unable to be separated. Be gracious to them. Support and respect them.

Cure TBM Foundation (Tracheobronchomalacia) (@tbmcure) 's Twitter Profile Photo

After a good 8 month sabbatical, I am happy to be back doing what I love the best. Supporting patients, connecting providers, and raising funds for research. I’m very excited about the collaboration going on between patients and providers in US &UK as well as nurse navigators.🙏🏽

Cure TBM Foundation (Tracheobronchomalacia) (@tbmcure) 's Twitter Profile Photo

We are beyond thrilled to support this very important research. Thank you for working so hard to improve the lives of those suffering from#TBM

Cure TBM Foundation (Tracheobronchomalacia) (@tbmcure) 's Twitter Profile Photo

This is Mike in these current pictures. He was living on ECMO for months due to #TBM Everyone lost hope but Sidhu Peña Gangadharan 🇺🇸🇵🇭🇮🇳 He stayed the course. Mike’s now all over the country w/ other TBM patients who his wife bonded w/ during those months of hell. Cheers to you Dr.Gangadharan !

This is Mike in these current pictures. He was living on ECMO for months due to #TBM  Everyone lost hope but <a href="/SidhuGang/">Sidhu Peña Gangadharan 🇺🇸🇵🇭🇮🇳</a>   He stayed the course. Mike’s now all over the country w/ other TBM patients who his wife bonded w/ during those months of hell. Cheers to you Dr.Gangadharan !
Cure TBM Foundation (Tracheobronchomalacia) (@tbmcure) 's Twitter Profile Photo

We are so proud of CURE TBMs very own Isabella Valentini. Isabella graduated from The University of Georgia with a bachelors of science in Nutritional Sciences. She is taking a gap year while applying to medical school and working in a Pediatrician’s office.

We are so proud of  CURE TBMs very own Isabella Valentini. 

Isabella graduated from The University of Georgia with a bachelors of science in Nutritional Sciences. She is taking a gap year while applying to medical school and working in a Pediatrician’s office.
Cure TBM Foundation (Tracheobronchomalacia) (@tbmcure) 's Twitter Profile Photo

With a grateful heart, we sincerely Thank our Volunteers who serve endlessly in our support groups. They are the reason out patients feel so welcome. So nice to celebrate tonight and honor them.

With a grateful heart, we sincerely Thank our Volunteers who serve endlessly in our support groups.  They are the reason out patients feel so welcome.  So nice to celebrate tonight and honor them.
Cure TBM Foundation (Tracheobronchomalacia) (@tbmcure) 's Twitter Profile Photo

Incredibly grateful Eugene Shostak and Oliver Chow Weill Cornell Medicine for their knowledge and skill they poured out to our#TBM pts tonight at a virtual education night. Our patients are so desperate to be understood. Thank you for being a wonderful center of excellence in TBM!

Cure TBM Foundation (Tracheobronchomalacia) (@tbmcure) 's Twitter Profile Photo

We are shouting a HUGE congratulations to Dr. Richard Lazzaro. Thank you for your tireless commitment to our #TBM community. Congratulations! youtu.be/XHEiRADY-Fs?si…

Cure TBM Foundation (Tracheobronchomalacia) (@tbmcure) 's Twitter Profile Photo

Imagine feeling like you’re suffocating — but no one can see it. That’s what it’s like to live with Tracheobronchomalacia (TBM). It’s misunderstood. And it’s real. At Cure TBM, we fight 🦋 Learn more or share your story at CureTBM.org #CureTBM #EveryBreathMatter