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🎓 #BUProud #Graduation Today I celebrated my MSc in Clinical & Developmental Neuropsychology. Key moments: The autism lectures leading me to realise I am #ActuallyAutistic, winning the Outstanding Contribution to Equality Award, my exhibition "Seeking Meaning in Diagnosis" (1/3)

Did you see our YouTube video on the Connections between LongCovid ME/CFS fibromyalgia and hypermobility? With Dr Eccles, our Ptron and leading researcher. #hypermobility #GJH #hEDS #connective youtu.be/H9MtnF2-JAI?si…

💙Natural History Study Announced! In December 2023, The Ehlers-Danlos Society received a generous donation of $6.7 million from the Mike and Sofia Segal Foundation to fund critical research. Part of this funding has been allocated to establish a $2.5 million biobank and fund

Today at the @geneticssociety American Society for Human Genetics (ASHG) conference, the HEDGE study analysis team shared preliminary work from the HEDGE (Hypermobile Ehlers-Danlos Genetic Evaluation) study! ehlers-danlos.com/ashg-abstracts/ #HypermobileEDS #ASHG2024 #EhlersDanlosSyndrome

So Vanscoy just sent me this. What are the odds that his car would have an The Ehlers-Danlos Society logo on Jayson Alexander’s car for today. Shoutout to Jayson and Fast Track Racing for bringing some awareness to EDS 🦓 Especially with Leigh Overton 🇺🇦 getting his 2nd EDS diagnosis

Picture looking at the world through a lens that blurs, clouds, and distorts everything you see. This is a daily reality for many individuals with #keratoconus. The cornea is a clear protective dome that covers the iris and pupil and allows light to enter the eye. Keratoconus

Thank you to @YoungNutra Mirica® for sponsoring our recent EDS ECHO Diet & Nutrition Event! ⁠ They said, "Mirica® Advanced, our premium supplement with Levagen®+ PEA, is clinically shown to reduce pain and inflammation. Backed by over 800 studies, we’re excited to support this

Applications are now open for licensed #physicaltherapists / #physiotherapists wanting to learn how to use principles of neuroplasticity to retrain alignment and stability in #hypermobile patients!⁠ Join EDS ECHO Finding Functional Foundations (FFF)™ ehlers-danlos.com/eds-echo-findi…

November 19 is #InternationalMensDay. We spoke to Domenik who volunteers for The Ehlers-Danlos Society and leads the Let’s Chat Men’s support group, about his own #EhlersDanlosSyndrome journey, and why the men’s group is so important for those impacted by EDS & HSD: ehlers-danlos.com/international-…

We're pleased to introduce our sponsors Zevra Therapeutics Therapeutics who are researching vascular Ehlers-Danlos syndrome (vEDS)! "Zevra Therapeutics is committed to developing treatments for rare diseases. Our phase 3 clinical research study tests celiprolol, an investigational

💜 Today is #WorldChildrensDay, and we're delighted to welcome #healthcareprofessionals from all over the world to register for the EDS ECHO #Pediatrics North America program.⁠CME/CEU/CE credits are available to healthcare professionals. ⁠ Apply at ehlers-danlos.com/pediatric-echo…

Delighted to be part of the SOSORT webinar today on hypermobility and scoliosis. Greater understanding needed. Fabulous line up including surgeons, psychiatrists and physical therapists SOSORT The Ehlers-Danlos Society UCL Great Ormond Street Institute of Child Health

Imagine a world where every person living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) receives the care and support they need to thrive. At The Ehlers-Danlos Society, we are committed to making this vision a reality. Right now, a generous

🌏 #HealthcareProfessionals — Join the 2025 EDS ECHO Multidisciplinary Team Practice Program Australasia!⁠ This virtual program is designed for those currently involved in clinical work with #EhlersDanlossyndrome or #hypermobilityspectrumdisorder ehlers-danlos.com/eds-echo-multi… ⁠

What if your daily coffee run could make a difference this week? ☕ For just the cost of your favorite latte, you can help fuel The Ehlers-Danlos Society's mission to help the EDS and HSD community and fund vital care, access, research, and education🦓 Here's the challenge:

Every year the NFL has players put a cause and charity on custom cleats, and the Texans are nice enough to let us participate as well. This year for My Cause, My Cleats I chose the The Ehlers-Danlos Society. Ehlers-Danlos Syndrome has a wide range of outcomes, including things like

Slipping Rib Syndrome (SRS) occurs when one or more of the lower ribs (commonly the 8th, 9th, or 10th) move abnormally due to the loss of the flexible cartilage connections between the ribs. This instability often irritates intercostal nerves, causing sharp, radiating pain in

Happy international day of people with disabilities, you can find me making being disabled look cool (and other amazing humans!) on the The Ehlers-Danlos Society instagram page :)

Every dollar you donate to The Ehlers-Danlos Society this #GivingTuesday will make twice the impact and help this critical work in funding research, expanding care, and educating healthcare professionals to continue. Your donation today will directly support research and care that can