The Sumaira Foundation (@thesumairafdn) 's Twitter Profile
The Sumaira Foundation

@thesumairafdn

Raising global awareness of #NMOSD & #MOGAD, building community, supporting research, advocating for rare disease patients/caregivers.

ID: 2871642269

linkhttp://www.sumairafoundation.org calendar_today11-11-2014 02:02:15

3,3K Tweet

1,1K Followers

521 Following

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

Descubre por que el Yoga es para todos y puede ayudarte. El yoga no es esa idea que se tiene de una disciplina física. El Yoga es mas que físico, es celular, mental, intelectual y espiritual: te afecta en todo tu ser. us02web.zoom.us/webinar/regist…

Descubre por que el Yoga es para todos y puede ayudarte. El yoga no es esa idea que se tiene de una disciplina física. El Yoga es mas que físico, es celular, mental, intelectual y espiritual: te afecta en todo tu ser.

us02web.zoom.us/webinar/regist…
Sumaira Flower 🍉 (@sumairaflower) 's Twitter Profile Photo

Happy 4-year work-versary to my business partner, strategic advisor, best friend and partner in cause, the one and only Michael ☄️ together, we are unstoppable 🩷

Happy 4-year work-versary to my business partner, strategic advisor, best friend and partner in cause, the one and only Michael ☄️ together, we are unstoppable 🩷
MSJ (@msj_research) 's Twitter Profile Photo

#WorldMSDay2025: Testing for myelin oligodendrocyte glycoprotein #MOGAD antibodies: Who, what, where, when, why, and how! Review from Adrian Budhram London Health Sciences Centre Western University Eoin Flanagan Mayo Clinic Neuro ▶️ journals.sagepub.com/doi/full/10.11…

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

🇮🇹 Buona Festa della Repubblica dal team di TSF Italia! In questa giornata speciale, ribadiamo il nostro impegno in Italia per #NMOSD e #MOGAD: sensibilizzare, informare e supportare chi ne è colpito.

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

🇩🇪 Lernen Sie Marcel kennen, den neuen Botschafter der TSF in Deutschland! Im Jahr 2016 veränderte sich Marcels Leben grundlegend: Bei ihm wurde eine damals noch namenlose Krankheit diagnostiziert – heute bekannt als #MOGAD.

🇩🇪 Lernen Sie Marcel kennen, den neuen Botschafter der TSF in Deutschland!

Im Jahr 2016 veränderte sich Marcels Leben grundlegend: Bei ihm wurde eine damals noch namenlose Krankheit diagnostiziert – heute bekannt als #MOGAD.
The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

🏳️‍🌈🏳️‍⚧️ June is pride month but pride is more than a month. We recognize the challenges faced by those navigating both an LGBTQIA+ identity and a rare disease diagnosis, and we’re here to ensure you don’t have to face them alone. Let’s connect, share & uplift each other. 🩷🧡💛

🏳️‍🌈🏳️‍⚧️ June is pride month but pride is more than a month. 

We recognize the  challenges faced by those navigating both an LGBTQIA+ identity and a rare disease diagnosis, and we’re here to ensure you don’t have to face them alone. 

Let’s connect, share & uplift each other. 🩷🧡💛
The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

Autoantibodies against myelin oligodendrocyte glycoprotein in a subgroup of patients with psychotic symptoms frontiersin.org/journals/neuro…

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

A study in Neurology and Therapy by Marco Capobianco and team revealed a major disconnect in how neurologists versus patients perceive disease severity and stability in #NMOSD. Read the summary: sumairafoundation.org/summaries/char…

A study in <a href="/Neurology_Ther/">Neurology and Therapy</a> by <a href="/dottcapobianco/">Marco Capobianco</a> and team revealed a major disconnect in how neurologists versus patients perceive disease severity and stability in #NMOSD. 

Read the summary: sumairafoundation.org/summaries/char…
ECTRIMS (@ectrims) 's Twitter Profile Photo

Don't Miss ECTRIMS Pre-Day! ✅ Insights into rare neuroimmune diseases ✅ In-depth sessions on NMOSD, MOGAD, autoimmune encephalitis & HSV encephalitis + more ✅ Happening in beautiful Barcelona on 23 Sept ✍️ Book your seat now! bit.ly/4gYUuIA #ECTRIMS2025

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

TSF is inviting #NMOSD, #MOGAD and #AE patients, caregivers and clinicians in and around Chicagoland to join us! Join us on July 26th for our Chicago Patient Day Rare Neuroinflammatory Disorders. Register here: eventbrite.com/e/tsfs-chicago…

TSF is inviting #NMOSD, #MOGAD and #AE patients, caregivers and clinicians in and around Chicagoland to join us!

Join us on July 26th for our Chicago Patient Day Rare Neuroinflammatory Disorders.

Register here:
eventbrite.com/e/tsfs-chicago…
Stacey Clardy MD PhD (@staceylclardy) 's Twitter Profile Photo

Just published 👉 A NEWLY updated, comprehensive meta-analysis of the treatment of anti-NMDAR encephalitis: Analysis, equipoise, and the urgent need for evidence over anecdote 🧠🔥 Why is this paper so important ? 1/

Just published 👉

A NEWLY updated, comprehensive meta-analysis of the treatment of anti-NMDAR encephalitis: Analysis, equipoise, and the urgent need for evidence over anecdote 🧠🔥 

Why is this paper so important ? 

1/
Stacey Clardy MD PhD (@staceylclardy) 's Twitter Profile Photo

✋ 🛑 We must do better. If available clinical trials are not discussed and offered to patient/loved ones BEFORE immunotherapy is given, then it is NOT informed care. KNOWLEDGE = POWER @ExTINGUISHTrial

✋ 🛑 We must do better.  

If available clinical trials are not discussed and offered to patient/loved ones BEFORE immunotherapy is given, then it is NOT informed care. 

KNOWLEDGE = POWER 

<a href="/extinguishtrial/">@ExTINGUISHTrial</a>
The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

We can’t wait to see you all tomorrow at TSF's Washington DC Patient Day for #NMOSD & #MOGAD! Registration begins at 10AM… see you then 😎

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

Dr. Brenda Banwell shares the process and commitment of developing the international diagnostic criteria of #MOGAD with our live audience at DC Patient Day 🇺🇸

NeurologyLive® (@neurology_live) 's Twitter Profile Photo

🎥 In this interview, Sumaira Flower 🍉, of The Sumaira Foundation, discussed a newly funded international trial evaluating both approved and off-label therapies for #NMOSD, aiming to help inform future treatment decisions and patient care. #CMSC25 CMSC Watch here:

🎥 In this interview, <a href="/SumairaFlower/">Sumaira Flower 🍉</a>, of <a href="/TheSumairaFDN/">The Sumaira Foundation</a>, discussed a newly funded international trial evaluating both approved and off-label therapies for #NMOSD, aiming to help inform future treatment decisions and patient care. #CMSC25 <a href="/mscare/">CMSC</a>

Watch here:
The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

No matter what #raredisease you have, in the clerb, we all FAM! Thanks for a great Patient Day, DC - we love you 🩷🧡💛 #NMOSD #MOGAD

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

We’re excited to launch “Side-by-Side,” an educational series that explores the power of shared decision-making (SDM) and aims to educate our audience on how to achieve it. Check out the videos, checklist and other helpful tools here: sumairafoundation.org/side-by-side-y….