
The Sumaira Foundation
@thesumairafdn
Raising global awareness of #NMOSD & #MOGAD, building community, supporting research, advocating for rare disease patients/caregivers.
ID: 2871642269
http://www.sumairafoundation.org 11-11-2014 02:02:15
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1,1K Followers
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#WorldMSDay2025: Testing for myelin oligodendrocyte glycoprotein #MOGAD antibodies: Who, what, where, when, why, and how! Review from Adrian Budhram London Health Sciences Centre Western University Eoin Flanagan Mayo Clinic Neuro ▶️ journals.sagepub.com/doi/full/10.11…





A study in Neurology and Therapy by Marco Capobianco and team revealed a major disconnect in how neurologists versus patients perceive disease severity and stability in #NMOSD. Read the summary: sumairafoundation.org/summaries/char…





✋ 🛑 We must do better. If available clinical trials are not discussed and offered to patient/loved ones BEFORE immunotherapy is given, then it is NOT informed care. KNOWLEDGE = POWER @ExTINGUISHTrial




🎥 In this interview, Sumaira Flower 🍉, of The Sumaira Foundation, discussed a newly funded international trial evaluating both approved and off-label therapies for #NMOSD, aiming to help inform future treatment decisions and patient care. #CMSC25 CMSC Watch here:


