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#RareDisease ‘affects a small number of people’, but does not affect their lives any less. Celebrating today all the unsung heroes who face each day with courage & patience as the rest of us learn more about #RareDisease. Rare Disease Day Rare Disease UK TTP Network Complement Kidney TMA UK

Paul Fitzsimmons Tina Dutt @LivHospitals I agree! Dr Dutt is an inspiration. I am proud to work with her 🥰 #teamhaem

For change to happen, staff that are invited to speak up must be listened to.

Recovery is about recovery of people and joy as well as services. Both Royal Liverpool Philharmonic and @LivHospitals have been heavily disrupted by #COVID19. Exciting conversation with Royal Liverpool Philharmonic today on how we can use music and partnerships to recover culture and joy in our hospitals❤️

Let’s take some time this #nationalautismweek to think how we can better support our friends with #Autism and adopt some of their great qualities in our own day to day practice. Embrace the strengths of our #diversity, at home #Liverpool, at work @LivHospitals wherever you go...

Real-world experience with caplacizumab in the management of acute TTP ow.ly/1rZc50EePVy #TTP

Thank you SAM Online #ScouseSAM for the invitation! Not so much a case of ‘how low can you go?’ but how far can you go- to find the underlying cause of a low platelet count? Treat the cause #ITP, #TTP, #HITT, #VITT, #DIC- not the count unless the patient is bleeding 🩸🤓

Why is #clinicalresearch so important to @LivHospitals? Because it’s important to our patients! Helping each other to improve treatment options and health outcomes. Happy #InternationalClinicalTrialsDay & thank you! @NIHRCRN_nwcoast TTP Network UK TTP Registry Complement Kidney TMA UK

Our first national #TTP Nurses Meeting in Liverpool today! A wonderful gathering incl #psychology, #NHSBT, #pharmacy and #research. We all heard from our patient speaker - TTP nurses are critical support for the families of TTP patients. Hopefully the 1st of many such meetings!

Thrombotic Thrombocytopenic Purpura (TTP) is a rare, life blood disorder. Affecting approx. 6 per million of the population. It's more common in women than men, although it can affect people of all ages, the ave age of diagnosis is 40 years. #RareDiseaseDay2022 GeneticAll_UK

Very pleased to share our review in the British Journal of Haematology, this is a key area which is so important to our patients. Tina Dutt Mind and matter: The neurological complications of thrombotic thrombocytopenic purpura onlinelibrary.wiley.com/doi/full/10.11…

Very happy to update on our UK multicentre observational study on neurological complications of TTP at the HaemSTAR 💙 meeting, BSH - Haematology. Study is also on NIHR associate PI scheme. Please get in touch if you want to be involved! 😊 Tina Dutt @LivHospitals @NIHRCRN_nwcoast

🏴󠁧󠁢󠁥󠁮󠁧󠁿 For patients in England: Read about the ConNeCT study being run from Liverpool and how YOU can get involved. ttpnetwork.org.uk/the-connect-st…

This #ICTD2023 Dr Tina Dutt, Consultant Haematologist and Haematology Clinical Research Lead, talks to Johannes who is a participant in the CONNECT research study. This study looking at the long term effects of TTP, Thrombotic Thrombocytopenia Purpura. #LUHFTresearch

Sharing two studies - mailchi.mp/142b2f0d3d6b/2…

Today @LivHospitals we celebrated the premier of “YOU, ME & TTP” first ever short film-told through the hearts and minds of inspiring patients with #TTP. Thanks to @alexblogg truly sensitive filmmaker and patients for sharing your lives to help others.Coming to a screen near you!

A sell out @LivHospitals for the launch of our patients’ very own short film “YOU, ME & TTP”. Delighted to share this unique event with a shower of special guests:Liverpool’s High Sheriff, UK TTP Network Lead,senior Trust leaders and such brave and inspiring patients+families🩷

Another great day hosting the 4th Annual Post ISTH& ASH Meeting in Birmingham. Over 100 attendees hearing the latest data from passionate subject matter experts. An enjoyable day of like-minded individuals sharing knowledge, experience & best practice. Thanks to all!

Thank you Liverpool John Moores University for the double award 🎉- #ACP Apprentice Learner of the Year 2024 &Apprenticeship Workplace Support of the Year runner-up! So proud of Sam-a fantastic RN @LivHospitals -diligent, ambitious, caring -a true pleasure to support 👏 the future is bright!

A great morning chairing another celebrity speaker line up at the annual post #ISTH & #ASH Highlights Meeting, this year in #liverpool! 5 year anniversary for this meeting (!) attracting quality speakers and a great audience enthusiastic about advances in medical haematology!