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Freezing the Universal Credit health element—and delaying access until age 22—will push seriously ill young people further into hardship. We stand with @Scope in calling on the govt to scrap these cuts. Add your name to support here: bit.ly/3H0wGHT

We stand with Tŷ Hafan & Hope House & Tŷ Gobaith Children's Hospices in asking Welsh political parties to pledge fair and sustainable funding for children’s hospices in their manifestos. Covering 25% of care costs by 2025 & 30% by 2030 would make a huge difference to seriously ill children & families.👇

On Wednesday, the Chancellor will announce the outcome of Spending Review 2025. This is a vital moment for seriously ill children. We've broken down why it matters – and why it must deliver sustainable funding for children’s palliative care. bit.ly/4kVOX7O

To give all children, including those who are seriously ill, the opportunity to succeed, ministers must act now to fill the funding gaps they face. Read our full reaction to today’s #spendingreview here 👉🏼 bit.ly/3Zq158V

We understand MPs’ decision to ban health professionals from raising assisted dying with under 18s. But families and palliative care services will still need guidance on holding conversations about this issue. Read our statement 👉 bit.ly/3FEH5sC

Extraordinary Children. Extraordinary Care. Demelza is here. This #ChildrensHospiceWeek we proudly stand with Together for Short Lives and children’s hospices across the UK to celebrate everything that makes children's hospices amazing.📣 #WeAreDemelza #ExtraordinaryCare

This #ChildrensHospiceWeek we’re celebrating the magical moments that happen at Helen & Douglas House and our Stay & Play days are always filled with smiles, laughter and togetherness. 🧡 👉 Read more in our latest blog post - hdh.org.uk/Stay-and-Play-…

It’s #ChildrensHospiceWeek, we’re proud to join Together for Short Lives & hospices across the UK in celebrating the care that families receive. With your support, we can be there for more children across Scotland. Find out more about Children’s Hospice Week 👇 togetherforshortlives.org.uk/get-involved/c…

Her Royal Highness The Princess of Wales The Prince and Princess of Wales has written a personal and heartfelt message to mark #ChildrensHospiceWeek. In it she says, thanks to our children’s hospices, families will never face the future alone: bit.ly/3TxEkwk Tŷ Hafan EACH

A massive thank you to Francesca & Darren, who took on an incredible 24-hour cycling challenge, ‘Spin for the Stars’, raising an incredible £4,000 for Together for Short Lives. 👉 Read more - hdh.org.uk/spin-for-the-s…

As #ChildrensHospiceWeek comes to a close, we’re thinking about what our care is really about: ensuring the best possible quality of life, and making every moment count for children and families. Here are some moments that reflect just that. 💫

EHCPs are vital for many seriously ill children to access education. But following several reports, we’re concerned new government plans could limit them. That’s why we’re proud to support Hannah and Disabled Children's Partnership’s fight to save EHCPs. 👉 bit.ly/PMEHCP

Thank you to Disabled Children's Partnership for organising this vital opportunity to highlight the barriers seriously ill children face in accessing joined-up education, health & social care. We look forward to working with Government to build a system that works for families.

🚨 New from Hospice UK: Too many seriously ill children in rural areas face extra barriers to palliative care—just because of where they live. We need urgent action to ensure support is there, when and where it’s needed. bit.ly/4l3vPp8

Seriously ill children may be denied end-of-life care without further funding for hospices, a charity has warned. Together for Short Lives said hospices are being forced to rely on donations and funds raised from charity shops to prop up services as it called on ministers to

For children like Archie, children’s hospices are a lifeline. But 89% in England say they’ll spend more than they bring in this year – just to stay open. Without more Government funding, essential services could be lost. Read our new report: bit.ly/3TaMlHq

For thousands of seriously ill children, children's hospices are a lifeline. But unless vital NHS funding is maintained beyond 2025/26, essential services will be at risk. Urgent action is needed to confirm this funding and increase it. Read more 👉 bit.ly/4l2lYj6

🚨 Our new report reveals huge variation in local NHS spending on children’s hospice care. This postcode lottery must end. The UK Government must hold ICBs and councils to account for how they commission children’s palliative care. Read more 👉 bit.ly/4l2lYj6

While we welcome the changes introduced to the Welfare Reform Bill, we're deeply concerned about its impact on families caring for seriously ill children, many of whom could see their benefits frozen. We urge MPs to seek further clarity and protections. bit.ly/4ezjLtl

There are many opportunities to improve children’s palliative care from the UK government’s new 10 Year Health Plan for England, but also many questions. Read our reaction here 👉🏼 bit.ly/44zQD0h