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‘A’ mountain is officially glowing. Happy Homecoming wildcats! 🌅❤️

“SV-ONE is the frontier,” said FON Patient/Parent Lead Tom Glenn during this morning’s Welcome & State of the Networks discussion at our Fall 2024 Learning Session, which also featured updates from NPC-QIC Physician Co-Lead David Brown and a welcome from Mayte Figueroa.

Fantastic session by Katie Salciccioli, MD, Sal Ginde, and Meg Didier on transition to #ACHD care at the NPC-QIC XXX SEX and FON learning session—many potential barriers but important discussions on how we address these barriers to ensure #CHD patients continue to receive #ACHD care

Standing room only at the “Parenting with #SingleVentricleHeartDisease ” session !! So many incredible and important perspectives — much work to do but glad these discussions are finally being had FON NPC-QIC XXX SEX

Looking forward to #Fontan data sharing at the centennial American Heart Association AHA Science conference in Chicago. Are you registered?

Working at a pediatric hospital certainly has its perks…..and potential distractions TCH Heart Center Texas Children's

642 attempts

CPET is essential for comprehensive care of patients w/ CHD, offering valuable prognostic insights & assisting in clinical decision-making across various congenital heart conditions, thereby significantly ⬆️patient management & outcomes. ✍🏼 Adam_Powell Dave White Barbara Cifra, MD 🫀🇮🇹🇨🇦

THAT JUST HAPPENED

Electric!!! #EMOY

Welfare check on Cyclone Larry #BTFD

THIS IS OUR STATE

Incredible to meet with patients and the teams supporting them in driving patient involvement in #ACHD research design through The Patient-Centered Outcomes Research Institute in TX, LA, and OK - excited to work together moving forward! Lindsay Alano, MA Joe Valente, BCPA Anushree Agarwal Valeria Duarte MD MPH TCH AdultCHD Program

Exciting news: We recently expanded our Active Living with Fontan Circulation Toolkit to include resources for adolescents and adults! Visit fontanoutcomesnetwork.org/resources to learn more! #Fontan #fontancirculation #heartwarrior

WE'RE HEADED TO OMAHA!!!!!

On July 1, we will officially transition to SV-ONE! We are excited to enter this next phase of our journey and continue striving to transform outcomes for all individuals with single ventricle heart disease. Connect with us on LinkedIn to follow along: linkedin.com/company/sv-one/