
Tracy Dixon-Salazar
@tracydixonsalaz
Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
ID: 1528566637
http://lgsfoundation.org 18-06-2013 18:52:25
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This bi-annual Conference pushes the conversation about research beyond only treating the symptom of seizures but also finding treatments that target the whole syndrome. Registration is by invite only. If you are interested in attending, email us at [email protected]



You’re not alone. 💜 If LGS is part of your world, join a virtual session created in collaboration with the LGS Foundation — a safe space for caregivers and families to feel supported. 🔗 iridiumce.com/lgs-patientcar… #LGSCommunity #CaregiversMatter #EpilepsySupport #LGSFoundation











The world can’t wait! #BIO2025 We couldn’t save our sweet #SavannahRaine from #LennoxGastautSyndrome but we will fight on for better treatments and cures. #RareDisease #Epilepsy #WhereIsSavannahRaineToday LGS Foundation


Excited to see our The Patient-Centered Outcomes Research Institute sponsored comparative effectiveness research on #epilepsy #LGS study protocol published Frontiers. Multicenter effort with awesome advocates LGS Foundation LGS Foundation Tracy Dixon-Salazar Anup Patel, M.D. & more! Open access link: frontiersin.org/journals/neuro…


📣 A limited number of scholarships are still available for LGS healthcare providers to participate in a unique opportunity to help shape the future of LGS care. Don’t miss out—email us at [email protected] by June 16 to learn more. 🔗 ow.ly/MS4H50W6lVU
