Tracy Dixon-Salazar (@tracydixonsalaz) 's Twitter Profile
Tracy Dixon-Salazar

@tracydixonsalaz

Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation

ID: 1528566637

linkhttp://lgsfoundation.org calendar_today18-06-2013 18:52:25

5,5K Tweet

2,2K Followers

935 Following

LGS Foundation (@lgs_foundation) 's Twitter Profile Photo

The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center for all! Safety is a constant concern for those with LGS. Children and adults with LGS have frequent seizures and are at high risk of injury. 👉 Learn more: lgsfoundation.org/seizure-safety

The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center for all! 

Safety is a constant concern for those with LGS. Children and adults with LGS have frequent seizures and are at high risk of injury.

👉 Learn more: lgsfoundation.org/seizure-safety
LGS Foundation (@lgs_foundation) 's Twitter Profile Photo

Pediatric neurologist Dr. Shafali Jeste will explain neurodevelopmental disorders: what they are, how they’re diagnosed, how they can overlap with epilepsy, and how the correct diagnosis can help unlock proper supports and services for your child. us02web.zoom.us/meeting/regist…

Pediatric neurologist Dr. Shafali Jeste will explain neurodevelopmental disorders: what they are, how they’re diagnosed, how they can overlap with epilepsy, and how the correct diagnosis can help unlock proper supports and services for your child.

us02web.zoom.us/meeting/regist…
LGS Foundation (@lgs_foundation) 's Twitter Profile Photo

This bi-annual Conference pushes the conversation about research beyond only treating the symptom of seizures but also finding treatments that target the whole syndrome. Registration is by invite only. If you are interested in attending, email us at [email protected]

This bi-annual Conference pushes the conversation about research beyond only treating the symptom of seizures but also finding treatments that target the whole syndrome.

Registration is by invite only. If you are interested in attending, email us at Research@LGSFoundation.org
LGS Foundation (@lgs_foundation) 's Twitter Profile Photo

"Nonseizure- and Seizure-Related Benefits of Cannabidiol Treatment in the Real World" highlights not just the reduction in seizures, but also improvements in cognition, communication, emotional well-being, and quality of life. 👉ow.ly/fntT50VXtHJ #LennoxGastautSyndrome

"Nonseizure- and Seizure-Related Benefits of Cannabidiol Treatment in the Real World" highlights not just the reduction in seizures, but also improvements in cognition, communication, emotional well-being, and quality of life.

👉ow.ly/fntT50VXtHJ

#LennoxGastautSyndrome
Iridium Continuing Education (@iridiumconted) 's Twitter Profile Photo

You’re not alone. 💜 If LGS is part of your world, join a virtual session created in collaboration with the LGS Foundation — a safe space for caregivers and families to feel supported. 🔗 iridiumce.com/lgs-patientcar… #LGSCommunity #CaregiversMatter #EpilepsySupport #LGSFoundation

You’re not alone. 💜

If LGS is part of your world, join a virtual session created in collaboration with the <a href="/LGS_Foundation/">LGS Foundation</a> — a safe space for caregivers and families to feel supported.

🔗 iridiumce.com/lgs-patientcar…

#LGSCommunity #CaregiversMatter #EpilepsySupport #LGSFoundation
LGS Foundation (@lgs_foundation) 's Twitter Profile Photo

Pediatric neurologist Dr. Shafali Jeste will explain neurodevelopmental disorders: what they are, how they’re diagnosed, how they can overlap with epilepsy, and how the correct diagnosis can help unlock proper supports and services for your child. ow.ly/ezyj50VZJHJ

Pediatric neurologist Dr. Shafali Jeste will explain neurodevelopmental disorders: what they are, how they’re diagnosed, how they can overlap with epilepsy, and how the correct diagnosis can help unlock proper supports and services for your child.

ow.ly/ezyj50VZJHJ
LGS Foundation (@lgs_foundation) 's Twitter Profile Photo

Our Epilepsy Surgery page offers comprehensive information on various epilepsy surgeries to help individuals and families understand their options. 👉 Learn more at ow.ly/sWja50W4Rk6 #LennoxGastautSydrome #Epilepsy #EpilepsySurgery

Our Epilepsy Surgery page offers comprehensive information on various epilepsy surgeries to help individuals and families understand their options. 

👉 Learn more at ow.ly/sWja50W4Rk6

#LennoxGastautSydrome #Epilepsy #EpilepsySurgery
CME Outfitters (@cmeoutfitters) 's Twitter Profile Photo

Caring for patients with hashtag#LennoxGastautSyndrome and hashtag#DEEs requires up-to-date knowledge and a team-based approach. In this CME Snack, Dr. Elizabeth Thiele and Bethany Thomas, DNP explore the latest clinical trial data and real-world insights, offering strategies for

LGS Foundation (@lgs_foundation) 's Twitter Profile Photo

Save the Date for the 10th International Family & Professional Conference! 📆 July 9-11, 2026 📍Orlando, FL This powerful event is designed to better understand the causes, treatments, and everyday challenges of living with #LennoxGastautSyndrome. 🔗 lgsfoundation.org/lgs-conference

Save the Date for the 10th International Family &amp; Professional Conference!

📆 July 9-11, 2026
📍Orlando, FL
 
This powerful event is designed to better understand the causes, treatments, and everyday challenges of living with #LennoxGastautSyndrome. 

đź”— lgsfoundation.org/lgs-conference
Biotechnology Innovation Organization (@iambiotech) 's Twitter Profile Photo

“I sense a lot of excitement for people coming here to Convention, that great sense of hope of what biotechnology is, and what we can provide.“ On behalf of BIO President and CEO John F Crowley, welcome to #BIO2025

Tracy Dixon-Salazar (@tracydixonsalaz) 's Twitter Profile Photo

The world can’t wait! #BIO2025 We couldn’t save our sweet #SavannahRaine from #LennoxGastautSyndrome but we will fight on for better treatments and cures. #RareDisease #Epilepsy #WhereIsSavannahRaineToday LGS Foundation

The world can’t wait! #BIO2025 We couldn’t save our sweet #SavannahRaine from #LennoxGastautSyndrome but we will fight on for better treatments and cures. #RareDisease  #Epilepsy #WhereIsSavannahRaineToday <a href="/LGS_Foundation/">LGS Foundation</a>
Sandi Lam (@sandi_lam) 's Twitter Profile Photo

Excited to see our The Patient-Centered Outcomes Research Institute sponsored comparative effectiveness research on #epilepsy #LGS study protocol published Frontiers. Multicenter effort with awesome advocates LGS Foundation LGS Foundation Tracy Dixon-Salazar Anup Patel, M.D. & more! Open access link: frontiersin.org/journals/neuro…

Excited to see our <a href="/PCORI/">The Patient-Centered Outcomes Research Institute</a> sponsored comparative effectiveness research on #epilepsy #LGS study protocol published <a href="/FrontiersIn/">Frontiers</a>. Multicenter effort with awesome advocates <a href="/LGS_Foundation/">LGS Foundation</a> <a href="/LGS_F/">LGS Foundation</a> <a href="/TracyDixonSalaz/">Tracy Dixon-Salazar</a>  <a href="/PedsEpilepsyDoc/">Anup Patel, M.D.</a> &amp; more! Open access link:
frontiersin.org/journals/neuro…
LGS Foundation (@lgs_foundation) 's Twitter Profile Photo

📣 A limited number of scholarships are still available for LGS healthcare providers to participate in a unique opportunity to help shape the future of LGS care. Don’t miss out—email us at [email protected] by June 16 to learn more. đź”— ow.ly/MS4H50W6lVU

📣 A limited number of scholarships are still available for LGS healthcare providers to participate in a unique opportunity to help shape the future of LGS care.

Don’t miss out—email us at Research@LGSFoundation.org by June 16 to learn more.

đź”— ow.ly/MS4H50W6lVU