Excellent Summit very informative

Priority #supermarket slots are going, #DeltaVariant on rampage, #Masks to become voluntary, yet #vaccine efficacy #VE for #transplant recipients unproven….Freedom Day for some but not the #cev and absolutely no #Government support #abandoned

PF Trust Trustee, Ron Flewett, will be on ITV Calendar around 6pm this evening discussing missed appointments during the pandemic and #IPF Let's support Ron and tune in this evening! 💙💜📺 #raisingawareness #pulmonaryfibrosis #ITV #patientsupport #IPF #COVID19

Tune in to see Ron and the Chair of the Taskforce, Alison Cook, talking about our latest press story, which you can read here: blf.org.uk/taskforce/pres…

Take a look at the moving segment featured in ITV News Calendar yesterday, featuring Ron Flewett and Alison Cook, Chair of the Taskforce, talking about the impact of delays to lung disease diagnosis and care: itv.com/news/calendar/…

Kicking off our 7th EU-PFF General Assembly, reporting to our members, advisers and supporters what the European Pulmonary Fibrosis Federation has done in the past year, what we will work on in 2021 and 2022 in patient advocacy and research. We'll also elect new board members!

Fantastic meeting we’ll do e everyone.

Ron, one of our Trustees, has been speaking to ITV Calendar sharing his concerns for clinically extremely vulnerable people who have been shielding during the pandemic and worries how this will impact them with 'freedom day' today 💜💙🙌buff.ly/3Bi9ugZ

Thank you PatientMpower for everything you do for IPF.

“In the next 5 years we will see a dramatic change in how we treat patients with Pulmonary Fibrosis.” - Helen Parfrey, PF Summit 2021 #PFSUMMIT21 #PF #PFmonth #BreathingLife #PFAwarenessMonth #pulmonaryfibrosis

Oxygen can make #breathing and exercise easier, prevent or lessen complications from low #blood oxygen levels, reduce blood pressure in the right side of your #heart, and improve your sleep and sense of well-being. #PF #PFmonth #BreathingLife #PFAwarenessMonth #pulmonaryfibrosis

Our board and secretariat raising awareness of #IPF and challenges that still need to be addressed! Will you join us? Share a photo of you with our dedicated pin, our paper-cut #lung or share your video using #PF #PFmonth #BreathingLife #PFAwarenessMonth #pulmonaryfibrosis

Despite IPF being such a serious disease, there are still ways to enjoy life: "A chronic disease is an adjustment of life – not the end of it. There will have to be adjustments along the pathway." (Liam Galvin) #PFSUMMIT21 #PF #PFmonth #BreathingLife #PFAwarenessMonth #qol

You can still join our free #yoga classes during #IPF Awareness Week (18-25 Sept): Connect your body, #breath and mind. Sign up here: eu-ipff.org/awareness #PF #PFmonth #BreathingLife #PFAwarenessMonth #pulmonaryfibrosis #qol

There are many ways to keep fit and improve your quality of life – like Ron on his electric bike: „It has enabled me to carry on doing what I love doing.” (Ron Flewett) #PF #PFmonth #BreathingLife #PFAwarenessMonth #qol

Very good podcast on Pulmonary Fibrosis symptoms, very proud to be part of it

“Reversing PF should be our goal. But it’s not just about finding better treatments, it’s about finding ways to identify patients with PF earlier before there is a lot of scar tissue and fibrosis.” (Toby Maher) #PFSummit21 #PF #PFmonth #BreathingLife #pulmonaryfibrosis

To clinicians, carers, researchers and others: Join us and help raise awareness of #PF! “Awareness campaigns play an important role in getting patients to see a general practitioner and avoid delayed diagnosis.“ (Marlies Wijsenbeek) #PFmonth #BreathingLife #pulmonaryfibrosis

Great ride with Steve Jones

Big thanks to all the attendees at our DigitalHealth.London showcase today. In particular we'd like to thank Kay Boycott our chair, Our fantastic clinician speakers Laura Lowndes & Mel Wickremasinghe and our inspirational patient speaker Ron Flewett #DigitalHealthLondonTurns5