UKALK+ (@ukalk1) 's Twitter Profile
UKALK+

@ukalk1

ALK+ lung cancer patient support & advocacy charity #ifyouhavelungsyoucangetlungcancer

ID: 1022944060326207491

linkhttp://www.alkpositive.org.uk calendar_today27-07-2018 20:37:24

1,1K Tweet

1,1K Followers

641 Following

Ruth Strauss Foundation (@ruthstraussfdn) 's Twitter Profile Photo

A practical guide that supports parents with incurable cancer, to have conversations with their children. Are you the friend of a parent with incurable cancer? It can feel really difficult to approach a conversation about your friend’s diagnosis. Signposting them to RSF could

A practical guide that supports parents with incurable cancer, to have conversations with their children.

Are you the friend of a parent with incurable cancer?

It can feel really difficult to approach a conversation about your friend’s diagnosis.

Signposting them to RSF could
UKALK+ (@ukalk1) 's Twitter Profile Photo

Liquid biopsy (ctDNA) testing is now nationally available on the NHS for everyone diagnosed with lung cancer in England. ā€œWe’ve heard from many in our community who had both types of test and got their liquid biopsy results back much faster,ā€ says Debra Montague, Chair of ALK

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People with ALK+ are more likely to develop brain metastases than in other types of lung cancer. 1 in 4 already have brain mets at diagnosis. And even on treatment, another 34% are likely to develop them within 3 years. Regular MRI scans can make a real difference. But there’s

People with ALK+ are more likely to develop brain metastases than in other types of lung cancer.

1 in 4 already have brain mets at diagnosis. And even on treatment, another 34% are likely to develop them within 3 years.

Regular MRI scans can make a real difference. But there’s
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Our latest publication on Head MRI’s is now available in hard copy. Developed with advice from several leading ALK experts. Please email [email protected] if you would like a copy. #lungcancer #ALK #Brainmets #MRI BTOG Lung Cancer Nursing UK EGFR Positive Lung Cancer UK ROS1DERS UK Charity Oncogene Cancer Research

Our latest publication on Head MRI’s is now available in hard copy. 
Developed with advice from several leading ALK experts. 
Please email Hello@alkpositive.org.uk if you would like a copy.
#lungcancer #ALK #Brainmets #MRI 
<a href="/BTOGORG/">BTOG</a> <a href="/LCN_UK/">Lung Cancer Nursing UK</a> <a href="/EgfrUk/">EGFR Positive Lung Cancer UK</a> <a href="/ros1dersuk/">ROS1DERS UK Charity</a> <a href="/OncogeneCancer/">Oncogene Cancer Research</a>
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Debra Montague, Chair of ALK Positive Lung Cancer UK, said: ā€œThe high repayment rate under the VPAG could limit the availability of ALK-positive treatments, as pharma may be discouraged from investing in these therapies due to the financial risks associated with exceeding NHS

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Are you a lung cancer nurse specialist in the UK? We have a limited number of subsidised places available at our 2025 ALK+ Lung Cancer National Conference. It’s a brilliant chance to hear directly from leading ALK+ experts, meet people living with ALK-positive lung cancer, and

Are you a lung cancer nurse specialist in the UK?

We have a limited number of subsidised places available at our 2025 ALK+ Lung Cancer National Conference.

It’s a brilliant chance to hear directly from leading ALK+ experts, meet people living with ALK-positive lung cancer, and
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We would like to thank over 500 people for following our public fb page. Are you one of them? If not, please take a look as it’s such an easy way to keep up to date on the charities’s activities šŸ˜‰ facebook.com/alkpositivelcuk Lung Cancer Nursing UK UKLCC GLCC Scottish Thoracic Society

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We encourage our patients with families to contact Ruth Strauss Foundation for support in talking with their children. This is an excellent practical guide that supports parents to have conversations with their children. Please see this free resource for families… šŸ‘‰ Family Support

We encourage our patients with families to contact <a href="/RuthStraussFdn/">Ruth Strauss Foundation</a> for support in talking with their children.

This is an excellent practical guide that supports parents to have conversations with their children.

Please see this free resource for families… 
šŸ‘‰ Family Support
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Thank you for highlighting this important message. Too many people suffer in silence unnecessarily because they don’t understand what palliative care is. Should it be renamed Supportive Care? Would that mean fewer patients suffering? Or do we need to do a better job of educating

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We have spent many hrs with the DVLA and our recent publication on Driving with brain mets is the result of all those discussions. If you didn’t get the opportunity to pick up a copy at our stand, please either download a copy at alkpositive.org.uk/_files/ugd/341… or feel free to email us

We have spent many hrs with the DVLA and our recent publication on Driving with brain mets is the result of all those discussions.
If you didn’t get the opportunity to pick up a copy at our stand, please either download a copy at alkpositive.org.uk/_files/ugd/341…
or feel free to email us
Ruth Strauss Foundation (@ruthstraussfdn) 's Twitter Profile Photo

šŸƒšŸ½ā€ā™€ļø Last chance to enter the @TCSLondonMarathon 2026! We’ve got places on #TeamRed. By raising awareness and funds you will: ā™„ļø Support families facing incurable cancer šŸ”¬ Fund research into Non-Smoking Lung Cancer (NSLC) šŸ‘‰ Apply now: ruthstraussfoundation.com/london-maratho… ā° Closes Tues 1

EGFR Positive Lung Cancer UK (@egfruk) 's Twitter Profile Photo

šŸ†• Nature study on #lungcancer in never-smokers challenges long-held assumptions. āœ… Air pollution linked to key mutations āœ… EGFR most common in East Asia āŒ Secondhand smoke not a major factor - minimal genomic impact 68% of our EGFR+ UK members (2024 data) are never-smokers

šŸ†• Nature study on #lungcancer in never-smokers challenges long-held assumptions.

āœ… Air pollution linked to key mutations
āœ… EGFR most common in East Asia
āŒ Secondhand smoke not a major factor - minimal genomic impact

68% of our EGFR+ UK members (2024 data) are never-smokers
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Is this the strongest evidence yet that air pollution causes lung cancer? A landmark Nature study just linked cancer-driving DNA mutations in never-smokers to air pollution exposure. You can see it in the tumour DNA. This should be informing how we think about risk & impacting

Is this the strongest evidence yet that air pollution causes lung cancer?

A landmark Nature study just linked cancer-driving DNA mutations in never-smokers to air pollution exposure.

You can see it in the tumour DNA.
This should be informing how we think about risk &amp; impacting
UKALK+ (@ukalk1) 's Twitter Profile Photo

7 years ago, this simple note started ALK+ UK’s journey! šŸ’™ In 2018, with no UK support groups for ALK+ lung cancer patients, Debra Montague our Chair, reached out to fellow UK patients on a US forum. There were 18 attendees at the meet-up and we were incredibly fortunate to

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šŸ”ˆ Just passed 150 sign-ups for our 2025 ALK+ lung cancer national conference! It’s filling up fast but we still have room for more. šŸ¤ Connect with others living with ALK+ (you don’t have to be a member of our support group to come) šŸØ Fully funded (hotel + travel for you and

šŸ”ˆ Just passed 150 sign-ups for our 2025 ALK+ lung cancer national conference!
It’s filling up fast but we still have room for more. 

šŸ¤ Connect with others living with ALK+ (you don’t have to be a member of our support group to come)

šŸØ Fully funded (hotel + travel for you and
UKALK+ (@ukalk1) 's Twitter Profile Photo

Are you a parent living with lung cancer? We are inviting parents of young people aged 11–24, along with their children, to take part in an online survey about wellbeing and support needs for families affected by lung cancer. Your insights will help improve and shape the support

Are you a parent living with lung cancer?
We are inviting parents of young people aged 11–24, along with their children, to take part in an online survey about wellbeing and support needs for families affected by lung cancer.
Your insights will help improve and shape the support