INGID @primaryimmuneuk UKPIPS Great! Managing time spent at hospital helps PID people get on with life

"Patients help companies grow a passion for disease, not just for science". Read our #ODWC #pharmaintegrates blog ow.ly/USh4o

UKPIPS had a lovely day filming with Baxalta on Monday! They are such a fab team! 😃 #spark #patientsmatter #MD&Me

It's #CarersRightsDay. Carers UK are ensuring carers get the support they're entitled to carersuk.org/news-and-campa…

Patient Solidarity Day is on 5 December PatientSolidarityDay IAPO. More info: ow.ly/UBai0 #patient #RareDisease

This Mandate is the document which the Government tells NHS England the minimum standards it expects it to reach... fb.me/3C2GEfolJ

RT CDC: Our new rights based toolkit is here so young people know what support they should be getting bit.ly/1l9cqnW #YRYF

Help create the first children's Rare Diseases Centre in the UK Bham Children's Hosp 💙 bit.ly/1jd9Lcs #raredisease

Two weeks left to apply to be a member of our management committee: raredisease.org.uk/managementcomm…

UKPIPS Genetic Alliance UK Llandovery College @accentureukjobs I've finally updated my blog after 2 years +. rebeccacjg.blogspot.com😃

Congratulations to Emily Carne for winning the RCN "Nurse of the Year". Raising the voice of immunology nursing at national level 👏

You have until Monday 7th December to nominate yourself for our management committee: bit.ly/1jfBk3X #raredisease

Something for you to participate in fb.me/75Sl0NhPA

UKPIPS is so grateful to our Medical Advisory Panel for the advice and support that they give us. It is a... fb.me/4jqPxpXlx

A True message shown on slide Via RareDiseaseFdn #raredisease x.com/rarediseasefdn…

"Following our earlier announcements on Facebook and via the Newsletter, UKPIPS Christmas Cards are now available... fb.me/4cxKAPdYI

The UK strategy for #raredisease commits to improve education and awareness of rare diseases across the healthcare professions

We've responded to the consultation on the NHS mandate for 2016/17. You can read this here: ow.ly/V6Oyq

UKPIPS llandoverycollege.com/old-llandoveri… Interview with the inspiring Rebecca Griffiths! A huge supporter and fundraiser of UKPIPS #RaiseAwareness