'Medics dismissed my long Covid as anxiety' This is why we have written to Wes Streeting & Ashley Dalton MP to ask that doctors and health care professionals receive training on Long Covid. Please support our petition, share it with your friends and family today. 🔗 👇

🎯#Blog Something for the weekend! We have ONE final timely request to help us turn our calls for action into direct requests for Long Covid & M.E: PLEASE WRITE TO YOUR MP. longcovidkids.org/post/will-you-… #LCandME #WriteToThem #FundThePlan #FundOurFuture #Community

Kenny alerts his client, Kate, to oncoming PoTS collapses come rain, shine or sand. Ken had a brilliant day on the beach (check out the sand and drool evidence) but when he detected a change in Kate's odour, he knew he needed to let her know and wait with her until she was safe.

Please take a minute to sign this petition✍️ 'Postural Tachycardia Syndrome: fund training and facilities' petition.parliament.uk/petitions/7068… We need power in numbers to stand a chance of having this debated in Parliament🙏 Please share far & wide! #PoTSParliamentaryCampaign #PoTS

Tashi's client, Sophie, captured the moment Tashi went from sniffing all the lovely smells outside to detecting a change in Sophie's odour meaning an oncoming PoTS episode. There is no doubt when that super snout kicks in is there? Tashi came straight inside to Sophie, alerted

1/2 This survey will help us gather information to campaign for better healthcare services! It is open to all patients with diagnosed or suspected #PoTS or their parents/carers. (If applicable please complete separate surveys for each person). #PoTS #MECFS #LongCovid #EDS

This is the face our client, Fay, came round to after fainting due to her condition, #POTS, whilst out book shopping. Olive had warned Fay that it was about to happen so she could lie down safely and a bit more privately, avoiding injury, hospitalisation and embarrassment. Fay

We will be closing this survey at the end of the day on Thursday 17th April, please take 5 minutes to complete. If you live in England: surveymonkey.com/r/MQ923VG Scotland: surveymonkey.com/r/5RMSBS7 Wales: surveymonkey.com/r/5RFH3YQ Northern Ireland: surveymonkey.com/r/58ZFCRS Thank you!

1/5 PoTS UK (an affiliate of STARS) has launched a survey to gather updated insight into healthcare access for people with diagnosed or suspected PoTS. #PoTS #PosturalOrthostaticTachycardiaSyndrome #PoTSUK

If you have PoTs or believe that you have it, please fill in this survey and share this post Thank you!

PoTS UK will be submitting a response on behalf of our community so would love to hear your views about how/if you manage work alongside managing #PoTS & the impact working from home/hybrid working has. Please complete our survey: surveymonkey.com/r/T3DFY6Y Deadline: Monday 21 April

A reminder that today is your last chance to complete PoTS UK 's survey. It only takes 10 minutes of your time and could lead to better healthcare for #PoTS patients. Please take a look at the details below and share this post to help reach more people. Thank you 💙

Today is the final day to complete this very short survey in order for us to gather information to campaign for better healthcare services for #PoTS! 🙏🏻 #LongCovid #MECFS #EDS ME Association Long Covid Support 🌍 Long Covid SOS @longcovidsos.bsky.social Long Covid Kids / [email protected] Ehlers-Danlos Support UK