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Our first #FridayFundraiser today is Karen and Richard Vennard! The pair supported the TSA as granddaughter Elsie has TSC. They maximised their fundraising, combining the Cardiff Half Marathon with two bake sales! They raised a fantastic £1,655! Brill work Karen and Richard! 📷

Our #FridayFundraiser thanks continue with Lisa Moore-Ramdin! Lisa was set for the Great South Run but it was cancelled due to bad weather. So, Lisa and her friends braved the elements with a 18k Forest Trail run, raising a fantastic £1,208! Thank you Lisa and the entire group!

At our Annual General Meeting 2024 we were delighted to have Dr Chris Kingswood update us on the latest in the TSC research. The session covers what's been achieved over the last 12 months, plus what's to come in the immediate future for TSC research. youtube.com/watch?v=5WvHz8…

1 week before #BigGiveChristmasChallenge2024! Donate 3 - 10 Dec via The Big Give and the amount is doubled at no extra cost to you! We're raising £9,000 for our support services, like Big Day - our annual event to bring people affected by TSC together. donate.biggive.org/campaign/a0569…

Today's #FridayFundraiser is the Rotary Club in Grantham! Mary McKinlay, Rotary Club President, chose the TSA as their charity of the year. They held their golf presentation evening recently and presented a cheque for £1,000!💚

The Big Give Christmas Challenge is TOMORROW! Donations through the Big Give Christmas Challenge are DOUBLED! We’re raising £9,000 for support and information services for everyone with TSC. At 12pm tomorrow donate and every £1 you give will be worth £2! bit.ly/4iqW08i

It's here! The Big Give Christmas Challenge 2024 is LIVE! Every donation you give to us through the Big Give is DOUBLED until 10 December, at no extra cost to you! Donate here: donate.biggive.org/campaign/a0569… Remember: One donation, DOUBLE the impact!

Your response to the Big Give Christmas Challenge 2024 has been amazing! But, to hit our target we need to keep it up! Until 10 Dec, all donations to us through The Big Give are worth DOUBLE! Our target is £9,000 to help run TSA support services next year: donate.biggive.org/campaign/a0569…

📢 LAST CALL FOR CHRISTMAS CARDS! 📢 Order your TSA cards and other goodies by 10 Dec to get them before the day itself. We've got a lovely selection this year, from traditional to modern, plus other things like magic snow and reindeer food! ☃️ bit.ly/34skNUi

Today's #FridayFundraisers are the brilliant Tom Richardson and Catriona McFeely! Both took on Stoptober to raise funds for TSA. Tom raised an amazing £599 and Catriona a fantastic £615! Both have loved ones with TSC, motivating them to fundraise. Thank you Tom and Catriona! 👏👏

Delighted to be holding a Living With Genetic Conditions session with Health Sciences students. Huge thanks to our amazing expert Consultant Geneticist Dr Annie Procter & #RareDisease Advocate Marie James 🏴󠁧󠁢󠁷󠁬󠁳󠁿 sharing her family's experiences of tuberous sclerosis Genetic Alliance UK Tuberous Sclerosis Association

We had a brilliant time attending the mTOR Pathway Diseases node patient organisation workshop last week. Great to hear exciting updates from the #Research team and a great opportunity to connect with other patient orgs Joseph Bateman Charlotte Tye