United Mitochondrial Disease Foundation (@umdf) 's Twitter Profile
United Mitochondrial Disease Foundation

@umdf

UMDF powers the research, education, & support that is advancing treatments for patients and families affected by mitochondrial disorders.

ID: 32511260

linkhttp://www.umdf.org calendar_today17-04-2009 18:28:14

4,4K Tweet

3,3K Followers

90 Following

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Save the Date for the 8th Cousins For A Cure Event to benefit the Logan Aronson Research Fund in Honor of Sydney Breslow -- November 20, 2025 in Vorhees, NJ! More details to come soon.

Save the Date for the 8th Cousins For A Cure Event to benefit the Logan Aronson Research Fund in Honor of Sydney Breslow -- November 20, 2025 in Vorhees, NJ! More details to come soon.
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At #MitoMed, we were able to catch up with Diego Santos, a researcher from Children's Hospital, but also a member of our Team Activate marathon team for the Chicago Marathon. How can you help? Go the extra mile for #mito and donate to Team Activate at umdf.org/activate

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UMDF is proud to announce our 2025 Grant Cycle researchers -- collaboratively funded this year with our partner, Mito Foundation, in Australia. Additionally, our partner, The Lily Foundation in the UK, has helped fund the 2025 accelerators award! umdfconference.org/umdf-mito-foun…

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Announcing $100,000 in #mitoresearch grant funding for Nan-Kai Wang, MD, PHD of Columbia University for his project "Unraveling the Effects of SSBP1 Mutation on Vision." #vision #mitochondrialdisease #research

Announcing $100,000 in #mitoresearch grant funding for Nan-Kai Wang, MD, PHD of Columbia University for his project "Unraveling the Effects of SSBP1 Mutation on Vision." #vision #mitochondrialdisease #research
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Announcing $100,000 in #mitoresearch grant funding for Norma Frizzell, PHD of the University of South Carolina for her project "Anaplerotic odd-chain fatty acid therapy for the treatment of Leigh Syndrome." #leighsyndrome #mitochondrialdisease #research

Announcing $100,000 in #mitoresearch grant funding for Norma Frizzell, PHD of the University of South Carolina for her project "Anaplerotic odd-chain fatty acid therapy for the treatment of Leigh Syndrome." #leighsyndrome #mitochondrialdisease #research
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Announcing $100,000 in #mitoresearch grant funding for Christian Bergamini, PHD of the University of Bologna for his project "Elucidating Mitochondrial Impairment in Troyer Syndrome." #mitochondrialdysfunction #research

Announcing $100,000 in #mitoresearch grant funding for Christian Bergamini, PHD of the University of Bologna for his project "Elucidating Mitochondrial Impairment in Troyer Syndrome." #mitochondrialdysfunction #research
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Announcing $100,000 in #mitoresearch grant funding for Caterina Garone, MD, PHD of the University of Bologna for her project "NanoMDS – Nanomedicines nucleotides or RNA therapeutics delivery for treating mitochondrial DNA depletion syndromes." #mitochondrialdisease #research

Announcing $100,000 in #mitoresearch grant funding for <a href="/caterina_garone/">Caterina Garone</a>, MD, PHD of the University of Bologna for her project "NanoMDS – Nanomedicines nucleotides or RNA therapeutics delivery for treating mitochondrial DNA depletion syndromes." #mitochondrialdisease #research
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Announcing $32,500 in #ClinicalTrial Readiness grant funding for Florence Van Tienen, PHD of Maastricht University for her project "Optimizing cryopreservation of muscle stem cell medicinal product for direct clinical administration in Mitochondrial Myopathy patients."

Announcing $32,500 in #ClinicalTrial Readiness grant funding for Florence Van Tienen, PHD of Maastricht University for her project "Optimizing cryopreservation of muscle stem cell medicinal product for direct clinical administration in Mitochondrial Myopathy patients."
United Mitochondrial Disease Foundation (@umdf) 's Twitter Profile Photo

Announcing $50,000 in #ClinicalTrial Readiness grant funding for Dmitrii Smirnov, MS of Jellyfish Bio, Inc. for "Validating Digital Functional Assessments in Mitochondrial Diseases: A Multinational Smartphone and Wearable Validation Study." #mitochondrialdisease Dmitrii (Dima) Smirnov

Announcing $50,000 in #ClinicalTrial Readiness grant funding for Dmitrii Smirnov, MS of Jellyfish Bio, Inc. for "Validating Digital Functional Assessments in Mitochondrial Diseases: A Multinational Smartphone and Wearable Validation Study."  #mitochondrialdisease <a href="/SmirnovDDD/">Dmitrii (Dima) Smirnov</a>
United Mitochondrial Disease Foundation (@umdf) 's Twitter Profile Photo

Announcing $50,000 in collaborative #mitoresearch funding from The Lily Foundation, Mito Foundation, and UMDF for the 2025 accelerators award to Anastasia Dimitriou, PhD of Northumbria University at Newcastle for her project "Monoclonal antibody therapy for Leigh syndrome." #leigh

Announcing $50,000 in collaborative #mitoresearch funding from <a href="/4Lilyfoundation/">The Lily Foundation</a>, Mito Foundation, and UMDF for the 2025 accelerators award to Anastasia Dimitriou, PhD of Northumbria University at Newcastle for her project "Monoclonal antibody therapy for Leigh syndrome." #leigh
Liz Kennerley #LongCOVID #RareDisease (@lifeaccrdingliz) 's Twitter Profile Photo

#mitochondrial disease #Patient, #Caregiver, #MedicalResearchers and #healthcareproviders community, how do you use #Medicaid? (United Mitochondrial Disease Foundation Science & Alliance - UMDF MitoAction) #MedicaidMatters #Senate #HealthcareAccess #chronicillness

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July is Disability Pride Month. Share your #mito stories this month, spread awareness, and advocate for #accessibility and #inclusion for our community with #mitochondrialdisease. Tag us in on your #DisabilityPride posts -- @umdf

July is Disability Pride Month. Share your #mito stories this month, spread awareness, and advocate for #accessibility and #inclusion for our community with #mitochondrialdisease. Tag us in on your #DisabilityPride posts -- @umdf
National Organization for Rare Disorders (NORD) (@rarediseases) 's Twitter Profile Photo

Today, the U.S. #Senate passed legislation that, if signed into law, would impose dramatic and harmful barriers to #Medicaid, threatening access to quality, affordable health care for the #RareDisease patients who need it most. The fight isn’t over, and we urgently need your

Today, the U.S. #Senate passed legislation that, if signed into law, would impose dramatic and harmful barriers to #Medicaid, threatening access to quality, affordable health care for the #RareDisease patients who need it most. The fight isn’t over, and we urgently need your
United Mitochondrial Disease Foundation (@umdf) 's Twitter Profile Photo

Read the July edition of UMDF Connect, a newsletter connecting the #mito community. Read it now: umdf.org/jul25-umdf-new… Subscribe to our monthly e-newsletter here: umdf.org/newsletter-sig…

Read the July edition of UMDF Connect, a newsletter connecting the #mito community. 
Read it now: umdf.org/jul25-umdf-new…  
Subscribe to our monthly e-newsletter here: umdf.org/newsletter-sig…
United Mitochondrial Disease Foundation (@umdf) 's Twitter Profile Photo

This year, the UMDF and the Scientific and Medical Advisory Board are honored to present, in memoriam, for her incredible dedication to the fields of mitochondrial medicine and science the 2025 Vanguard Award to Dr. Lee-Jun Wong. umdf.org/the-vanguard-a…

This year, the UMDF and the Scientific and Medical Advisory Board are honored to present, in memoriam, for her incredible dedication to the fields of mitochondrial medicine and science the 2025 Vanguard Award to Dr. Lee-Jun Wong. umdf.org/the-vanguard-a…
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UMDF is finalizing a new no-cost genetic testing program! For those with suspected #mitochondrialdisease, sign up at umdf.org/genetictesting to be the first to know when the new program launches this summer!

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We're taking every step, roll, and stroll together toward treatments and cures for #mitochondrialdisease. Join us and #energizethefight: energyforlifewalk.org

United Mitochondrial Disease Foundation (@umdf) 's Twitter Profile Photo

🎬🎥EXCITING ANNOUNCEMENT -- A Viewpoint Dennis Quaid piece highlighting #mitochondrialdisease and UMDF will be debuting on public television stations nationwide starting this month! A thank you to the Melissa Kieffer Family Impact Fund. Watch here: umdf.org/viewpoint-psa/

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Andrea and John Kieffer open up about their support of the Viewpoint Dennis Quaid public awareness spotlight on #mitochondrialdisease and UMDF, coming to public television channels starting this month. 🎬 Head to our landing page for the 6-minute feature: umdf.org/viewpoint-psa🔗