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A new webinar series from UsherKids Australia Australia focuses on the latest research and clinical guidelines in Usher syndrome. Emily Shepard and Hollie Feller discuss collaborating with Orthoptics Australia on the project. insightnews.com.au/bringing-usher…

We are one week away from USH2021! Thank you ProQR Therapeutics for being a Silver Sponsor. ProQR focuses their drug development on inherited retinal diseases. Learn more at: proqr.com Register today at usher-syndrome.org/connections-co… #USH2021 #UsherSyndrome #ProQR

Dave and Nic will run a half marathon to support UsherKids. Receiving an Usher diagnosis for their young child can be crushing for families. Help us support them. Donate via our website here: usherkidsaustralia.com/family-members…

We are delighted to share our story about a collaborative research project between UsherKids Australia and University of Melbourne Melbourne Disability Institute Karyn Galvin to address the needs of families with young children with Usher syndrome across Australia.

A mother's moving speech about her sons’ blinding genetic condition has prompted a prominent Perth family to donate $750,000 for a stem cell robot at the Lions Eye Institute. Lions Eye Institute UsherKids Australia insightnews.com.au/mothers-plight…

Join us on 14th Aug at 10:30am (AEST) as we provide a research update on currently projects in Aus to treat RP and Usher syndrome, followed by a live Q&A at 12:30pm with Fleur O’Hare, Dr Anai Gonzalez-Cordero, Professor Alex Hewitt Register online usherkidsaustralia.com

Wishing Katie Kelly OAM PLY (she/her) 🌈 and Jonathan Goerlach the very best in the #paratriathlon this Saturday 28th August #ushersyndrome fb.watch/7CLluW5Scf/ via facebookwatch

To celebrate Global #UsherSyndromeAwarenessDay, Ava's Voice, Usher Kids UK and UsherKids Australia are hosting a virtual parent/carer meet and greet session this Friday 17 September at 10:00am (AEST). buff.ly/395B8Rz #USHDAY #USHDAY2021 #UsherSyndromeAwarenessDay #UsherSyndrome

Sept 18th is International Usher Syndrome Awareness Day. Did you know that >400,000 people across the world are living with Usher syndrome? Usher syndrome is a genetic condition characterised by hearing loss & progressive vision loss from #RetinitisPigmentosa #USHDAY UsherKids Australia

Tomorrow is Global #UsherSyndrome Awareness Day! So proud to work with our partners USH Society Usher Syndrome Coalition Ushersyndroom Usher Kids UK UsherKids Australia Cure Usher @UsherIreland #USHDay21 #USHDay

#melbourneweather #Melbournelockdown #mordialloc

What a day! Thrilled to have been selected for the Sir John Reid Community Service Award. Many thanks to RotaryMelbourne for the recognition.

Bentleigh Cricket Club are having a great season on the field, particularly in the CSBW. But off the field, they are working hard behind the scenes to create an inclusive and welcoming environment for all!👇👇👇 southernbayside.com.au/news/bentleigh…

Wonderful to join GSNV to celebrate #RareDiseaseDay2022 Parliament of Victoria

Organisations supporting families with children with vision impairment have formed a new Paediatric Vision Impairment Alliance focused on advocacy at the policy level, writes Emily Shepard, co-founder and Director of UsherKids Australia Australia. insightnews.com.au/paediatric-vis…

Hear more about our clinical trials in Usher syndrome from Sophie and Fleur. I also want to give a huge shout out to the excellent work of UsherKids Australia on this #USHDAY2022 - thank you for all you do for people with Usher syndrome in Australia!

Emily Shepard, co-founder of UsherKids Australia, mum of peashoot Louis, choir member and cricketer chats to Mandy and Kate from @too_peas toopeasinapodcast.com.au/emily-talks-ab…

This is shocking news - cutting the number of visiting teachers by two-thirds is going to have drastic impacts on kids who have extra challenges for learning. Thank you for your advocacy ⁦UsherKids Australia⁩ theage.com.au/national/victo…

Parents of students with disabilities in Victoria are furious over proposed cuts to specialist teachers in the state, saying the move could have serious effects on vulnerable children. Hear from Emily Shepard, co-founder of UsherKids Australia. abc.net.au/radionational/…

Thank you for meeting us & listening Minister for Education Victorian Department of Education Relieved visiting teachers can continue, but is there a better model of support for #DHH & #BLV kids? Many needs still unmet. Great advocacy UsherKids Australia theage.com.au/national/victo…