The VEDS Movement (@vedsmovement) 's Twitter Profile
The VEDS Movement

@vedsmovement

Through research, education, and support, The VEDS Movement, a division of The @MarfanFdn, charges forward to improve the outcomes for those living with VEDS.

ID: 1196477582994264064

linkhttp://TheVEDSMovement.org calendar_today18-11-2019 17:17:52

4,4K Tweet

643 Followers

556 Following

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Did you know there are special considerations you have to take into an account as a pulmonologist when your patient is living with VEDS? Find out what you need to know: bit.ly/3mcmUbm #VEDS #MedTwitter #Pulmonology

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Do you find yourself missing someone who is no longer here? Do you wonder if it will ever get better? Talk about your feelings at tonight's Coping with Grief and Loss: bit.ly/3HW7nnc #VEDS

Do you find yourself missing someone who is no longer here? Do you wonder if it will ever get better? Talk about your feelings at tonight's Coping with Grief and Loss: bit.ly/3HW7nnc #VEDS
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"As scary as this disorder is, I know I have a great support team in my husband and my doctors at the VA and know we are on the right track to living the best life I possibly can!" Find out how Michelle got here: bit.ly/3XnA9CJ #VEDS #VEDSAwareness

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When is it time to seek professional help in order to improve mental health and well-being? We've put together a resource that may assist you and those you love in knowing key warning signs. bit.ly/4dPen4u #mentalhealthawarenessmonth #VEDS

When is it time to seek professional help in order to improve mental health and well-being? We've put together a resource that may assist you and those you love in knowing key warning signs. bit.ly/4dPen4u #mentalhealthawarenessmonth #VEDS
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Don't miss your last chance to be a part of #REDS4VEDS. Send us a pic of you in red either in our replies or to [email protected], and we'll share them this Friday to support our friends at @ajschallenge. #VEDS

Don't miss your last chance to be a part of #REDS4VEDS. Send us a pic of you in red either in our replies or to brandcomms@marfan.org, and we'll share them this Friday to support our friends at @ajschallenge. #VEDS
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Get to know what a VEDS Grand Rounds at your hospital could look like: thevedsmovement.org/resources-and-… #VEDS #MedTwitter

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Team DEFY is the #2 fundraising team at the Philadelphia Walk for Victory! Let's get them to #1 by joining their team or making a donation: give.marfan.org/team/569567 #VEDS #MyWalkSavesLives

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"I wish I had known how just how one case, maybe mine, could impact others, one ripple of change; that advocacy can change lives, that education is key, that precautions can be taken." Read Bridgette's story: thevedsmovement.org/2020/09/03/the… #VEDS #VEDSAwareness

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The VEDS Movement Director, Ryan, is supporting #REDS4VEDS. Share your support in comments! Thank you to our friends @AJSchallenge #VEDS

The VEDS Movement Director, Ryan, is supporting #REDS4VEDS. Share your support in comments! Thank you to our friends @AJSchallenge #VEDS
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Do you need new strategies to help you manage your anxiety and well-being? Don't miss out on our next webinar: marfan.org/calendar/manag… #VEDS

Do you need new strategies to help you manage your anxiety and well-being? Don't miss out on our next webinar: marfan.org/calendar/manag… #VEDS
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Is your Emergency Department prepared for a VEDS emergency? thevedsmovement.org/resources-and-… #VEDS #MedTwitter #EmergencyMedicine

The VEDS Movement (@vedsmovement) 's Twitter Profile Photo

Want to connect with people who understand and can help? Try out a support group. #VEDS #thevedsmovement thevedsmovement.org/resources-and-…

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Want to learn more about the relationship between genetics and a VEDS diagnosis? Sign up for Global Virtual Conference 2024 and attend this session with Dr. Morris and @3rscardioGC Register at bit.ly/3EPmQEO #VEDS #genetics

Want to learn more about the relationship between genetics and a VEDS diagnosis? Sign up for Global Virtual Conference 2024 and attend this session with Dr. Morris and @3rscardioGC Register at bit.ly/3EPmQEO #VEDS #genetics
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"It makes us part of something." Marta of Lisbon, Portugal -- who lives with #Loeysdietzsyndrome -- shares how our 2024 Global Virtual Conference is helping her and her family access expert knowledge and community. Register now: bit.ly/3EPmQEO bit.ly/4b065UD