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Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan | The Guardian theguardian.com/commentisfree/…

- ME er ikke psykisk. Det er ikke hysteri, og det er ikke indbildning. Det er en fysisk sygdom, dokumenteret af forskere verden over – og alligevel nægtes patienterne den hjælp, som ethvert anstændigt samfund burde kunne levere, mener skribenten nordjyske.dk/nyheder/laeser…

Earn 12 CME credits at the International #MECFS Conference 2025! 📅 When? May 12–13 📍 Where? Free online livestream 🗣️ Language: English Register for free 👉 events.mecfs-research.org/en/events/conf… #IntMECFSConference2025

Over 150,000 more people in England have ME than previously thought, study finds #MECFS theguardian.com/society/2025/a…

STAT: Studies zoom in on clues to why Lyme disease persists and which antibiotic to prescribe Proal said it’s possible the antigens are being actively produced by bacteria lingering in hidden reservoirs, as is the case w/the SARS-CoV-2 virus in long Covid statnews.com/2025/04/23/lym…

Ja, nok er nok! Oslo Chronic Fatigue Network promoverer den “funktionelle model”, som er tilbagevist for ME/Long-covid. Hvor er dygtige danske #forskere, der vil tage opgøret? (Hjernens plasticitet er interessant, men en anden boldgade). #dkforsk #dkvid forskersonen.no/covid19-debatt…

DEBAT: Patienter med ME og long covid trænger ikke til håb baseret på ønsketænkning. Vi trænger til håb baseret på biomedicinsk forskning 🤓 #dkforsk #dkvid forskersonen.no/covid19-debatt…

1) Good news: the European call on high-burden, under-researched conditions will likely be renewed in the 2025 work program of Horizon Europe. #MECFS is prominently mentioned as an example.

Der må forskes 🤓 #dkforsk #forskning thetimes.com/article/cc8883…

David Tuller's video interview with Andrew Ewing Andrew Ewing & David Joffe David Joffe MB BS (Hons), PhD, FRACP 🇦🇺 on Just-Published “Global Expert Consensus” on Long Covid, plus extract from associated press release virology.ws/2025/05/02/tri… #LongCovid #PASC

🧵 THREAD: Skeletal Muscle Alterations in Long COVID and ME/CFS 1/ 💡 Study Overview We studied whether skeletal muscle changes in Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients are due to inactivity or distinct pathological processes.

Again for those in the back: 👏🏼 PEM 👏🏼 is 👏🏼 NOT 👏🏼 deconditioning Symptoms associated with effort expenditure in #LongCOVID, #MECFS and other energy limiting illnesses are physiological, not “preferential” Thanks to Rob Wüst for this incredible work. medrxiv.org/content/10.110…

Preprint Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest #MEartikler medrxiv.org/content/10.110…

Marit Stafseth on the systematical use of flawed studies and unproven hypotheses to support psychological interventions for #longcovid and related conditions: “Is it perhaps time to say that enough is enough?” Yes, it is! #MECFS sciencenorway.no/covid19-medici…

📊 Just updated for 2025: Our ME factsheet now includes the latest global prevalence data. Clear. Credible. Shareable. Perfect for raising awareness this #WorldMEDay. 🔗 worldmealliance.org/what-is-me/#fa… #MECFS #LongCovid #MEAwareness #MillionsMissing #DisabilitySOS

Exercise Pathophysiology in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID: Commonalities Detected by Invasive Cardiopulmonary Exercise Testing #meartikler atsjournals.org/doi/abs/10.116…

Clip from The Morning Show Australia “I would wake up and count down the seconds until I could sleep again because being unconscious was the only relief.” Lily Schubert shares her journey living with ME, a chronic illness that left her bed-bound for 6 yrs.

The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. bit.ly/432YdzF