Can VADs be used in muscular dystrophy patients? ACTION’s newest work implies so, although more work on defining suitable patients and measuring quality of life are needed next steps. #PedsHF Deipanjan Nandi, MD 🔗: jhltonline.org/article/S1053-…

Today is #RareDiseaseDay, a day to give voice to 300 million people living with rare diseases and their families, through education and advocacy. Will you commit to sharing your story and raising your voice? Join PPMD as a Virtual Advocate this March: parentprojectmd.org/advocacyconfer…

The PRIMaCY study shows how exercise testing can predict heart failure and sudden death in young HCM patients Seema Mital Jennifer Conway The Hospital for Sick Children (SickKids) #AHAJournals ahajrnls.org/3Dxo5qM

🔥topic right now! #Fontan referral time for #OHTx. ACTION recently addressed this. Big question here: Is problem referral timing or acceptance/risk assessment. Def need for improvement as 23/63pts referred died! Joey Spinner Kurt Schumacher Angie Lorts pubmed.ncbi.nlm.nih.gov/36868954/

Great video. I particularly like what happens in the lungs.

Doctors at a major US insurance company deny tens of thousands of claims a month without even looking at patients’ files. “We literally click & submit,” a former Cigna doctor told @ProPublica & The Capitol Forum. “It takes all of 10 seconds to do 50 at a time.” The inside story 🧵

Cigna uses an automated system that allows “medical directors” (doctors employed by Cigna Healthcare) to deny a claim in 1.2 seconds without opening the patient’s file. Please read this, share it, and help us (metaphorically) burn these companies to the ground.

Med student: short white coat Resident: long white coat Attending:

I want to say this. Pay for your news. Support public radio. Subscribe to the NYT and others. Journalism matters. It’s been bartered and discredited by those who stand to benefit. But everyone has the power to change that.

“HOMESCHOOL HER.” Republicans have gone from offering thoughts and prayers to saying unfettered access to guns is now likely to kill your children at school so you should probably just keep them inside at all times.

AUTISM AWARENESS WEEK 💚 Ireland & Wigan's James McClean revealed on IG that he has autism. McClean was screened after seeing similar traits in his daughter Willow-Ivy, who also has autism. He says he revealed his diagnosis to show her it shouldn't hold her back from her dreams.

We report 5 patients with Costello Syndrome who demonstrated regression or improvement in ventricular hypertrophy in response to a disease-targeted therapy with the MEK inhibitor, trametinib: jacc.org/doi/full/10.10…, JACC Journals, Elle Geddes MD⚕️

From JACC Journals jacc.org/doi/10.1016/j.… Awesome to be a part of a group of cardiologists and geneticists working together to get novel therapies out as quickly as possible! Hoping to expand our understanding of rasopathy related HCM with ACTION

Ahaha yeah wow. I just posted a link to my latest newsletter and it has zero likes or retweets, I can't retweet it, I can't like other peoples posts containing similar links. The S**stack iron curtain is DOWN. The days of tweeting for my literal supper are apparently over.

New therapy with #MEK inhibitor, #trametinib, regresses ventricular hypertrophy in Costello syndrome, a rare multisystemic genetic disorder, with no serious side-effects. See it here in #JACC: bit.ly/3Ui2GK8 #cvHCM Cardiomyopathy #CardioTwitter

Count down to ASAIO Peds Day See you in San Fran in 8 days! #asaio #pedsvad ASAIO ACTION PHTSociety International Pediatric Transplant Association

We can't believe it either. 🤯 Alvaro Barreal