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Only a few more weeks to register for our #InheritedRetinalDisease Patient & Family Engagement Day. #IRDPatientDay Not sure whether you or a loved one have an IRD? Our video explainer in Auslan & English might help. youtube.com/watch?v=MMK0Vz…

Have you registered for the upcoming #IRDPatientDay? 📅23 March, from 9am 📍Ultimo, Sydney Only a few spots remaining to hear from experts in the field & our lived experience panel incl. Australian Paralympian Jenna Jones and chaired by Nas Campanella. events.unsw.edu.au/event/inherite…

Finally, the first Vision loss Patient engagement day is here! Patients, Carer’s, Clinicians and Scientist coming together to understand the TOP 10 Priorities for #InheritedRetinalDisease #IRDPatientDay

Opening the first session for #IRDPatientDay 2024 was Prof John Grigg. Introducing #InheritedRetinalDisease highlighting the challenges in identifying signs and symptoms of IRD and using an interdisciplinary approach in management of IRD

Dr Alan Ma discussed diagnosis and management of #InheritedRetinalDisease highlighting the importance of early genetic testing and collaboration with geneticist, ophthalmologist and councillors #IRDPatientDay.

Learning about Advanced Therapies for #InheritedRetinalDisease. A/Prof Lauren Ayton from University of Melbourne gave a great summary about the possible therapy options for different severities of IRD’s. #IRDPatientDay

Thank you to all the Exhibitors participating in #IRDPatientDay 2024 Retina Australia, Guide Dogs Australia UsherKids Australia, Paediatric Vision Impairment Alliance, CMRI, Halo, Save Sight Institute and Luminesce Alliance

Did you know we can model the retina in a dish? A/Prof Anai Gonzaez-Cordero uses stem cells and organoids to identify novel treatments for #InheritedRetinalDisease CMRI @SCOF_SCM #IRDPatientDay

Currently, there’s only 1 TGA approved treatment option for #InheritedRetinalDisease Leber Congental Amaurosis. Prof Robyn Jamieson shared insights on the huge amount of work to get this Gene Therapy approved in Australia. #IRDPatientDay CMRI

Truly inspiring, Santiago Velazquez living with vision impairment and breaking barriers. He’s a The Churchill Fellowship, founder and CEO of EyeSyght and Hailo #IRDPatientDay

During lunch time we had Jennifer extracting DNA from strawberries and Stem Cell Medicine Group and Organoid Facility presenting posters. A great opportunity to meet patients their families and health professionals to learn more about #InheritedRetinalDisease #IRDPatientDay CMRI

A great way to end #IRDPatientDay 2024 with a panel discussion hosted by Nas Campanella. An amazing group of people from all walks of life sharing their experiences #InheritedRetinalDisease Merideth Prain, Jenna Jones, Junko and Arato Katsuda and Ceecee Britten-Jones

With limited 💵 & time, its critical that research is prioritised that is most meaningful to those impacted by it. This is why we are inviting individuals w/ an Inherited Retinal Disease to tell us what matters most to them. Take part now! unsw.au1.qualtrics.com/jfe/form/SV_bv…

From over 200 submissions to our first survey, we have collated a list of 40 research questions about Inherited Retinal Diseases. Of these, which ones are most important to you?👁️ Participate in our short, anonymous survey here: unsw.au1.qualtrics.com/jfe/form/SV_bv…

Unable to attend the 2024 Inherited Retinal Disease Patient & Family Engagement Day? You can now access the presentation recordings online: youtube.com/playlist?list=… Save Sight Institute Retina Australia CMRI Able Australia Vision 2020 Australia RANZCO Australasian Society of Genetic Counsellors (ASGC) Deafblind Australia

Just over 2 wks left to tell us what research into Inherited Retinal Diseases matter most to you. From a list of 40 research questions, tell us the 10 that you consider a priority to answer. Complete online or DM to be sent a paper version. unsw.au1.qualtrics.com/jfe/form/SV_bv…

Drive the future of IRD research! 2 wks left to submit your EOI to be a part of finalising the research priorities for inherited retinal diseases. unsw.au1.qualtrics.com/jfe/form/SV_6l… RANZCO Save Sight Institute Human Genetics Society of Australasia UsherKids Australia Retina Australia Australasian Society of Genetic Counsellors (ASGC) Vision 2020 Australia