VoiceForIBD (@voiceforibd) 's Twitter Profile
VoiceForIBD

@voiceforibd

IBD Patient Advocate 💜Hispanic/Latina🇵🇪🇺🇸 #CrohnsDisease & #UlcerativeColitis 🦠 Committed To Finding A Cure🔬🧬 Foundation Nat’l Board of Trustees👩🏻‍💼

ID: 1596239931281534976

linkhttps://instagram.com/voiceforibd calendar_today25-11-2022 20:30:44

868 Tweet

367 Followers

791 Following

Crohn's & Colitis Foundation (@crohnscolitisfn) 's Twitter Profile Photo

Next week, Congress will decide: Protect IBD patients or cut health coverage for millions of Americans. Take 30 seconds today to tell your Representative to stand up for those living with Crohn’s disease and ulcerative colitis. Take action with us today: bit.ly/3EJAVXL

Next week, Congress will decide: Protect IBD patients or cut health coverage for millions of Americans. Take 30 seconds today to tell your Representative to stand up for those living with Crohn’s disease and ulcerative colitis. Take action with us today: bit.ly/3EJAVXL
VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

The Crohn's & Colitis Foundation Take Steps #OC walk is 1 week away! If you’ve ever donated before OR thought about it…THIS is the moment. Your support fuels critical #research #patient resources & #hope for people living with #IBD 🔗 takesteps.crohnscolitisfoundation.org/participant/Ro…

VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

Download the Crohn's & Colitis Foundation exclusive Global Gut Guide in honor of #WorldIBDDay 🌍 Access gut-friendly recipes, including one of MY Peruvian recipes, travel tips & tools to help you navigate food, culture & life with #IBD #LetsGoThere Download 🔗 bit.ly/3YMUrJJ

VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

The countdown is on…. The Crohn's & Colitis Foundation Take Steps #OC walk is THIS wknd in #Irvine Your support fuels critical #IBD #research #education & #patient #resources Every 💵 matters. Will you help me hit my goal? 👇🏼 🔗 takesteps.crohnscolitisfoundation.org/participant/Ro… #IBD #Crohns #UC #IBDCures

The countdown is on….

The <a href="/CrohnsColitisFn/">Crohn's & Colitis Foundation</a> Take Steps #OC walk is THIS wknd in #Irvine Your support fuels critical #IBD #research  #education &amp; #patient #resources Every 💵 matters. 

Will you help me hit my goal?  👇🏼 

🔗 takesteps.crohnscolitisfoundation.org/participant/Ro…

#IBD #Crohns #UC #IBDCures
VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

We’re 48 hours away from Crohn's & Colitis Foundation Take Steps #OC !Over 3+ million patients will be affected by federal funding cuts - #IBD #research #Medicaid THIS is why I’m so committed to fundraising. Your support helps🙏🏼 Every dollar matters💵 🔗 takesteps.crohnscolitisfoundation.org/participant/Ro…

VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

This #WorldIBDDay, I’m proud to partner w/the Crohn's & Colitis Foundation to break the silence around life w/ #IBD & celebrate the ways we can still savor it. Download the Foundation’s Global Gut Guide for #recipes #travel tips & more Download the Global Gut Guide 🔗bit.ly/3YMUrJJ

VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

What’s it like to attend one of the world’s biggest #GI conferences as a patient? I attended #DDW2025 to deepen the work I do in #IBD #patient #advocacy & I went because the #science🔬 conversations🗣️ & collaborations🤝🏼 happening there directly impact my life w/ #Crohns 👀

VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

What’s shaping the future of #IBD care? At Digestive Disease Week , I sat in sessions that didn’t just talk about new drugs💊 💉, but rather how clinicians are making smarter, more tailored decisions using the tools ⚒️ & data📊 we already have 👏🏼 Learn more👇🏼 #InsideDDW #DDW2025

VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

At Digestive Disease Week #mentalhealth in #IBD wasn’t just mentioned - it mattered🧠 For years #anxiety #depression & #trauma have shaped how we live but the conversation is changing! In ☝🏼 of the most valuable sessions, GI leaders emphasized: mental health is inseparable from IBD care 🙌🏼

VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

As someone living with #IBD I’m grateful for this recognition that often goes unnoticed👇🏼 It reflects what so many of us quietly live every day. We don’t always realize our lived experience has lessons to offer…. Thank you for seeing that 🙏🏼 #IBDVisible #Crohns #UC

VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

#Fatigue #Pain #EIMs Even when inflammation is controlled, #IBD patients are still suffering & too often, these symptoms are overlooked. At Digestive Disease Week , I was in the room as experts called for clinical care that treats the whole patient #DDW25 Watch/learn more👇🏼

VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

Couldn’t agree more👇🏼 I JUST shared about #fatigue in #IBD from one of the valuable sessions at Digestive Disease Week Such an important conversation to continue having for patients 🙏🏼

VoiceForIBD (@voiceforibd) 's Twitter Profile Photo

Highlights from a #DDW2025 session on #IBD #Monitoring & evolving from reactive to proactive care👇🏼 🔑 Continuous monitoring 🔑 #IUS gives real time info 🔑 #Wearables detect #flares through heart rate, activity & sweat 🔑 AI can help ⬇️CT scans & ⬆️response tracking