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Recently announced - Funding of $170,000 will be provided to Rare Voices Australia through the Govt's Public Health and Chronic Disease Program to help people battling rare conditions. bit.ly/2FpVCIE

So important to consider siblings. @Pandora_P_ from Canteen Australia presenting on issues facing AYA siblings of cancer patients and their high levels of unmet needs and distress #AYACancercongress

The study & career disruption caused by a cancer diagnosis in AYAs can trigger a change in career direction- great study by Dr. Emily Drake #AYACancercongress be great to chat more about this Nick Hulbert-Williams Gill Hubbard

Cc: Anne Kirchhoff Huntsman Cancer Institute for so generously allowing me to present their work Global AYA Cancer Congress on financial toxicity in AYAs, with a marked uptick in perceived burden in patients 26 years and older (compared to 15-25) #ayacsm #ayacancercongress

‘I know how to bake a cake but i refer back to a recipe’ young people need information they can refer back to, the best way to deliver needs further exploration. #paper #online #app Louise Soanes 💙 Global AYA Cancer Congress #AYACancercongress

And they are why. Amazing young people. Over 400 dedicated professionals. Best conference ever. Thank you Global AYA Cancer Congress Teenage Cancer Trust Stephen Sutton Congress Grants The Christie NHS 👏👍❤️

Remarkable few days #AYACancerCongress and now at my AirBnB for the next few days to find the owners have entirely stocked the fridge...and freezer...and pantry and told me to help myself because they know how important the work of Canteen Australia is....they’re right x

Collaborative effort from POCOG members 'Evaluation of an online communication skills training programme for oncology nurses working with patients from minority backgrounds' #CALD CNSA Afaf Girgis AM (she/her) @SanchiaAranda & former chair Prof. David Kissane link.springer.com/article/10.100…

Online vignette-based #communicationskills training 4 #oncology #nurses working with 👥 from minority backgrounds found 2 ⬆️ self-reported practice & confidence in communicating with 👥 w/ limited English proficiency rdcu.be/bcL5m #CALD #psyonc Afaf Girgis AM (she/her) Cancer Institute NSW

"The vision for #healthcare settings must .. change." thelancet.com/journals/lance… by Diana Anderson, MD NeuroArchitecture and colleagues cliniciansfordesign.com The Lancet

It is used to identify issues, exchange information and engage in collaborative problem solving, with a view to reducing duplication and improving the clinical trials environment. ausbiotech.org/news/clinical-…

ALP commits to a further 4 years of YCS funding if elected - A brilliant announcement from @billshortenmp & Catherine King MP securing the future of this vital service for #AYACancer patients

With thanks/apologies to Vinay Prasad MD MPH and his take-no-prisoners Plenary Session Podcast 🎙️ podcast calling out various acts of conference malfeasance, #ASCO19 bingo has hereby begun …

Interesting dialogue at #asco19 about the discordance btwn patients being offered clinical trials vs. patients’ MEMORY of being offered I would not discount what I call the “tinnitus of terror”; especially at the first visit with their oncologist the patient may only hear CANCER

Bravo to ASCO organizing cmte for setting up the #asco19 exhibit hall with Patient Advocacy quite literally front & center Sends a wonderful message totally in keeping the patient-centric theme of the meeting 👏

My colleagues University of Sydney want to interview healthcare professionals #HCP, from any country, working with AYAs aged 15-25 for a phone interview about their experiences with #AYA #health literacy #decisionmaking. The study link is: redcap.sydney.edu.au/surveys/?s=YWM…. Pls share

Here we go! The time for my annual ASCO meeting highlights video with the ecancer team. Please watch for the important studies and lessons to learn from the #ASCO19 meeting. ecancer.org/video/7934/hig…

Trial Participants younger than representative population, disparities greater in industry sponsored trails.#ASC019

.Biden Cancer pairs up with @IBMWatsonHealth, Syapse and others to improve access to #oncology #clinicaltrial information, by Erin Dietsche medcitynews.com/2019/06/biden-…

Caregivers are often told to focus on self care as best weapon against burnout. This is not true. Best weapon against burnout is transformed #HealthSystem that values us, doesn’t treat us & our work as disposable & welcomes #caregivers as partners & co-designers of that system.