WAPO (@wapo_org) 's Twitter Profile
WAPO

@wapo_org

WAPʘ is a non-profit organization created in order to unite the international pituitary patient community

ID: 4285127776

linkhttp://wapo.org calendar_today26-11-2015 12:02:57

894 Tweet

459 Followers

399 Following

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New WAPO Blogs & Vlogs out now! 📢 Dr. Sandra Aleksic explains how #aging affects #hormone levels, what this means for people with #pituitarydisorders & how to stay healthier longer. Watch the Vlog (in EN & ES): youtu.be/vwtBHPkWYRc Read the Blog: wapo.org/library/

New WAPO Blogs & Vlogs out now! 📢
Dr. Sandra Aleksic explains how #aging affects #hormone levels, what this means for people with #pituitarydisorders & how to stay healthier longer. 
Watch the Vlog (in EN & ES): 
youtu.be/vwtBHPkWYRc
Read the Blog: wapo.org/library/
touchENDOCRINOLOGY (@touchendocrine) 's Twitter Profile Photo

🌍 WAPO launches Blogs & Vlogs 2025 A global spotlight on pituitary health—real stories, shared challenges, and stronger awareness for rare endocrine conditions. 🔗 touchendocrinology.com/insight/wapo-l… WAPO #Hormone #PituitaryDisorders #HormoneHealth #PituitaryAwareness #RareDiseases

🌍 WAPO launches Blogs & Vlogs 2025

A global spotlight on pituitary health—real stories, shared challenges, and stronger awareness for rare endocrine conditions.

🔗 touchendocrinology.com/insight/wapo-l…

<a href="/WAPO_org/">WAPO</a>

#Hormone #PituitaryDisorders #HormoneHealth #PituitaryAwareness #RareDiseases
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The WAPO Board are pleased to announce the appointment of Dr. Cihan Atila and Dr. Noa Tal to the WAPO Medical Advisory Board. Their expertise and dedication to advancing patient care will be invaluable as we continue our mission. read more via link ⤵️ wapo.org/medical-adviso…

The WAPO Board are pleased to announce the appointment of Dr. Cihan Atila and Dr. Noa Tal to the WAPO Medical Advisory Board. Their expertise and dedication to advancing patient care will be invaluable as we continue our mission. read more via link ⤵️

wapo.org/medical-adviso…
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📢 Help shape research on Cushing’s disease! Are you living with Cushing’s, a caregiver, or a patient advocate in 🇫🇷 France, 🇩🇪 Germany, or 🇮🇹 Italy? Share your experience. 📝 French: surveymonkey.com/r/CushingFrench 📝 German: surveymonkey.com/r/CushingGerman 📝 Italian: surveymonkey.com/r/CushingItali…

📢 Help shape research on Cushing’s disease!

Are you living with Cushing’s, a caregiver, or a patient advocate in 🇫🇷 France, 🇩🇪 Germany, or 🇮🇹 Italy? Share your experience.

📝 French: surveymonkey.com/r/CushingFrench
📝 German: surveymonkey.com/r/CushingGerman
📝 Italian: surveymonkey.com/r/CushingItali…
WAPO (@wapo_org) 's Twitter Profile Photo

📢 A historic win for the rare disease & pituitary community! On May 24, the #WHA78 adopted the #Resolution4Rare — a major step toward global recognition, equity & care for 300M+ people with rare diseases. WAPO stands ready to support its implementation. 🌍💪 #RareDiseases

📢 A historic win for the rare disease &amp; pituitary community! On May 24, the #WHA78 adopted the #Resolution4Rare — a major step toward global recognition, equity &amp; care for 300M+ people with rare diseases. WAPO stands ready to support its implementation. 🌍💪 #RareDiseases
WAPO (@wapo_org) 's Twitter Profile Photo

🚨 BLOGS & VLOGS 2025 is live! 🎥📝 Catch the latest from WAPO, including: ✅ Employment & Adrenal Disorders ✅ Acromegaly in Youth ✅ Hormones & Aging 📺 Watch + read: wapo.org/blogs/ 📍 YouTube: youtube.com/playlist?list=… #PituitaryAwareness #WAPO #ChronicIllnessSupport

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🎥 Missed the ISE #AdrenalInsufficiency webinar? Watch it now for FREE on the ISE Global Education Hub! 👨‍⚕️ Expert speakers from 🇸🇪 🇬🇧 🇳🇱 🧬 Topics: APS, adrenal genetics & patient perspectives 👥 400+ attendees joined live! 💻 watch: bit.ly/4nlSAGa #Endocrinology

🎥 Missed the ISE
#AdrenalInsufficiency webinar? Watch it now for FREE on the ISE Global Education Hub!

👨‍⚕️ Expert speakers from 🇸🇪 🇬🇧 🇳🇱
🧬 Topics: APS, adrenal genetics &amp; patient perspectives
👥 400+ attendees joined live!

💻 watch: bit.ly/4nlSAGa

#Endocrinology
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European Society of Endocrinology (ESE) @ESE ADRENAL PATIENT FORUM 2025. Living with Adrenocortical Carcinoma (ACC): Care, Support, & What’s Ahead. Saturday 4 October 2025 10:00 - 13:00 CEST Online - Register to attend ⤵️ ese-hormones.org/adrenalpatient…

European Society of Endocrinology (ESE) @ESE
ADRENAL PATIENT FORUM 2025.

Living with Adrenocortical Carcinoma (ACC): Care, Support, &amp; What’s Ahead.

Saturday 4 October 2025
10:00 - 13:00 CEST
Online - Register to attend ⤵️

ese-hormones.org/adrenalpatient…
WAPO (@wapo_org) 's Twitter Profile Photo

📢 The ESE has released updated Clinical Practice Guidelines for managing aggressive pituitary tumours and carcinomas. Essential reading for endocrinologists & neuro-oncologists. 🔗 Read more: ese-hormones.org/publications/d… #Endocrinology #Pituitary #ESEguidelines

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📢 Have a prolactinoma? Your voice matters! 💙 The University of Basel is running the PROMISE Survey to learn from patients treated with meds or surgery. 🕐 10 mins 🌍 EN, DE, ES, IT 💻 Phone, tablet, computer 👉 Take part: redcap.dkfbasel.ch/surveys/?s=LFL… Every response helps.

📢 Have a prolactinoma? Your voice matters! 💙
The University of Basel is running the PROMISE Survey to learn from patients treated with meds or surgery.

🕐 10 mins
🌍 EN, DE, ES, IT
💻 Phone, tablet, computer

👉 Take part: redcap.dkfbasel.ch/surveys/?s=LFL…

Every response helps.
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Do you understand how your health data shapes care and research for rare diseases? 🎓 NORD’s FREE, 90-minute course, "From Records to Research," covers EHRs, patient-generated data, research use, and privacy. Start learning now: bit.ly/3ULGnOa

Do you understand how your health data shapes care and research for rare diseases?

🎓 NORD’s FREE, 90-minute course, "From Records to Research," covers EHRs, patient-generated data, research use, and privacy. Start learning now: bit.ly/3ULGnOa
WAPO (@wapo_org) 's Twitter Profile Photo

🔜 Coming Sept 4: a new edition of WAPO Blogs & Vlogs! We sat down with Dr. Diana Isaacs, PharmD, BC-ADM, CDCES to talk about medication shortages—how they affect people with endocrine conditions, how care teams respond, and what we can ALL do to protect access to life-sustaining meds. 💊 #Medication

🔜 Coming Sept 4: a new edition of WAPO Blogs &amp; Vlogs! We sat down with Dr. <a href="/DianaMIsaacs/">Diana Isaacs, PharmD, BC-ADM, CDCES</a> to talk about medication shortages—how they affect people with endocrine conditions, how care teams respond, and what we can ALL do to protect access to life-sustaining meds. 💊
#Medication
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Catch the latest edition of WAPO's #Blogs & #Vlogs: out now! Dr. Diana Isaacs, PharmD, BC-ADM, CDCES, from Cleveland Clinic is discussing #medication unavailability & its impacts Watch here: wapo.org/library/2025-v…  read here: wapo.org/2025-blog-4-th…  #MedicationShortage #PituitaryHealth

Catch the latest edition of WAPO's #Blogs &amp; #Vlogs: out now! Dr. <a href="/DianaMIsaacs/">Diana Isaacs, PharmD, BC-ADM, CDCES</a>, from <a href="/ClevelandClinic/">Cleveland Clinic</a> is discussing #medication unavailability &amp; its impacts
Watch here: wapo.org/library/2025-v… 
read here: wapo.org/2025-blog-4-th… 
#MedicationShortage #PituitaryHealth
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🌍 October is Pituitary Awareness Month! WAPO invites you to Walk with WAPO 🚶‍♀️—a series highlighting 4 rare pituitary conditions with medical insights + real patient voices: 🟠 AVP Deficiency 🔵 Cushing’s 🟣 Adrenal Insufficiency 🟢 Acromegaly 💙 Join us to raise awareness

🌍 October is Pituitary Awareness Month!

WAPO invites you to Walk with WAPO 🚶‍♀️—a series highlighting 4 rare pituitary conditions with medical insights + real patient voices:

🟠 AVP Deficiency
🔵 Cushing’s
🟣 Adrenal Insufficiency
🟢 Acromegaly

💙 Join us to raise awareness
WAPO (@wapo_org) 's Twitter Profile Photo

🌍 October is Pituitary Awareness Month! Join us as we Walk with WAPO 🚶‍♀️ each week to share stories and raise awareness about rare pituitary diseases. 💙💚 Stay tuned — together we can shine a light on Pituitary disease Learn more: wapo.org/walk-with-wapo… #PituitaryAwareness

🌍 October is Pituitary Awareness Month!

Join us as we Walk with WAPO 🚶‍♀️ each week to share stories and raise awareness about rare pituitary diseases. 💙💚

Stay tuned — together we can shine a light on Pituitary disease

Learn more: wapo.org/walk-with-wapo…

#PituitaryAwareness
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🌎 October is Pituitary Awareness Month. We will informative slides weekly as we Walk with WAPO for Pituitary Awareness Month to spotlight rare Pituitary diseases. #pituitaryawarenessmonth #pituitary #AVP-D #Cushings #AdrenalDeficiency #Acromegaly

🌎 October is Pituitary Awareness Month. 

We will informative slides weekly as we Walk with WAPO for Pituitary Awareness Month to spotlight rare Pituitary diseases.

#pituitaryawarenessmonth
#pituitary
#AVP-D
#Cushings
#AdrenalDeficiency
#Acromegaly
WAPO (@wapo_org) 's Twitter Profile Photo

🌍 October is Pituitary Awareness Month! This week we’re walking with WAPO to shine a light on AVP Deficiency (AVP-D) — a rare pituitary disorder once known as central diabetes insipidus. 👉 Learn more + see the full poster here: wapo.org/awareness-for-… #PituitaryAwareness

🌍 October is Pituitary Awareness Month! 

This week we’re walking with WAPO to shine a light on AVP Deficiency (AVP-D) — a rare pituitary disorder once known as central diabetes insipidus.

👉 Learn more + see the full poster here: wapo.org/awareness-for-…

#PituitaryAwareness
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🚶‍♀️ Camina con WAPO 📍 Octubre: Mes de concienciación sobre la hipófisis. Un mes para visibilizar las enfermedades hipofisarias poco comunes, reducir tiempos de diagnóstico y mejorar tratamientos. 🔎 Hoy: deficiencia de vasopresina 💧 Sed extrema 🚻 Micción frecuente 😴 Fatiga

🚶‍♀️ Camina con WAPO
📍 Octubre: Mes de concienciación sobre la hipófisis.

Un mes para visibilizar las enfermedades hipofisarias poco comunes, reducir tiempos de diagnóstico y mejorar tratamientos.

🔎 Hoy: deficiencia de vasopresina
💧 Sed extrema
🚻 Micción frecuente
😴 Fatiga
WAPO (@wapo_org) 's Twitter Profile Photo

October is #PituitaryAwarenessMonth! 💜 Join WAPO as we “Walk with WAPO” to raise awareness for 4 pituitary disorders — starting with Arginine Vasopressin (AVP) Deficiency, formerly known as central diabetes insipidus. Learn more ➡️ [wapo.org/awareness-for-…] #AVPDeficiency

October is #PituitaryAwarenessMonth! 💜
Join <a href="/WAPO_org/">WAPO</a> as we “Walk with WAPO” to raise awareness for 4 pituitary disorders — starting with Arginine Vasopressin (AVP) Deficiency, formerly known as central diabetes insipidus.
Learn more ➡️ [wapo.org/awareness-for-…]
 #AVPDeficiency
WAPO (@wapo_org) 's Twitter Profile Photo

Pituitary Awareness Month continues! This week, walk with WAPO as we shine a light on Cushing’s Disease. Cushing’s is caused by too much cortisol, the body’s stress hormone. It can be from a pituitary tumor (Cushing’s disease) or adrenal tumor (Cushing’s syndrome). #Cushing

Pituitary Awareness Month continues! This week, walk with WAPO as we shine a light on Cushing’s Disease. Cushing’s is caused by too much cortisol, the body’s stress hormone.
It can be from a pituitary tumor (Cushing’s disease) or adrenal tumor (Cushing’s syndrome).

 #Cushing