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Laser-focused on safe treatment solutions and unmet medical needs for NF1 patients, today Healx announced they have been granted Orphan Drug Designation by the FDA for an AI-discovered NF1 treatment - a significant milestone for Healx + the NF1 community! businessweekly.co.uk/news/biomedtec…

The deadline is TOMORROW! Have you submitted your abstract for #NFYIF23? Submit here: ce.ceconcepts.com/NFYIF23 Children's Tumor Fdn

Celebrating a new academic year together and our four faculty members who were promoted Harvard Medical School this summer. Congratulations to our new Associate Professors, Justin Jordan and Michael Parsons, and Assistant Professors, Albert Kim and Vanessa Merker!

Congratulations to our collaborator Dr Richa Saxena on her new position!

Get your clubs ready for a weekend of cocktails and golfing! The greens await, and it's almost time to tee off! #RegisterToday #GreatJacksbyWeekend #CureNFwithJack #EndNF #CureNF

Jack sent an email out today to many of his friends and supporters. He knew he did not have everyone's email address so he asked to post an update here too. #ENDNF #GreatJacksby curenfwithjack.com/2023/10/12/you…

We're partnering with Walker Lab at MGH. They're using a combination of genetic, molecular and biochemical approaches to improve our understanding of NF1 and identify therapeutic targets. #EndNF #CureNF #CureNFwithJack

Srirupa Bhattacharyya, PhD of MassGeneral News presents Preclinical Evaluation of the Third-generation, Bi-steric mTORC1-selective Inhibitor RMC-6272 in NF2-deficient Models. #makenfvisible #endnf #MedEd #MedTwitter #MedX #NFYIF

HBI Connectome Spotlight: Joanna Christodoulou "I lead the Brain, Education, and Mind (BEAM) Lab, conducting research on the brain and behavior links underlying reading development, difficulty, and intervention." BEAM Team MGH Institute brain.harvard.edu/hbi_connectome…

We are so thankful to be the recipients of this funding to help fuel our efforts to #EndNF!

Looking forward to reconnecting with other NF researchers at the Global NF Conference this week in Brussels!

NTAP is #HIRING! If you are a recent grad or have Physician Asst. / Nurse Practitioner entry-level experience, apply to this position on our #NF team that sees patients in the clinic and trials. Physician Asst: bit.ly/3LIXfQZ Nurse Practitioner: bit.ly/4c3bZ7W

Read more about this research in our ‘First person’ interview with Stephanie Bouley: journals.biologists.com/jcs/article/13…

Glad to see this work published and to have had a part in it!

This year, CNFWJ is proud to continue funding a postdoctoral research fellow at the Walker Lab. In previous years, we helped sponsor clinical trials that led to the first FDA-approved NF drug for reducing certain NF tumors. Every penny you donate brings us closer to #EndNF

Every penny that is raised through the 12th Annual Atlanta Golf Classic will support the MGH/Harvard Walker Lab dedicated solely to NF1 research. Donations will provide seed money to NF researchers and research-based NF entities for the most promising preclinical research.

NTAP is #HIRING! Apply today to join the #NF team in this unique position, which involves seeing patients in the clinic and conducting research trials. Being a part of Johns Hopkins Medicine has benefits. Search for REQ 115943 or 115950 jobs.jhu.edu

⛳️ Thank you to our amazing sponsors for making the 12th Annual CNFWJ Atlanta Golf Classic a huge success! 🎉 🏌️‍♂️ We’re grateful to have you by our side in making a difference! #CNFWJGolfClassic #ThankYouSponsors #GolfForACause

We’re grateful for the support!

From advancing treatments for cancer and cardiovascular issues to improving understanding of learning disabilities, NF studies make a difference far beyond the NF community. Donate today to #EndNF! secure.qgiv.com/for/curenfwith… #CureNFWithJack #WalkerLab #FundACure