SRUK | Scleroderma & Raynaud's UK (@wearesruk) 's Twitter Profile
SRUK | Scleroderma & Raynaud's UK

@wearesruk

Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.

ID: 484804505

linkhttp://www.sruk.co.uk calendar_today06-02-2012 14:18:53

9,9K Tweet

4,4K Followers

1,1K Following

RAIRDA (@rairda_org) 's Twitter Profile Photo

For more detail on the challenges faced by people living with RAIRDs, read the Rare Care Matters report, released this week. The full report is available on our website: rairda.org/publication/re… Sue Farrington

For more detail on the challenges faced by people living with RAIRDs, read the Rare Care Matters report, released this week. 
The full report is available on our website: rairda.org/publication/re… <a href="/FarrSue01/">Sue Farrington</a>
SRUK | Scleroderma & Raynaud's UK (@wearesruk) 's Twitter Profile Photo

Another great day at the BSR conference. Yesterday, Nick from our research team delivered a presentation to a packed house on how we help and support people with #scleroderma and #Raynauds. We'd also like to thank everyone who visited our stand!

Another great day at the <a href="/RheumatologyUK/">BSR</a> conference. Yesterday, Nick from our research team delivered a presentation to a packed house on how we help and support people with #scleroderma and #Raynauds. 
We'd also like to thank everyone who visited our stand!
SRUK | Scleroderma & Raynaud's UK (@wearesruk) 's Twitter Profile Photo

Trisha Goddard reveals she’s now battling severe Raynaud’s syndrome, made worse by a year of chemo, sharing a photo of her bright red fingers as she sheds light on this often-overlooked condition. Read more: bit.ly/4keEPXV

Annette Shaw (@sha19535shaw) 's Twitter Profile Photo

June is Scleroderma Awareness Month. For people like me with this disease, if you can, please donate to this charity. It is the only charity for this rare disease in the UK, and SRUK helps keep people like me alive. x.com/WeAreSRUK/stat…

SRUK | Scleroderma & Raynaud's UK (@wearesruk) 's Twitter Profile Photo

🎬 Our powerful new film is shining a light on scleroderma, a rare, life-altering autoimmune disease. Beth, 31, stars in #SayScleroderma to share her journey with systemic sclerosis and raise awareness. 📰 Read her story here: bit.ly/3HnkfpJ #SclerodermaAwarenessMonth

SRUK | Scleroderma & Raynaud's UK (@wearesruk) 's Twitter Profile Photo

🗣️ “Early diagnosis is vital.” Dawn, 43, from Northern Ireland, shares her journey with CREST syndrome in support of #SayScleroderma, raising awareness of this rare autoimmune disease. Read her story 👇 bit.ly/3ZMAnaD #SclerodermaAwarenessMonth

Jay Virdee 💙🖤; (@jay_virdee) 's Twitter Profile Photo

Your health matters. The wonderful charity SRUK | Scleroderma & Raynaud's UK has an online #Raynauds test that takes just a couple of minutes sruk.co.uk/about-raynauds… 🧤💛 Get to know #AutoimmuneHealth visit their website to learn more #Scleroderma & Raynaud's UK - #SRUK #SclerodermaAwarenessMonth

SRUK | Scleroderma & Raynaud's UK (@wearesruk) 's Twitter Profile Photo

Our Head of Research, Ula is at EULAR in Barcelona, kicking off with powerful insights on ILD, digital ischemia, GI involvement & more in systemic sclerosis. A vital reminder of how far we’ve come and what’s still to come. #EULAR2025 #SystemicSclerosis #Scleroderma

Our Head of Research, Ula is at <a href="/eular_org/">EULAR</a> in Barcelona, kicking off with powerful insights on ILD, digital ischemia, GI involvement &amp; more in systemic sclerosis. A vital reminder of how far we’ve come and what’s still to come.

#EULAR2025 #SystemicSclerosis #Scleroderma
Beacon for Rare Diseases (@rarebeacon) 's Twitter Profile Photo

This Scleroderma Awareness Month join SRUK | Scleroderma & Raynaud's UK as it launches its #SayScleroderma film to help raise vital funds into research of the rare, autoimmune disease. 🎥 youtube.com/shorts/ZS4_SY4… #SclrodermaAwarenessMonth

This Scleroderma Awareness Month join <a href="/WeAreSRUK/">SRUK | Scleroderma & Raynaud's UK</a> as it launches its #SayScleroderma film to help raise vital funds into research of the rare, autoimmune disease.

🎥 youtube.com/shorts/ZS4_SY4…

#SclrodermaAwarenessMonth
Arthritis Action (@arthritis_actn) 's Twitter Profile Photo

Many people with an auto-immune condition such as inflammatory arthritis also have other auto-immune conditions, so we're always happy to help our friends at SRUK | Scleroderma & Raynaud's UK raise awareness of these. It's Scleroderma Month - we encourage you to find out more. #SayScleroderma

Many people with an auto-immune condition such as inflammatory arthritis also have other auto-immune conditions, so we're always happy to help our friends at <a href="/WeAreSRUK/">SRUK | Scleroderma & Raynaud's UK</a> raise awareness of these.  It's Scleroderma Month - we encourage you to find out more.

#SayScleroderma
Jay Virdee 💙🖤; (@jay_virdee) 's Twitter Profile Photo

Highly recommend hearing Professor Chris Denton, VP of Scleroderma & Raynaud's UK - SRUK. Professor Denton was one of the first medical professionals who was involved with my #autoimmune journey. I’m ever grateful for his expertise and urge anyone who has the opportunity to

Highly recommend hearing Professor Chris Denton, VP of Scleroderma &amp; Raynaud's UK - SRUK. Professor Denton was one of the first medical professionals who was involved with my #autoimmune journey. I’m ever grateful for his expertise and urge anyone who has the opportunity to
RAIRDA (@rairda_org) 's Twitter Profile Photo

June is #SclerodermaAwarenessMonth. SRUK | Scleroderma & Raynaud's UK is raising awareness with their short film #SayScleroderma. 🎥 Watch the film and learn more about scleroderma and ways you can support on their website ➡️ sruk.co.uk #Scleroderma

June is #SclerodermaAwarenessMonth. <a href="/WeAreSRUK/">SRUK | Scleroderma & Raynaud's UK</a> is raising awareness with their short film #SayScleroderma. 🎥 Watch the film and learn more about scleroderma and ways you can support on their website ➡️ sruk.co.uk
#Scleroderma
SclerodermaSalfordManchester (@sclerodermam) 's Twitter Profile Photo

🚨Patients with systemic sclerosis survey alert 🚨 Questionnaire on ORAL HEALTH 👄 needs of people with systemic sclerosis (on behalf of the SCTC Orofacial in SSc Working Group) docs.google.com/forms/d/e/1FAI… SRUK | Scleroderma & Raynaud's UK World Scleroderma Foundation EUSTAR Professor Francesco Del Galdo Alessia Alunno