🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

22nd-24th October saw 30 doctors and researchers from around the world come together in Windsor, UK; to hear about and ask questions on the research that is being worked on. A discussion was also had on the updating of Clinical Guidelines for WS. #WSUK

Help us win a £150 donation this festive season - and you could bag a £150 voucher too! Just shop via Give as you Live Online by 24.11.24 > giveasyoulive.com/charity/wolfra…

Bagging a Black Friday bargain? Sign up to support us via Give as you Live 💙❤️💚 and you could generate free donations on any online purchases you make at over 6,000 top retailers > giveasyoulive.com/join/wolframsy…

Shopping online this festive period? Raise free donations for Wolfram Syndrome UK when you shop 6,000+ stores online using Give as you Live Online! > giveasyoulive.com/join/wolframsy…

Wolfram Syndrome UK is now registered with easyfundraising, so over 8,000 retailers will now donate to us for FREE every time you use easyfundraising to shop with them. easyfundraising.org.uk/causes/wolfram…

Please use this link to nominate us. Thank you movementforgood.com/index.php?cn=1…

We're delighted to launch the Renaissance Legal Artwork Competition 2025, a celebration of the artistic talents of young people with disabilities or SEN. Our theme is ‘What I love to do’ and winners will receive gift vouchers of up to £300. For details: renaissancelegal.co.uk/about-us/artwo…

News incoming! 📣 I'm honoured to have been asked by Renaissance Legal to be one of the judges for an Art work competition they've launched to mark their 15th Anniversary! 🎨 🖼 Find out more about the competion by clicking on link below! renaissancelegal.co.uk/about-us/artwo…

Please support this GoFundMe by donating or sharing – every bit of help makes a difference. gofund.me/576962e9

💜🌍 Today is Rare Disease Day! 🌍💜 Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! ⚖️ Learn more: rarediseaseday.org

Spring newsletter #47 💐🐣🌷 - mailchi.mp/b578a925b6bd/s…

Here is the link for the audio version of the Spring Newsletter #47 sent out 1st March dropbox.com/scl/fi/c8uo80k…

movementforgood.com/index.php?cn=1…

Our Inspiring Artwork Competition Judges: 📚Julia Donaldson – famed children’s author 🎙️CiarasPinkSparklePodcast - star campaigner 🎨Patricia Finnegan – Project Art Works 👩‍💼Baroness Browning – VP National Autistic Society 📽️Angela Pell – renowned screenwriter 🏃‍♂️Philip Warford our MD renaissancelegal.co.uk/about-us/artwo…

Thank you to all the companies and the players who took part in the charity football match on 4th April, organised by FJN Solutions at Horsham Football Club. We are looking at a total of £3503 raised which is the most raised to date for this event!

Please support us by nominating us for the upcoming draw organised by Benefact Group - Movement for Good. Thank you

Summer Newsletter #48🏖️🌼☀️ - mailchi.mp/be78e7a524b4/s…

Audio version of the WSUK summer newsletter - dropbox.com/scl/fi/9d1p1m6…

Here is the WSUK Summer newsletter #48 - mailchi.mp/be78e7a524b4/s…

10th International WS Researcher's Symposium 13-14th June held at the Palais du Luxembourg and Faculte de Phamarcie, Paris. Researchers and doctors from around the world along with leaders of 6 global patient organisations came together to hear updates on all WS research projects