World ME Alliance (@worldmealliance) 's Twitter Profile
World ME Alliance

@worldmealliance

An alliance of ME organisations across the world, we want to see a coordinated public health response to ME from the WHO and together founded #WorldMEDay.

ID: 730078593347424257

linkhttp://worldmealliance.org calendar_today10-05-2016 16:54:35

2,2K Tweet

1,1K Followers

252 Following

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πŸ’™ Planning a #BlueSunday2025 tea party? Support an ME charity by donating the cost of a tea and cake. Enjoy your treats and share photos. 🍰 β˜• Donate here: buff.ly/0PWmnZI #BlueSunday2025 #TeaPartyForME2025 #WorldMEDay #MEAwareness #Charity #Donate

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In recognition of #WorldMEDay, Jaime Seltzer from #MEAction and Fiona Charlton from ANZMES in New Zealand are debunking misconceptions with facts on the ANZMES YouTube Channel. Watch the video here πŸ‘‡ #MythVsFact #Fact buff.ly/TQr38Fl

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πŸ“’ An ME/CFS Research Foundation report shows #LongCOVID and #MECFS have cost Germany over €250bn in 5 years. Governments must invest in research and care, not only because it is humane but also economically necessary. #DisabilitySOS #WorldMEDay buff.ly/I4VB0xw

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On Friday 6 Jun, Action for ME in the UK are hosting a webinar to share the latest updates from the ME Genetics Centre of Excellence! Hear directly from the scientists leading important discoveries and ask your questions. Register today! buff.ly/uLYjX7A #MECFS

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Check out this new guide from Emerge Australia on supporting friends with #MECFS or #LongCovid. Learn how to understand their struggles and stay connected despite energy limitations, and help to combat to isolation so many people with ME experience. buff.ly/x9eoEHF

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πŸ”¬ International ME/CFS Conference 2025 – On Demand Now! On 12–13 May in Berlin, world-leading researchers came together to share the latest findings on ME/CFS. πŸŽ₯ πŸ‘‡ Videos, slides & summaries (EN/DE) buff.ly/Nez78V7 #MECFS #MECFSresearch

CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

🚨 Call for researchers: apply for free, high-quality biosamples from the UK ME/CFS Biobank πŸ“Š Our samples include extensive patient profiles and comprehensive datasets to support your ME/CFS research ✍️ Make sure you apply by 31 July How to apply ➑️ bit.ly/MECFS-samples

🚨 Call for researchers: apply for free, high-quality biosamples from the UK ME/CFS Biobank

πŸ“Š Our samples include extensive patient profiles and comprehensive datasets to support your ME/CFS research

✍️ Make sure you apply by 31 July

How to apply ➑️ bit.ly/MECFS-samples
World ME Alliance (@worldmealliance) 's Twitter Profile Photo

ABEMDIS has joined the World ME Alliance, expanding our global reach and advocacy efforts in Brazil. πŸ‡§πŸ‡· Born from the shared struggles of people with ME/CFS and dysautonomia, they are already making waves. πŸ’ͺ Welcome to the Alliance, ABEMDIS! πŸ”— buff.ly/f67QUPv

ABEMDIS has joined the World ME Alliance, expanding our global reach and advocacy efforts in Brazil. πŸ‡§πŸ‡· 

Born from the shared struggles of people with ME/CFS and dysautonomia, they are already making waves. πŸ’ͺ

Welcome to the Alliance, ABEMDIS!

πŸ”— buff.ly/f67QUPv
World ME Alliance (@worldmealliance) 's Twitter Profile Photo

Join this online Performance and Conversation with Sara Nesson today, 19 June, at 10:30 PT, 11:30 MDT, 13:30 ET, 18:30 BST, 19:30 CEST. Sara will perform her show Body of Water live, a chronology of love, loss, and reconciliation. Register now: buff.ly/IoxbqVn

Join this online Performance and Conversation with Sara Nesson today, 19 June, at 10:30 PT, 11:30 MDT, 13:30 ET, 18:30 BST, 19:30 CEST. 

Sara will perform her show Body of Water live,  a chronology of love, loss, and reconciliation.

Register now:
buff.ly/IoxbqVn