World Patients Alliance (@worldpatients) 's Twitter Profile
World Patients Alliance

@worldpatients

The World Patients Alliance is an umbrella organization of patients and patients organizations around the globe. Learn more at: WorldPatientsAlliance.org

ID: 1192153208510189569

calendar_today06-11-2019 18:54:26

753 Tweet

457 Followers

239 Following

World Patients Alliance (@worldpatients) 's Twitter Profile Photo

ATI’s have long-standing impacts on global health and safety.WPA is aligning its values with WHO’s mission to protect public health from these influences. Let's lead with integrity. worldpatientsalliance.org/arms-and-tobac… #WPAEthicalStandards #PublicHealthFirst #Healthdays #PatientAdvocacy

ATI’s have long-standing impacts on global health and safety.WPA is aligning its values with WHO’s mission to protect public health from these influences.
 Let's lead with integrity.

worldpatientsalliance.org/arms-and-tobac…

#WPAEthicalStandards #PublicHealthFirst
#Healthdays #PatientAdvocacy
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

WPA at #EDCTPForum 2025! our Founding Board Director, Regina Mariam Namata Kamoga will speak at a fully booked “Meet the Expert” session on Community Engagement in Research. 🗓 15–20 June | 📍 Kigali, Rwanda 🔗edctpforum.eu. #PatientEngagement #GlobalHealth

WPA at #EDCTPForum 2025!
our Founding Board Director, Regina Mariam Namata Kamoga will speak at a fully booked “Meet the Expert” session on Community Engagement in Research.
🗓 15–20 June | 📍 Kigali, Rwanda
 🔗edctpforum.eu.   
 #PatientEngagement #GlobalHealth
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

WPA’s Regina Mariam Namata Kamoga will speak at World Health Organization (WHO) regional meeting on combating substandard & falsified medical products. 🗣 Topic: Role of Patient Orgs & NRAs in tackling unsafe medicines 🗓 10–13 June | 📍 Nairobi 🔗 who.zoom.us/j/97682996187 #PatientSafety #WPA #WHO

WPA’s Regina Mariam Namata Kamoga will speak at <a href="/WHO/">World Health Organization (WHO)</a>  regional meeting on combating substandard &amp; falsified medical products.
🗣 Topic: Role of Patient Orgs &amp; NRAs in tackling unsafe medicines
 🗓 10–13 June | 📍 Nairobi
 🔗 who.zoom.us/j/97682996187
 #PatientSafety #WPA #WHO
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

To our global members and partners: WPA encourages you to explore our new policy and reflect on how your values align with WHO’s call for responsible engagement. It’s not about enforcement it’s about leadership. #WPAEthicalStandards #StrongerTogether

To our global members and partners:
 
WPA encourages you to explore our new policy and reflect on how your values align with WHO’s call for responsible engagement.
 
It’s not about enforcement it’s about leadership.
#WPAEthicalStandards #StrongerTogether
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

"June 13 is #WorldAlbinismDay. We spotlight: ALBINO TRUST OF ZIMBABWE Albinism Fellowship of Australia They’re leading the fight for inclusion, safety & rights for people with albinism. Awareness breaks stigma. #AlbinismAwareness #InclusionMatters #WorldPatientAlliance

"June 13 is #WorldAlbinismDay.
We spotlight:
<a href="/TrustZim/">ALBINO TRUST OF ZIMBABWE</a> 
Albinism Fellowship of Australia
They’re leading the fight for inclusion, safety &amp; rights for people with albinism.
Awareness breaks stigma.
#AlbinismAwareness #InclusionMatters #WorldPatientAlliance
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

June 19 is #WorldSickleCellDay. We spotlight members improving lives Dreamsickle Kids, ICI, KB Society, NTWS, Sickle Cell Australia, ANAQ, Thal Ghana, SC Bangalore, Sankalpa, SCUT, Tumaini, Bahrain SCD, Thal & SCD Society, Obi Ogbonnia Foundation. #WorldPatientAlliance

June 19 is #WorldSickleCellDay.
We spotlight members improving lives 
Dreamsickle Kids, ICI, KB Society, NTWS, Sickle Cell Australia, ANAQ, Thal Ghana, SC Bangalore, Sankalpa, SCUT, Tumaini, Bahrain SCD, Thal &amp; SCD Society, Obi Ogbonnia Foundation.
 
#WorldPatientAlliance
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

WPA welcomes member organizations, collaborators, and partners to voluntarily align with the values outlined in our new policy. Ethical leadership starts with awareness and dialogue. Let’s grow stronger - together. #WPAEncourages #EthicalPartnerships #GlobalTrust #FENSA

WPA welcomes member organizations, collaborators, and partners to voluntarily align with the values outlined in our new policy.
Ethical leadership starts with awareness and dialogue.
Let’s grow stronger - together.
#WPAEncourages #EthicalPartnerships #GlobalTrust #FENSA
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

“This policy reflects not just compliance but a deeper promise to the patients we serve.” Hussain Jafri #WPALeadership #EthicsInAction #PolicyWithHeart #EthicalPartnerships #GlobalTrust #WPAEncourages #EthicalPartnerships

“This policy reflects not just compliance but a deeper promise to the patients we serve.”
Hussain Jafri
#WPALeadership #EthicsInAction #PolicyWithHeart
#EthicalPartnerships #GlobalTrust #WPAEncourages #EthicalPartnerships
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

Our ethical stance isn’t just a document - it’s a direction.WPA thanks its members and partners for reflecting on this journey with us. If you haven’t already, take a moment to explore the policy and what it means for future partnerships. worldpatientsalliance.org/arms-and-tobac…

Our ethical stance isn’t just a document - it’s a direction.WPA thanks its members and partners for reflecting on this journey with us.
 If you haven’t already, take a moment to explore the policy and what it means for future partnerships.
 worldpatientsalliance.org/arms-and-tobac…
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

June 21 is #GlobalMNDAwarenessDay. We spotlight the International Alliance of ALS/MND Associations for leading global advocacy. MND/ALS affects movement, speech & breathing but not the mind. Awareness drives action. #ALSAwareness #MNDCommunity #WorldPatientAlliance

June 21 is #GlobalMNDAwarenessDay.
 
We spotlight the International Alliance of ALS/MND Associations for leading global advocacy.
MND/ALS affects movement, speech &amp; breathing but not the mind.
Awareness drives action.
 
#ALSAwareness #MNDCommunity #WorldPatientAlliance
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

June 25 is #WorldVitiligoDay. We spotlight: Beyond Vitiligo Vitiligo Society , Shweta Assoc, VIPOC VITSAF (Nigeria & Ghana), Royal Patches Vitiligo is not just a condition it’s a community. #VitiligoAwareness #WorldPatientAlliance #InclusionMatters

June 25 is #WorldVitiligoDay. 
 
We spotlight: <a href="/Beyondvitiligo/">Beyond Vitiligo</a>   <a href="/vitiligosociety/">Vitiligo Society</a> , Shweta Assoc, VIPOC <a href="/VITSAF/">VITSAF</a>  (Nigeria &amp; Ghana), <a href="/royalpatches254/">Royal Patches</a> 
Vitiligo is not just a condition it’s a community. 
 
#VitiligoAwareness #WorldPatientAlliance #InclusionMatters
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

June 29 is #WorldSclerodermaDay. We spotlight Suomen Sklerodermayhdistys Ry & Scleroderma Awareness Philippines (SSFI) for raising awareness for those with this rare autoimmune condition. Early diagnosis matters. #SclerodermaAwareness #WorldPatientAlliance

June 29 is #WorldSclerodermaDay.
 
We spotlight Suomen Sklerodermayhdistys Ry &amp; <a href="/SclerodrmaPhils/">Scleroderma Awareness Philippines</a> (SSFI) for raising awareness for those with this rare autoimmune condition.
 
Early diagnosis matters.
 
#SclerodermaAwareness #WorldPatientAlliance
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

New World Health Organization (WHO) report shows progress but also urgent gaps in global tobacco control. 🟠 134 countries lack strong tobacco taxes 🟠 Only 1 in 3 people get quitting support 🟠 60+ have no e-cigarette (ENDS) laws WPA urges action. #TobaccoControl #MPOWER #ENDS #WPA

New <a href="/WHO/">World Health Organization (WHO)</a>  report shows progress but also urgent gaps in global tobacco control.
🟠 134 countries lack strong tobacco taxes 🟠 Only 1 in 3 people get quitting support 🟠 60+ have no e-cigarette (ENDS) laws
WPA urges action.
#TobaccoControl #MPOWER #ENDS #WPA
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

Ready to use AI in your advocacy work? Join our FREE 3-part webinar series: Empowering Patient Advocacy with AI 🎥 Watch the teaser: youtube.com/watch?v=EtoVWw…… 📷 Register once for all sessions: us06web.zoom.us/webinar/regist…… #AIforAdvocacy #PatientAdvocacy #WPA #FreeWebinar

Ready to use AI in your advocacy work? Join our FREE 3-part webinar series:  Empowering Patient Advocacy with AI 🎥 Watch the teaser: youtube.com/watch?v=EtoVWw……
📷 Register once for all sessions:  us06web.zoom.us/webinar/regist……
#AIforAdvocacy #PatientAdvocacy #WPA #FreeWebinar
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

July is #sarcomaawarenessmonth We spotlight Sachin Sarcoma Society for raising awareness, supporting patients & promoting early detection of this rare cancer. Sarcoma affects bones, soft tissue & often the young. #SarcomaAwareness #WorldPatientAlliance

July is #sarcomaawarenessmonth 
 
We spotlight Sachin Sarcoma Society for raising awareness, supporting patients &amp; promoting early detection of this rare cancer. 
Sarcoma affects bones, soft tissue &amp; often the young. 
 
#SarcomaAwareness #WorldPatientAlliance
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

July 22 is #WorldBrainDay. We spotlight: Belgian Brain Council, Dopeca, Estonian Stroke Patients Society, brainstrust, and CEREBRUM2007. They support people with neurological conditions & raise awareness for brain health. #BrainHealthAwareness #WorldPatientAlliance

July 22 is #WorldBrainDay.
 
We spotlight: Belgian Brain Council, Dopeca, Estonian Stroke Patients Society, brainstrust, and CEREBRUM2007.
They support people with neurological conditions &amp; raise awareness for brain health.
 
#BrainHealthAwareness #WorldPatientAlliance
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

📢 ¡Únete a “Más allá del peso”! Un evento que desmantela estigmas sobre la obesidad. 📷 9 de agosto | 3PM (Lima) | organizado por Esperantra en colaboración con la World Patients Alliance (WPA) 📷 Vitual:us06web.zoom.us/webinar/regist… #MásAlláDelPeso #ObesidadSinPrejuicios

📢 ¡Únete a “Más allá del peso”! Un evento que 
desmantela estigmas sobre la obesidad.  📷 9 de agosto | 3PM (Lima) | organizado por Esperantra en colaboración con la World Patients Alliance (WPA) 📷 Vitual:us06web.zoom.us/webinar/regist…
#MásAlláDelPeso #ObesidadSinPrejuicios
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

Join us on 24 July for a free webinar: Empowering Patient Advocacy with AI Discover how AI can support your comms, engagement & impact. Hosted with Platform Worldwide #AIForAdvocacy #PatientAdvocacy #WorldPatientAlliance @PlatformWorldwide Andrew Spiegel Ravi

Join us on 24 July for a free webinar:
Empowering Patient Advocacy with AI
 
Discover how AI can support your comms, engagement &amp; impact.
Hosted with Platform Worldwide
 
#AIForAdvocacy #PatientAdvocacy #WorldPatientAlliance @PlatformWorldwide <a href="/AndrewRSpiegel/">Andrew Spiegel</a> <a href="/raviruparel/">Ravi</a>
World Patients Alliance (@worldpatients) 's Twitter Profile Photo

Join us Sept 9 for our #WPSD2025 Webinar: “Safe from the Start: Patient Safety & Quality in Infant and Child” 📍 08:00–09:30 UTC 🎙️ Hear from global experts & advocates 📲 Register here 👉 us06web.zoom.us/webinar/regist… #PatientSafety #SafeCare #GlobalHealth #ChildHealth

Join us Sept 9 for our #WPSD2025 Webinar:
 “Safe from the Start: Patient Safety &amp; Quality in Infant and Child”
 📍 08:00–09:30 UTC
 🎙️ Hear from global experts &amp; advocates
 📲 Register here 👉 us06web.zoom.us/webinar/regist…
 #PatientSafety #SafeCare #GlobalHealth #ChildHealth