_ERNRITA (@_ernrita) 's Twitter Profile
_ERNRITA

@_ernrita

ERN for Rare Immunodeficiency, autoinflammatory, autoimmune and paediatric rheumatology Diseases - For all patients with rare immune disorders in Europe

ID: 839792315476684800

linkhttps://ern-rita.org calendar_today09-03-2017 10:57:45

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_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐Ÿšจ Webinar Alert! ๐Ÿšจ Join us on Sept 18, 2024, 18:00 CEST, for "Risk of Infection and Immunological Rare Diseases" with Dr. Laia Alsina from Hospital Sant Joan de Dรฉu, Barcelona. Register now โฌ‡๏ธ register.gotowebinar.com/register/63495โ€ฆ

๐Ÿšจ Webinar Alert! ๐Ÿšจ

Join us on Sept 18, 2024, 18:00 CEST, for "Risk of Infection and Immunological Rare Diseases" with Dr. Laia Alsina from Hospital Sant Joan de Dรฉu, Barcelona.

Register now โฌ‡๏ธ
register.gotowebinar.com/register/63495โ€ฆ
IPOPI (@ipopi_info) 's Twitter Profile Photo

๐ŸฉบDiscover the impact and burden of viral respiratory infections in antibody deficiency with us! Don't miss our exhilarating IPOPI Hard Talks session, where we unravel the impact and burden of viral respiratory infections in antibody deficiency! ๐Ÿงฌ๐Ÿ’‰ ๐Ÿ‘จโ€โš•๏ธTailored for healthcare

๐ŸฉบDiscover the impact and burden of viral respiratory infections in antibody deficiency with us!

Don't miss our exhilarating IPOPI Hard Talks session, where we unravel the impact and burden of viral respiratory infections in antibody deficiency! ๐Ÿงฌ๐Ÿ’‰

๐Ÿ‘จโ€โš•๏ธTailored for healthcare
_ERNRITA (@_ernrita) 's Twitter Profile Photo

New article in the Journal of Clinical Immunology on Allogeneic Hematopoietic Stem Cell Transplantation in ICF Syndrome, showcasing work by experts from various RITA members. Read here! ncbi.nlm.nih.gov/pmc/articles/Pโ€ฆ

New article in the Journal of Clinical Immunology on Allogeneic Hematopoietic Stem Cell Transplantation in ICF Syndrome, showcasing work by experts from various RITA members. Read here! ncbi.nlm.nih.gov/pmc/articles/Pโ€ฆ
_ERNRITA (@_ernrita) 's Twitter Profile Photo

โ—๐Ÿ“ข Don't forget to sign up for our upcoming patient-centered webinar on "Risk of Infection and Immunological Rare Diseases"! featuring Dr. Laia Alsina. Date: ๐Ÿ“… Wednesday 18 September 2024 Time: ๐Ÿ•• 18:00 - 19:00 CEST Click the link below to register: attendee.gotowebinar.com/register/63495โ€ฆ

โ—๐Ÿ“ข Don't forget to sign up for our upcoming patient-centered webinar on "Risk of Infection and Immunological Rare Diseases"! featuring Dr. Laia Alsina.

Date: ๐Ÿ“… Wednesday 18 September 2024
Time: ๐Ÿ•• 18:00 - 19:00 CEST

Click the link below to register: 
attendee.gotowebinar.com/register/63495โ€ฆ
_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐ŸŒŸJoin us for our next Tuesday Lunch with RITA webinar on October 1! Topic: "Histiocytosis and Inflammation: How I Manage H Syndrome." ๐Ÿ—“๏ธ 12:00 - 13:00 CEST Panelists: Dr. Maurine Jouret & Dr. Julien Haroche Chair: Dr. Belot Alexandre ๐Ÿ”— Register: register.gotowebinar.com/register/34420โ€ฆ

๐ŸŒŸJoin us for our next Tuesday Lunch with RITA webinar on October 1! 

Topic: "Histiocytosis and Inflammation: How I Manage H Syndrome."

๐Ÿ—“๏ธ 12:00 - 13:00 CEST

Panelists: Dr. Maurine Jouret & Dr. Julien Haroche
Chair: Dr. <a href="/AlexandreBelot/">Belot Alexandre</a>
๐Ÿ”— Register: register.gotowebinar.com/register/34420โ€ฆ
_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐Ÿ“ขReminder to register for the next Lunch with RITA webinar! ๐Ÿ—“๏ธ 5 Nov 2024 โฐ 12:00 CET ๐Ÿ’ฌ Topic: Granulomas in PID & Immune Dysregulation ๐ŸŽ™๏ธ Speakers: Dr. Benjamin Fournier & Dr. Carine Wouters Donโ€™t miss insights on key treatment strategies! ๐Ÿ”—Register: lnkd.in/edeD8ADC

๐Ÿ“ขReminder to register for the next Lunch with RITA webinar!

๐Ÿ—“๏ธ 5 Nov 2024
โฐ 12:00 CET
๐Ÿ’ฌ Topic: Granulomas in PID &amp; Immune Dysregulation
๐ŸŽ™๏ธ Speakers: Dr. Benjamin Fournier &amp; Dr. Carine Wouters
Donโ€™t miss insights on key treatment strategies!
๐Ÿ”—Register: lnkd.in/edeD8ADC
_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐ŸŒŸ New publication! ERN RITA's Transition Working Group, led by Siobhan Burns, publishes expert consensus on improving the transition of young patients with PID & AID to adult care. ๐Ÿ“– Read here: pubmed.ncbi.nlm.nih.gov/39690292/ #RareDiseases #TransitionalCare #ERNRITA

๐ŸŒŸ New publication!

ERN RITA's Transition Working Group, led by Siobhan Burns, publishes expert consensus on improving the transition of young patients with PID &amp; AID to adult care.
๐Ÿ“– Read here: pubmed.ncbi.nlm.nih.gov/39690292/

#RareDiseases #TransitionalCare #ERNRITA
_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐Ÿ“ข Join the Spring School of Primary Immunodeficiencies in Prague! ๐Ÿ“… 24โ€“26 April 2025 ๐ŸŒ Case-based learning, top faculty, & no registration fee. Apply by 2 March 2025: imunologie.lf2.cuni.cz/en/events/spriโ€ฆ

๐Ÿ“ข Join the Spring School of Primary Immunodeficiencies in Prague!

๐Ÿ“… 24โ€“26 April 2025
๐ŸŒ Case-based learning, top faculty, &amp; no registration fee.
Apply by 2 March 2025: imunologie.lf2.cuni.cz/en/events/spriโ€ฆ
_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐Ÿ“ข Save the date! Join the 6th EUVAS Vasculitis Course in Trieste, Italy, 21โ€“24 May 2025. ๐Ÿ”ฌ Focused on systemic vasculitis, this event features top experts, state-of-the-art lectures, interactive case discussions, & more. ๐Ÿ“ Register: euvas.it EUVAS

๐Ÿ“ข Save the date!

Join the 6th EUVAS Vasculitis Course in Trieste, Italy, 21โ€“24 May 2025.
๐Ÿ”ฌ Focused on systemic vasculitis, this event features top experts, state-of-the-art lectures, interactive case discussions, &amp; more.

๐Ÿ“ Register: euvas.it

<a href="/EUVAS19/">EUVAS</a>
_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐Ÿ“ข Save the date! The 13th ISSAID Meeting is in Paris ๐Ÿ‡ซ๐Ÿ‡ท, 8โ€“10 April 2025. ๐Ÿ”ฌ Discover advances in autoinflammatory diseases, AI, and neurologic inflammation. ๐Ÿ“ Register: issaid.org/issaid2025/ #ISSAID2025 #RareDiseases #Autoinflammatory Sophie Georgin-Lavialle Marco Gattorno

๐Ÿ“ข Save the date! The 13th ISSAID Meeting is in Paris ๐Ÿ‡ซ๐Ÿ‡ท, 8โ€“10 April 2025.

๐Ÿ”ฌ Discover advances in autoinflammatory diseases, AI, and neurologic inflammation.

๐Ÿ“ Register: issaid.org/issaid2025/

#ISSAID2025 #RareDiseases #Autoinflammatory <a href="/SophieGeorgin/">Sophie Georgin-Lavialle</a> <a href="/marcogattorno/">Marco Gattorno</a>
_ERNRITA (@_ernrita) 's Twitter Profile Photo

Weโ€™re excited to announce Dr. Susa Benseler as the new Pediatric Rheumatology Stream Lead for ERN RITA! Learn more about Dr. Benseler's vision for the future of pediatric rheumatology on our website! ern-rita.org/susa-benseler-โ€ฆ

Weโ€™re excited to announce Dr. Susa Benseler as the new Pediatric Rheumatology Stream Lead for ERN RITA! 
Learn more about Dr. Benseler's vision for the future of pediatric rheumatology on our website!
ern-rita.org/susa-benseler-โ€ฆ
_ERNRITA (@_ernrita) 's Twitter Profile Photo

Join the New Technologies and Methods in Immunogenetics workshop, organised by Vall dโ€™Hebron Hospital, with ERN RITAโ€™s support. ๐Ÿ“… 17 Feb 2025 ๐Ÿ•’ 14:30โ€“18:00 ๐Ÿ“ Hybrid Explore innovative genomic technologies and their applications in immunogenetics! vallhebron.com/actualitat/ageโ€ฆ

Join the New Technologies and Methods in Immunogenetics workshop, organised by Vall dโ€™Hebron Hospital, with ERN RITAโ€™s support.
๐Ÿ“… 17 Feb 2025
๐Ÿ•’ 14:30โ€“18:00
๐Ÿ“ Hybrid 
Explore innovative genomic technologies and their applications in immunogenetics!
vallhebron.com/actualitat/ageโ€ฆ
_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐Ÿ“ขDonโ€™t miss Tuesday Lunch with RITA next week on VEXAS: Learning from Somatic Diseases Panelists: Prof. Sophie Georgin-Lavialle & Prof. Sinisa Savic Chair: Dr. Sara Bindoli Join the discussion and dive into the latest insights!๐ŸŒŸ Register: attendee.gotowebinar.com/register/22077โ€ฆ

๐Ÿ“ขDonโ€™t miss Tuesday Lunch with RITA next week on VEXAS: Learning from Somatic Diseases  

Panelists: Prof. Sophie Georgin-Lavialle &amp; Prof. Sinisa Savic 
Chair: Dr. Sara Bindoli  

Join the discussion and dive into the latest insights!๐ŸŒŸ
Register: attendee.gotowebinar.com/register/22077โ€ฆ
_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐Ÿ“ข Sant Joan de Dรฉu Barcelona Hospital hosts the 1st Conference on Advances in Pediatric Neuroimmunology on 20โ€“21 Feb 2025! ๐Ÿ‡ช๐Ÿ‡ธ In Spanish (some talks in English) ๐Ÿ“ Barcelona & Online ๐Ÿ”— Register: formacion.sjdhospitalbarcelona.org/es/formacionesโ€ฆ ๐Ÿ‘จโ€๐Ÿ‘ฉโ€๐Ÿ‘ง Free family session: escolasalut.sjdhospitalbarcelona.org/es/actividadesโ€ฆ

Rare Disease Day (@rarediseaseday) 's Twitter Profile Photo

๐Ÿ’œ๐ŸŒ Today is Rare Disease Day! ๐ŸŒ๐Ÿ’œ Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! โš–๏ธ Learn more: rarediseaseday.org

๐Ÿ’œ๐ŸŒ Today is Rare Disease Day! ๐ŸŒ๐Ÿ’œ

Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! โš–๏ธ

Learn more: rarediseaseday.org
_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐ŸŒ Today is #RareDiseaseDay! ๐Ÿ’œ ERN RITA connects experts across Europe to advance diagnosis & treatment for rare immunological, autoimmune & autoinflammatory diseases. Learn more: ern-rita.org #RareDiseases #ERNRITA

๐ŸŒ Today is #RareDiseaseDay! ๐Ÿ’œ
ERN RITA connects experts across Europe to advance diagnosis &amp; treatment for rare immunological, autoimmune &amp; autoinflammatory diseases.
Learn more: ern-rita.org 

#RareDiseases #ERNRITA
_ERNRITA (@_ernrita) 's Twitter Profile Photo

โณ Last chance to sign up! โณ ๐Ÿ“ข Tuesday Lunch with RITA โ€“ Tomorrow! ๐Ÿ•› 12:00โ€“13:00 CET Join us as we explore IL-1 in Kawasaki disease with leading experts. Donโ€™t miss it! ๐Ÿ“Œ Register now! โฌ‡๏ธ ๐Ÿ”—register.gotowebinar.com/register/55563โ€ฆ #KawasakiDisease #PediatricRheumatology #ERNRITA

โณ Last chance to sign up! โณ

๐Ÿ“ข Tuesday Lunch with RITA โ€“ Tomorrow! ๐Ÿ•› 12:00โ€“13:00 CET

Join us as we explore IL-1 in Kawasaki disease with leading experts. Donโ€™t miss it!

๐Ÿ“Œ Register now! โฌ‡๏ธ
๐Ÿ”—register.gotowebinar.com/register/55563โ€ฆ 
#KawasakiDisease #PediatricRheumatology #ERNRITA
_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐Ÿ“ข New Patient Journey: Familial Mediterranean Fever Meet Amira, living with FMFโ€”an autoinflammatory disease causing recurrent fever & painful inflammation. FMF can impact daily life & requires ongoing care. ๐Ÿ“– Read her journey: ๐Ÿ”— ern-rita.org/jop3/

๐Ÿ“ข New Patient Journey: Familial Mediterranean Fever

Meet Amira, living with FMFโ€”an autoinflammatory disease causing recurrent fever &amp; painful inflammation. FMF can impact daily life &amp; requires ongoing care.

๐Ÿ“– Read her journey: ๐Ÿ”— ern-rita.org/jop3/
_ERNRITA (@_ernrita) 's Twitter Profile Photo

๐Ÿ“ข Join us for Lunch with RITA on 1 April, 12:00โ€“13:00 CEST! We'll explore sex-biased autoimmunity, diving into the role of hormones and XY/XX chromosomes in autoimmune diseases. ๐ŸŽ™ Speakers: Pr. Coziana Ciurtin & Pr. Petter Brodin ๐Ÿ”— Register now: attendee.gotowebinar.com/register/82254โ€ฆ

๐Ÿ“ข Join us for Lunch with RITA on 1 April, 12:00โ€“13:00 CEST!

We'll explore sex-biased autoimmunity, diving into the role of hormones and XY/XX chromosomes in autoimmune diseases.

๐ŸŽ™ Speakers: Pr. Coziana Ciurtin &amp; Pr. Petter Brodin
๐Ÿ”— Register now: attendee.gotowebinar.com/register/82254โ€ฆ