
Rare Cancers Europe
@_rarecancer
A multi-stakeholder initiative dedicated to putting rare cancers firmly on the European policy agenda
ID: 2301430153
http://www.rarecancerseurope.org/ 20-01-2014 13:42:44
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1,1K Followers
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Interested in opportunities for #rarecancer patients from digitalisation? Join the RCE-ESMO-ESO Training for #PatientAdvocates session (10 Feb) ‘#Cancercare: ensuring digitalisation benefits rare #cancer patients’. Registration 👉 ow.ly/ZNt450HGejM ESOncology ESMO - Eur. Oncology


Today's session will be exploring the #EUCancerPlan & #EUCancerMission, as well as the Romanian national plan for #cancer, collaboration w/ the #rarecancer national network in Italy, pts involvement in HTA in Sweden & more… Register ➡️ ow.ly/8BW050HP5ru ESOncology ESMO - Eur. Oncology


From today's session, Ariane Weinman on rare cancers in the #EUCancerPlan, & new section on #rarecancers in the @EP_BeatCancer report. Bettina Ryll on how rare cancer pts will benefit from Horizon Europe Mission on Cancer, & vital role of #cancerresearch ow.ly/8BW050HP5ru


Great seeing all participants at today's session with some excellent discussions on topics around the European #rarecancer policy landscape, & looking foward to tomorrow's session on #rarecancers in the new #COVID-19 era. 👉ow.ly/ZNt450HGejM ESOncology ESMO - Eur. Oncology Paolo G Casali





At today's session, Giancarlo Pruneri from Università degli Studi di Milano on #telepathology and #telemedicine, and how networking is a solution for #raretumours and #biomarkers 👉ow.ly/ZNt450HGejM #rarecancer ESOncology ESMO - Eur. Oncology


Second part of today's RCE-ESMO - Eur. Oncology-ESOncology Training for #PatientAdvocates brought together physicians, nurses and patients exploring the opportunities and challenges of #telepathology and #telemedicine for #rarecancer patients. ow.ly/ZNt450HGejM


#RareCancers in all policies: We are in this together, help us shape & develop an infrastructure to support #rarecancer patients across Europe, so they can have the best QoL possible ➡️ow.ly/ia9i50I0R5z CCI Europe 🎗️ @EP_BeatCancer EU One Health SIOPE 🎗️ EURORDIS-Rare Diseases Europe @cancereu



New 📢 #Salivaryglandcancer: ESMO Clinical Practice Guideline for diagnosis, tx & follow-up. Clinical & pathological diagnosis, staging & risk assessmt, & managemt. Tx algorithms given. ow.ly/Hr0050LsUPO Carla Van Herpen Rare Cancers Europe EURACAN #rarecancer ESMO Open



In Annals of Oncology, investigators report on a clinico-genomic analyses of 1817 KRAS-mutated lung 🫁 adenocarcinomas, shedding light on genomic alterations 🧬 associated with outcome, towards a clinico-genomic risk stratification annalsofoncology.org/article/S0923-… #LCSM Dana-Farber

Perception of cancer by pts is based on organ-of-origin without mechanistic consideration. Franzoi Maria Alice et al explain why cancer representations should evolve toward comprehensive portraits that include biology. This is a task of the IHU Prism Center annalsofoncology.org/article/S0923-…


Osteosarcoma remains a disease with an unmet therapeutic need and imperfect risk stratification biomarkers. In Annals of Oncology, samuel abbou and coll. report on ctDNA quantification using lpWGS as a prognostic biomarker in the OS2006 phase 3 trial annalsofoncology.org/article/S0923-…