Rare Cancers Europe (@_rarecancer) 's Twitter Profile
Rare Cancers Europe

@_rarecancer

A multi-stakeholder initiative dedicated to putting rare cancers firmly on the European policy agenda

ID: 2301430153

linkhttp://www.rarecancerseurope.org/ calendar_today20-01-2014 13:42:44

1,1K Tweet

1,1K Followers

408 Following

Rare Cancers Europe (@_rarecancer) 's Twitter Profile Photo

Interested in opportunities for #rarecancer patients from digitalisation? Join the RCE-ESMO-ESO Training for #PatientAdvocates session (10 Feb) ‘#Cancercare: ensuring digitalisation benefits rare #cancer patients’. Registration 👉 ow.ly/ZNt450HGejM ESOncology ESMO - Eur. Oncology

Interested in opportunities for #rarecancer patients from digitalisation? Join the RCE-ESMO-ESO Training for #PatientAdvocates session (10 Feb) ‘#Cancercare: ensuring digitalisation benefits rare #cancer patients’. 
Registration 👉 ow.ly/ZNt450HGejM

<a href="/ESOncology/">ESOncology</a> <a href="/myESMO/">ESMO - Eur. Oncology</a>
Rare Cancers Europe (@_rarecancer) 's Twitter Profile Photo

Today's session will be exploring the #EUCancerPlan & #EUCancerMission, as well as the Romanian national plan for #cancer, collaboration w/ the #rarecancer national network in Italy, pts involvement in HTA in Sweden & more… Register ➡️ ow.ly/8BW050HP5ru ESOncology ESMO - Eur. Oncology

Today's session will be exploring the #EUCancerPlan &amp; #EUCancerMission, as well as the Romanian national plan for #cancer, collaboration w/ the #rarecancer national network in Italy, pts involvement in HTA in Sweden &amp; more…
Register ➡️ ow.ly/8BW050HP5ru
<a href="/ESOncology/">ESOncology</a> <a href="/myESMO/">ESMO - Eur. Oncology</a>
Rare Cancers Europe (@_rarecancer) 's Twitter Profile Photo

From today's session, Ariane Weinman on rare cancers in the #EUCancerPlan, & new section on #rarecancers in the @EP_BeatCancer report. Bettina Ryll on how rare cancer pts will benefit from Horizon Europe Mission on Cancer, & vital role of #cancerresearch ow.ly/8BW050HP5ru

From today's session, Ariane Weinman on rare cancers in the #EUCancerPlan, &amp; new section on #rarecancers in the @EP_BeatCancer report. <a href="/BettinaRyll/">Bettina Ryll</a> on how rare cancer pts will benefit from Horizon Europe Mission on Cancer, &amp; vital role of #cancerresearch
ow.ly/8BW050HP5ru
Rare Cancers Europe (@_rarecancer) 's Twitter Profile Photo

Great seeing all participants at today's session with some excellent discussions on topics around the European #rarecancer policy landscape, & looking foward to tomorrow's session on #rarecancers in the new #COVID-19 era. 👉ow.ly/ZNt450HGejM ESOncology ESMO - Eur. Oncology Paolo G Casali

Great seeing all participants at today's session with some excellent discussions on topics around the European #rarecancer policy landscape, &amp; looking foward to tomorrow's session on #rarecancers in the new #COVID-19 era.
👉ow.ly/ZNt450HGejM
<a href="/ESOncology/">ESOncology</a> <a href="/myESMO/">ESMO - Eur. Oncology</a> <a href="/casali_pg/">Paolo G Casali</a>
Rare Cancers Europe (@_rarecancer) 's Twitter Profile Photo

From today's session on #rarecancers in the #covid19 era, Kathy Oliver discusses IBTA patient survey on #covid19vaccination & highlights that the continuity and quality of care for #rarecancerpatients should be protected ow.ly/ZNt450HGejM

From today's session on #rarecancers in the #covid19 era, <a href="/KathyOliverIBTA/">Kathy Oliver</a> discusses <a href="/theIBTA/">IBTA</a> patient survey on #covid19vaccination &amp; highlights that the continuity and quality of care for #rarecancerpatients should be protected
ow.ly/ZNt450HGejM
Rare Cancers Europe (@_rarecancer) 's Twitter Profile Photo

Next up from today's session, Radu Ianovici presents main recommendations from @cancereu letter on #COVID19 & #cancer. The letter calls on policymakers to ensure pts get diagnosis & tx in a safe manner, & is signed by 320 organisations. 👉ow.ly/ZNt450HGejM #covid19ncancer

Next up from today's session, Radu Ianovici presents main recommendations from @cancereu letter on #COVID19 &amp; #cancer. The letter calls on policymakers to ensure pts get diagnosis &amp; tx in a safe manner, &amp; is signed by 320 organisations.
👉ow.ly/ZNt450HGejM
#covid19ncancer
Rare Cancers Europe (@_rarecancer) 's Twitter Profile Photo

In the last part of today's session, Sergio Sandrucci, Sandrine Marreaud & Federica Castiglione shared their perspectives on the implications of #COVID19 on clinical research & healthcare professionals, & how #rarecancer pts communities can be supported 👉ow.ly/ZNt450HGejM

In the last part of today's session, Sergio Sandrucci, Sandrine Marreaud &amp; Federica Castiglione shared their perspectives on the implications of #COVID19 on clinical research &amp; healthcare professionals, &amp; how #rarecancer pts communities can be supported
👉ow.ly/ZNt450HGejM
Rare Cancers Europe (@_rarecancer) 's Twitter Profile Photo

At today's session, Giancarlo Pruneri from Università degli Studi di Milano on #telepathology and #telemedicine, and how networking is a solution for #raretumours and #biomarkers 👉ow.ly/ZNt450HGejM #rarecancer ESOncology ESMO - Eur. Oncology

At today's session, Giancarlo Pruneri from <a href="/LaStatale/">Università degli Studi di Milano</a> on  #telepathology and #telemedicine, and how networking is a solution for #raretumours and #biomarkers 
👉ow.ly/ZNt450HGejM
#rarecancer <a href="/ESOncology/">ESOncology</a> <a href="/myESMO/">ESMO - Eur. Oncology</a>
Rare Cancers Europe (@_rarecancer) 's Twitter Profile Photo

Second part of today's RCE-ESMO - Eur. Oncology-ESOncology Training for #PatientAdvocates brought together physicians, nurses and patients exploring the opportunities and challenges of #telepathology and #telemedicine for #rarecancer patients. ow.ly/ZNt450HGejM

Second part of today's RCE-<a href="/myESMO/">ESMO - Eur. Oncology</a>-<a href="/ESOncology/">ESOncology</a>  Training for #PatientAdvocates brought together physicians, nurses and patients exploring the opportunities and challenges of #telepathology and #telemedicine for #rarecancer patients. 
ow.ly/ZNt450HGejM
Rare Cancers Europe (@_rarecancer) 's Twitter Profile Photo

#RareCancers in all policies: We are in this together, help us shape & develop an infrastructure to support #rarecancer patients across Europe, so they can have the best QoL possible ➡️ow.ly/ia9i50I0R5z CCI Europe 🎗️ @EP_BeatCancer EU One Health SIOPE 🎗️ EURORDIS-Rare Diseases Europe @cancereu

Rare Cancers Europe (@_rarecancer) 's Twitter Profile Photo

#RareCancers in all policies: "I know how devastating a rare cancer diagnosis can be as my son, Colin, was diagnosed w/ a #braintumour when he was 24. As a family we felt so isolated, alone & frightened." Kathy Oliver ow.ly/SL3B50I0SJJ #RareDiseaseDay IBTA

ESMO - Eur. Oncology (@myesmo) 's Twitter Profile Photo

Risk reduction & screening of cancer in hereditary breast-ovarian cancer syndromes: ESMO Clinical Practice Guideline. Developed by multidisciplinary team incl. patient reps, w/ framework 4 managing clinical setting restricted by limited quality data. ow.ly/sBbi50Lk3z1 #HBOC

Risk reduction &amp; screening of cancer in hereditary breast-ovarian cancer syndromes: ESMO Clinical Practice Guideline. Developed by multidisciplinary team incl. patient reps, w/ framework 4 managing clinical setting restricted by limited quality data.
ow.ly/sBbi50Lk3z1
#HBOC
ESMO - Eur. Oncology (@myesmo) 's Twitter Profile Photo

New 📢 #Salivaryglandcancer: ESMO Clinical Practice Guideline for diagnosis, tx & follow-up. Clinical & pathological diagnosis, staging & risk assessmt, & managemt. Tx algorithms given. ow.ly/Hr0050LsUPO Carla Van Herpen Rare Cancers Europe EURACAN #rarecancer ESMO Open

New 📢 #Salivaryglandcancer: ESMO Clinical Practice Guideline for diagnosis, tx &amp; follow-up. Clinical &amp; pathological diagnosis, staging &amp; risk assessmt, &amp; managemt. Tx algorithms given.
ow.ly/Hr0050LsUPO
<a href="/Carlavanherpen/">Carla Van Herpen</a> <a href="/_rarecancer/">Rare Cancers Europe</a> <a href="/ERN_EURACAN/">EURACAN</a> #rarecancer <a href="/ESMO_Open/">ESMO Open</a>
Tom Powles (@tompowles1) 's Twitter Profile Photo

The safety results of durvalumab/tremelimumab/enfortumab vedotin #EMUC22 Alexandra Drakaki. Neoadjuvant triples for the VOLGA randomised trial! Ambitious!! The combo appeared safe with no clear ⬆️ skin, liver or neuro tox. pCRs in 6 downstaging in 9. The R3 is enrolling globally

The safety results of durvalumab/tremelimumab/enfortumab vedotin #EMUC22 Alexandra Drakaki. Neoadjuvant triples for the VOLGA randomised trial! Ambitious!! The combo appeared safe with no clear ⬆️ skin, liver or neuro tox. pCRs in 6 downstaging in 9. The R3 is enrolling globally
Annals of Oncology (@annals_oncology) 's Twitter Profile Photo

In Annals of Oncology, investigators report on a clinico-genomic analyses of 1817 KRAS-mutated lung 🫁 adenocarcinomas, shedding light on genomic alterations 🧬 associated with outcome, towards a clinico-genomic risk stratification annalsofoncology.org/article/S0923-… #LCSM Dana-Farber

FabriceAndre (@fandremd) 's Twitter Profile Photo

Perception of cancer by pts is based on organ-of-origin without mechanistic consideration. Franzoi Maria Alice et al explain why cancer representations should evolve toward comprehensive portraits that include biology. This is a task of the IHU Prism Center annalsofoncology.org/article/S0923-…

Perception of cancer by pts is based on organ-of-origin without mechanistic consideration. <a href="/AliceFranzoi/">Franzoi Maria Alice</a> et al explain why  cancer representations should evolve toward comprehensive portraits that include biology. This is a task of the IHU <a href="/PrismCenter/">Prism Center</a>  annalsofoncology.org/article/S0923-…
Annals of Oncology (@annals_oncology) 's Twitter Profile Photo

Osteosarcoma remains a disease with an unmet therapeutic need and imperfect risk stratification biomarkers. In Annals of Oncology, samuel abbou and coll. report on ctDNA quantification using lpWGS as a prognostic biomarker in the OS2006 phase 3 trial annalsofoncology.org/article/S0923-…