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A couple of days back we celebrated Rare Disease Day. Come watch this video with many of our aHUS friends. youtube.com/embed/Nco4o30z…

RT aHUS Alliance Action: Why a #2016aHUSpoll?To gain data & insight on #aHUS issues ow.ly/YR8JK

Breaking news – the aHUS Alliance poll just launched on Monday, with 64% of respondents so far are adults. ahusallianceaction.org/survey/

Calling all caregivers to provide info & insights about the world’s pediatric patients! ahusallianceaction.org/survey/

First use of Eculizumab in India. For a boy who was a US citizen and was in India. Some very pertinent points raised ow.ly/10jjTT

RT Complement Kidney TMA UK: aHUS Alliance Action how much donated by all aHUS volunteers in time between £200,000 - £500,000 x.com/rarediseasessa…

aHUS Global Survey – Participate Today, ends 15 April atypicalhus.ning.com/profiles/blogs…

RT aHUS Alliance Action Paciente encuesta mundial para informar#SHUa#research yla política sanitaria.Encuesta en español ow.ly/YR8JK

#Shua plus que quelques jours pour participer à la grande enquête réalisée par l'aHUS Alliance. Clôture le 15/04 kamal54.typeform.com/to/mZ4EUK

RT aHUS Alliance Action: 患者ow.ly/YR8JKのニーズを学ぶためのグローバル調査では、4月15日に閉じ #非典型溶血性尿毒症症候群 #奇病

RT aHUS Alliance Action: #SEU Sondaggio globale per imparare le esigenze dei pazienti ow.ly/YR8JK, chiude 15aprile # malattierenali

Глобальное обследование, чтобы узнать потребности пациентов. ow.ly/YR8JK дней, в настоящее время до 15 апреля aHUSRussia #почка

enquête #SHUa mondial pour apprendre les besoins des patients. ow.ly/YR8JK jours, ferme 15 Avril shuabelgique SHUa France

RT RareConnect: 2016 global #aHUS Poll, translated into 6 languages: ahusallianceaction.org/survey/ Updates on Twitter: @aHUSallianceAct

Last day today for the 2016 aHUS Global Survey. Make your voice heard! Click here: ahusallianceaction.org/survey/

Ring out the bell the aHUS Global Voice Survey ends to today | aHUS UK ahusuk.org/ring-out-the-b…

Eculizumab makes a guest appearance in India! | Atypical HUS India ow.ly/4ngRKD

This event is unmissable. Please block your calendars! ow.ly/5vwA300e4qJ

Rare Connect Webinar on #aHUSPoll2016 results. Register NOW! ow.ly/M3EP300kkrt

Visit the new aHUS Global Site, serving as a patient organization portal for aHUS Information, News & Insights