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Anuja Java, MD (she/her) Lilian Palma🇧🇷 Complement Masters: aHUS 2025 in Tokyo, Japan Excellent recap of day 1, by the one and unique Anuja Java, MD (she/her)! #TMA #aHUS #complement Lilian Palma🇧🇷 Enrique Morales Alexion AstraZeneca

Excellent talk by Lilian Palma🇧🇷 highlighting the critical need for early diagnosis and timely initiation of treatment at the Complement Masters: aHUS 2025 at Tokyo!!!

May is Mental Health Awareness Month! Our #aHUS24Sept project focused on the theme of #MentalHealth within our #raredisease community bit.ly/2024aHUS24Sept Atypical HUS is challenging and stressful for patients & their families. #aHUS #PatientExperience #SHUa #SEU

Atypical hemolytic uremic syndrome (aHUS) is one of 150+ rare kidney diseases - often silent and hard to diagnose. Symptoms may appear only after serious damage. Early detection is key to protecting kidney function. 🔎 worldkidneyday.org/2025-campaign/ #WorldKidneyDay #AreYourKidneysOK

#Pharma News: SanegeneBio sanegenebio.com/98/192 Targeting complement factor B, #siRNA drug candidate SGB-3383 gained #clinicaltrial approval from China’s Center for Drug Evaluation for treatment of #complement-mediated #kidney diseases, to include #IgAN, C3G, C-MPGN & #aHUS.

Proposed strategies & ‘Call to Action’ for int’l collaboration re pediatric #KRT: link.springer.com/article/10.100… “Acute kidney injury (#AKI) disproportionately impacts children in low- and middle-income countries (LMICs), where up to 85% of AKI cases occur.” #dialysis #nephrology

On the changing tides of aHUS information & support for atypical HUS patients and their families ahusallianceaction.org/e-sources-for-… A look at current flow & 'next wave' issues for advocates, stakeholders, and those with this rare disease. #aHUS #nomenclature #PatientExperience #caregivers

Insightful new publication on the impact and burdens that affect pediatric patients & their families, to include quality of life issues pmc.ncbi.nlm.nih.gov/articles/PMC11… #raredisease #PatientExperience #QoL #FamilyCaregivers

Young man with a history of #aHUS (CFH R1-R3) had retinal detachment & #ischemia found during routine #ophthalmological exam, part of a systemic review following a hypertensive crisis during a respiratory infection. assets.cureus.com/uploads/case_r… #extrarenal

Plans for a review across databases to "comprehensively evaluate the efficacy and safety of novel #complement inhibitors in managing aHUS." pmc.ncbi.nlm.nih.gov/articles/PMC12… Understanding effectiveness of emerging therapeutic agents is vital for optimal patient outcomes. #aHUS #drugs

Will PLASMIC scores, developed to identify #TTP patients, have utility to diagnosis atypical HUS (#aHUS) which also is a syndrome that presents with #TMA? pmc.ncbi.nlm.nih.gov/articles/PMC12… N= 94 aHUS patients from #eculizumab & #ravulizumab #clinicaltrials. #complement

Revising atypical HUS nomenclature: Why not start with #Pregnancy Related #TMA (pa-TMA)? ahusallianceaction.org/pregnancy-asso… Updated, mechanistic terminology would improve diagnostic precision, guide targeted therapies & reduce confusion with other TMAs. #aHUS Richard Burwick, MD, MPH Anuja Java, MD (she/her)

aHUS Alliance Action Anuja Java, MD (she/her) I agree Pregnancy-associated TMA is an important place to start! I think if we can reach consensus on what truly differentiates PA-TMA due to HELLP vs PA-TMA due to aHUS, then we can start to reduce confusion and hopefully move forward more effectively.

Greetings from Vienna! We’re proud to be attending the 62nd European Renal Association [ERA - European Renal Association] Congress where we will be showcasing our latest research in atypical haemolytic uraemic syndrome (#aHUS) and immunoglobulin A nephropathy (#IgAN).

Atypical haemolytic uraemic syndrome (#aHUS) is a rare, progressive, chronic disease with relapses. It’s a type of thrombotic microangiopathy, a group of severe and potentially life-threatening rare disorders that cause blood clots and damage to small blood vessels.

⚠️Expanded criteria living donors A FC by Roger Alabau 📌Despite an increase in deceased donation, there is still a need to increase kidney transplantations as the waiting list continues to grow📈 ⚠️The acceptance of expanded criteria living kidney donors (LKD) could improve

3/ In aHUS sC5b-9 under C5 inhibition predicts relapse after withdrawal #ERA25

During game changers in diagnosis and treatment of complement-mediated kidney disease, Fadi Fakhuri addressing a philosophical question: 🤔Why do we need so many different drugs for complement inhibition? #ERA25

Atypical HUS in India: "Fifty-seven patients (mean age: 12.5 ± 4.9 years; 63% males) were analyzed. Among them, 33 (57.9%) tested positive for anti-CFH antibodies and eight presented postpartum" pmc.ncbi.nlm.nih.gov/articles/PMC12… Anti-CFH antibody positive vs negative, long-term outcomes

Eid al-Adha Mubarak - Wishing people peace, health, and cherished moments with family & friends.