Complement Kidney TMA UK (@ahusukvoice) 's Twitter Profile
Complement Kidney TMA UK

@ahusukvoice

Independent news and views about complement mediated kidney thrombotic microangiopathy by world leading patient advocate.

ID: 1145244132

linkhttp://www.ahusuk.org calendar_today03-02-2013 14:02:43

4,4K Tweet

840 Followers

537 Following

aHUS Alliance Action (@ahusallianceact) 's Twitter Profile Photo

DYK that there are multiple patient registries for the #raredisease atypical HUS? ahusallianceaction.org/registries-for… Our look at 4 #aHUS registries. #cmTMA #complement #primaryTMA #HUS

Complement Kidney TMA UK (@ahusukvoice) 's Twitter Profile Photo

Is there a patient decision aid to help with the discussion about discontinuing complement inhibitor treatment?. Only one exists aHUS Alliance Action ahusallianceaction.org/is-there-a-pda…

aHUS Alliance Action (@ahusallianceact) 's Twitter Profile Photo

A top question among aHUS families: "What are the chances that my siblings/children will have atypical HUS? Does it run in families?" ahusallianceaction.org/percentages-pr… Some mathematical pondering of #aHUS statistics.

Anuja Java, MD (she/her) (@anuja_java) 's Twitter Profile Photo

Such a joy to meet and listen to my friend Johann Morelle discussing pivotal trials and real world data on aHUS treatment at the Complement Masters aHUS 2025 at Tokyo!!!

Such a joy to meet and listen to my friend <a href="/JohannMorelle/">Johann Morelle</a> discussing pivotal trials and real world data on aHUS treatment at the Complement Masters aHUS 2025 at Tokyo!!!
aHUS Alliance Action (@ahusallianceact) 's Twitter Profile Photo

On the changing tides of aHUS information & support for atypical HUS patients and their families ahusallianceaction.org/e-sources-for-… A look at current flow & 'next wave' issues for advocates, stakeholders, and those with this rare disease. #aHUS #nomenclature #PatientExperience #caregivers

On the changing tides of aHUS information &amp; support for atypical HUS patients and their families
ahusallianceaction.org/e-sources-for-… A look at current flow &amp; 'next wave' issues for advocates, stakeholders, and those with this rare disease.  #aHUS #nomenclature #PatientExperience #caregivers
Richard Burwick, MD, MPH (@richardburwick) 's Twitter Profile Photo

Please tune in to our new Podcast on Thrombotic Microangiopathy in Pregnancy. Thank you to ASH and Heme Talks for organizing this educational session with my good friend and TMA expert Shruti Chaturvedi ASH #HELLP #aHUS #TTP

aHUS Alliance Action (@ahusallianceact) 's Twitter Profile Photo

Atypical HUS & others - pure #aHUS & advocacy needs. ahusallianceaction.org/advocacy-for-a… On the Three Circles: Kidney Failure, TMA, and Uncontrolled #Complement, and their interplay.

Complement Kidney TMA UK (@ahusukvoice) 's Twitter Profile Photo

The first ever aHUS research study patient cohort Conrad Von Gasser’s 1955 article translated ahusallianceaction.org/the-first-ever…

Atypical HUS India (@ahusindia) 's Twitter Profile Photo

We can hardly wait for the first ever webinar we are organising for #aHUS patients from #India. Have you registered yet? If not, please use the QR code in the image. Hoping to see you there on Monday at 4:30 PM IST. NephroPlus Vasundhara Raghavan Kidney Warriors Foundation aHUS Alliance Action Complement Kidney TMA UK

We can hardly wait for the first ever webinar we are organising for #aHUS patients from #India. Have you registered yet? If not, please use the QR code in the image. Hoping to see you there on Monday at 4:30 PM IST. <a href="/nephroplus/">NephroPlus</a> <a href="/Vasuragh/">Vasundhara Raghavan</a> <a href="/KWF201217/">Kidney Warriors Foundation</a> <a href="/aHUSAllianceAct/">aHUS Alliance Action</a> <a href="/aHUSUKvoice/">Complement Kidney TMA UK</a>
Atypical HUS India (@ahusindia) 's Twitter Profile Photo

Only a day to go for the first ever webinar for #aHUS patients in #India. Come, join us to learn more about the disease in as simple as manner as possible. Listen to the experts and also a patient! Register asap. NephroPlus Vasundhara Raghavan Kidney Warriors Foundation aHUS Alliance Action Complement Kidney TMA UK

Only a day to go for the first ever webinar for #aHUS patients in #India. Come, join us to learn more about the disease in as simple as manner as possible. Listen to the experts and also a patient! Register asap. <a href="/nephroplus/">NephroPlus</a> <a href="/Vasuragh/">Vasundhara Raghavan</a> <a href="/KWF201217/">Kidney Warriors Foundation</a> <a href="/aHUSAllianceAct/">aHUS Alliance Action</a> <a href="/aHUSUKvoice/">Complement Kidney TMA UK</a>
Complement Kidney TMA UK (@ahusukvoice) 's Twitter Profile Photo

Our treatment discontinuation model has gained much attention as the best patient advice aid on this vital #aHUS topic. aHUS Alliance Action ahusallianceaction.org/an-ahus-patien…

Complement Kidney TMA UK (@ahusukvoice) 's Twitter Profile Photo

India had its first patient conference. Read about what was discussed. #aHUS patients can gather together to support and progress treatment access. ahusallianceaction.org/india-first-pa…

Complement Kidney TMA UK (@ahusukvoice) 's Twitter Profile Photo

In the era of the complement inhibitor for a new #aHUS patient what does it mean to be aHUS better. ahusallianceaction.org/ahus-better-it…