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#MarchForhATTR #DYK that March is amyloidosis awareness month? Join us and Amyloidosis in coming together to bring #AmyloidosisAwareness this month. bit.ly/3bpXRbg

Join us in supporting Light the Night for Amyloidosis, Amyloidosis's annual campaign to draw attention to amyloidosis symptoms and diagnosis in recognition of #Amyloidosis Awareness Month: amyloidosis.org/2021-light-the…

We are proud to support #InternationalWomensDay - a global day celebrating the social, economic, cultural & political achievements of women. As part of the #ChooseToChallenge campaign, we commit ourselves to creating a fair and balanced workplace where women can thrive. #IWD2021

FCS is a lifelong condition, and the age at which patients first show symptoms and the types they experience may vary. This can make receiving a diagnosis difficult. For Aaron, a diagnosis didn't come until age 39 - more than 30 years after his first symptoms appeared.

Living with a #raredisease isn't easy. Last month, EURORDIS-Rare Diseases Europe shared a new report that revealed first-hand feedback from patients and families living with a rare disease. Thanks for raising your voice and giving us insights into your quality of care. eurordis.org/content/eurord…

A genetic test can help your family determine whether or not they carry a mutation in the TTR gene associated with hATTR #amyloidosis, and help determine their own risk for the disease. The #hATTRCompass program can help. Learn more: hattrcompass.com

Highlighting the hereditary nature of hATTR #amyloidosis can help your family understand their risk for the disease. Download the #hATTRCompass family tree that tracks amyloidosis history and symptoms within your family at hattrcompass.com/wp-content/upl…

Living with FCS? Sheltering at home? Use the FREE FCS CareBook kit to prepare for both routine medical office visits and emergency trips to the ER. Download by visiting FCS Focus at bit.ly/394NKHJ

#MarchForhATTR #DYK that one of the mutations for #hATTR #amyloidosis can be traced back to Northwest Ireland? On #AmyloidosisAwareness and #IrishAmerican Heritage month, visit our website to learn more about how we can build a community of support together for this rare disease

Alabama Governor Kay Ivey recently signed a proclamation to shine a light on #amyloidosis for #AmyloidosisAwarenessMonth thanks in part to the inspiring work of patient advocates Steve, Stacy, Amyloidosis and AL state rep Russell Bedsole. Read more: wvtm13.com/article/govern…

Yang first began experiencing symptoms at three months old. He had a rigid body, refused to eat and was incessantly crying - looking back, he considers this to likely be his first pancreatitis episode. Read the rest of Yang's story on FCS Focus: fcsfocus.com/fcs-community/…

Symptoms of hATTR #amyloidosis involve multiple tissues and organs and can seem unrelated. Ocular symptoms are common, and can create visual changes including eyelid inflammation. Learn more about #hATTR signs and symptoms at: hattrchangethecourse.com/symptoms-of-ha…

#MarchForhATTR Like a four-leaf clover, #hATTR #amyloidosis is rare and hard to spot. Head to our website to learn more about the red-flag symptoms that can point to this rare disease. bit.ly/3cIWfdP

Watch how the TTR protein splits into a monomer protein that then forms amyloid fibrils. These fibrils can deposit into various organs and tissues of the body to cause #polyneuropathy and other symptoms. Learn more at: bit.ly/2Ph38ee #AmyloidosisAwarenessMonth

Living with a #raredisease like #hATTR amyloidosis requires support for patients and loved ones. In recognition of #AmyloidosisAwarenessMonth and every #AmyloidosisWarrior, here are some resources to help build your community of care: hattrchangethecourse.com/hattr-amyloido…

Nicole's symptoms began while she was pregnant - regular abdominal pain, nausea, fatigue & brain fog. In 2012 she was diagnosed with familial chylomicronemia syndrome after searching the internet & connecting with a lipid specialist. Find more stories at fcsfocus.com/fcs-community/…

March 31st marks annual #WorldLipodystrophyDay - a global awareness day to build community support and increase recognition of #lipodystrophy and the patients and families living with this serious and rare disease. #Care4Lipodystrophy2021 Lipodystrophy UK Lipodystrophy United

Soon, we will be retiring this page. Thank you for following us and we look forward to seeing you on the Ionis page for additional news regarding our programs. You can find more information at ionispharma.com.

Akcea Therapeutics is now a wholly owned subsidiary of Ionis Pharmaceuticals, the leader in #RNA therapeutics. We will soon be retiring this account. To continue to receive news and updates, follow us at Ionis.