Alexis (@alexis___me) 's Twitter Profile
Alexis

@alexis___me

Come find me on instagram instagram.com/alexis___me/ and Blue Sky bsky.app/profile/alexis…

ID: 1592842054899482625

linkhttps://linktr.ee/alexisme calendar_today16-11-2022 11:29:20

950 Tweet

644 Followers

246 Following

Elisabeth Klaar | Oak Tree Studio (@lammas_leaves) 's Twitter Profile Photo

Scarcely believable actions today by the @meassociation Point your lawyers at an ACTUAL enemy - an NHS Trust abusing or neglecting patients perhaps? NOT at calm, patient and open patient advocate Peter W 🇺🇦 who is the subject of this outrageous threat.

Peter W 🇺🇦 (@mediumwhite) 's Twitter Profile Photo

In all the years of medical harm caused to #pwME, I have never heard the ME Association discuss legal action against perpetrators, even after the 2021 NICE guideline. So I find it "notable" to see the MEA is willing to consider legal action in response to legitimate questions.

Alexis (@alexis___me) 's Twitter Profile Photo

There is a huge missing element to this flowchart ME Association under what can primary care team do - provide symptomatic relief and treatments for symptoms. This chart is a good start but feels like it hasn't been looked at by any patients? meassociation.org.uk/literature/ite…

There is a huge missing element to this flowchart <a href="/MEAssociation/">ME Association</a> under what can primary care team do - provide symptomatic relief and treatments for symptoms. 

This chart is a good start but feels like it hasn't been looked at by any patients? meassociation.org.uk/literature/ite…
Alexis (@alexis___me) 's Twitter Profile Photo

Great to see the summary of responses to the consultation published today thank you Andrew Gwynne MP for publishing these giving voice to the patients and carers affected by ME. Do we have an ETA for the action plan too?

Alexis (@alexis___me) 's Twitter Profile Photo

Thank you The Times and The Sunday Times for your journalism on ME and long covid. There are 1.9 million people in the UK grateful to see our story told and voices been heard

Alexis (@alexis___me) 's Twitter Profile Photo

Please share & sign this petition to help Line, a 26 year old woman in Denmark who has Very Severe ME & is being threatened with psychiatric detention. She is being forced to take anti-psychotic meds to treat her "delusions" of ME symptoms. bit.ly/linepetition

Please share &amp; sign this petition to help Line, a 26 year old woman in Denmark who has Very Severe ME &amp; is being threatened with psychiatric detention. She is being forced to take anti-psychotic meds to treat her "delusions" of ME symptoms. bit.ly/linepetition
Adam (@abrokenbattery) 's Twitter Profile Photo

Clip from BBC Look North - Dr Alexis Gilbert (Alexis) who is almost entirely bed bound with #LongCovid and has been diagnosed with #MECFS feels "abandoned by the government... Its taken away all my dignity, all my joy its been devastating".

Adam (@abrokenbattery) 's Twitter Profile Photo

Full segment (3 mins) BBC Look North Dr Alexis Gilbert who has #LongCovid and has also been diagnosed with #MECFS youtu.be/M4e-6w16On0?si… BBC article bbc.co.uk/news/articles/…

Alexis (@alexis___me) 's Twitter Profile Photo

This will be my last post on X. I won't delete for now so people can find me/see past tweets but I can't stay here with Musk owning the platform but please come find me on instagram and bluesy if you would like to connect: linktr.ee/alexisme

Herpes Virus Reactivating in My Bones. (@thegodofpleasur) 's Twitter Profile Photo

Channel 4 News Will you now be following this up with an investigation into the long history of medical neglect, incompetence, scientific malfeasance and fraud, upon which a cabal of well-known Psychiatrists built very lucrative and decorated careers? A thorough Parliamentary inquiry is needed.