Alexis
@alexis___me
Come find me on instagram instagram.com/alexis___me/ and Blue Sky bsky.app/profile/alexis…
ID: 1592842054899482625
https://linktr.ee/alexisme 16-11-2022 11:29:20
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Here is an email I received today from the ME Association. I am stunned. Please share.
Scarcely believable actions today by the @meassociation Point your lawyers at an ACTUAL enemy - an NHS Trust abusing or neglecting patients perhaps? NOT at calm, patient and open patient advocate Peter W 🇺🇦 who is the subject of this outrageous threat.
In all the years of medical harm caused to #pwME, I have never heard the ME Association discuss legal action against perpetrators, even after the 2021 NICE guideline. So I find it "notable" to see the MEA is willing to consider legal action in response to legitimate questions.
There is a huge missing element to this flowchart ME Association under what can primary care team do - provide symptomatic relief and treatments for symptoms. This chart is a good start but feels like it hasn't been looked at by any patients? meassociation.org.uk/literature/ite…
Great to see the summary of responses to the consultation published today thank you Andrew Gwynne MP for publishing these giving voice to the patients and carers affected by ME. Do we have an ETA for the action plan too?
Thank you The Times and The Sunday Times for your journalism on ME and long covid. There are 1.9 million people in the UK grateful to see our story told and voices been heard
Please Department of Health and Social Care DHSC Media Centre - this is about my future and the future of millions of UK citizens who want to get back to their lives, the jobs and their families. Keir Starmer UK Prime Minister BBC News (UK) BBC Yorkshire #MEAction Network UK Action for ME #ThereForME
Channel 4 News Will you now be following this up with an investigation into the long history of medical neglect, incompetence, scientific malfeasance and fraud, upon which a cabal of well-known Psychiatrists built very lucrative and decorated careers? A thorough Parliamentary inquiry is needed.