Allison Jauré (@allisonjaure) 's Twitter Profile
Allison Jauré

@allisonjaure

@ The University of Sydney & CKR // patient-centred research to improve patient-important outcomes

ID: 525966232

calendar_today16-03-2012 02:45:02

1,1K Tweet

1,1K Followers

919 Following

Australian Indigenous HealthInfoNet (@healthinfonet) 's Twitter Profile Photo

The CARI Guidelines working group for the Management of Chronic Kidney Disease in Indigenous Australians project are seeking individuals to share their lived experience of #kidneydisease. Follow the link to register interest: 🔗 bit.ly/3Cp8wi5

The <a href="/cariguidelines/">CARI Guidelines</a>  working group for the Management of Chronic Kidney Disease in Indigenous Australians project are seeking individuals to share their lived experience of #kidneydisease. 
Follow the link to register interest: 🔗 bit.ly/3Cp8wi5
Nicki Scholes (@scholes_nicki) 's Twitter Profile Photo

So excited to see my thesis all bound, but think my dad is more excited. None of this would have been possible without my #livingdonor Allison Jauré Jonathan Craig Dr Martin Howell BEATCKD NHMRC Sydney Health and the amazing support of so many rural people withCKF

So excited to see my thesis all bound, but think my dad is more excited. None of this would have been possible without my #livingdonor <a href="/allisonjaure/">Allison Jauré</a> <a href="/JonathanCCraig/">Jonathan Craig</a> Dr Martin Howell <a href="/BEAT_CKD/">BEATCKD</a> <a href="/nhmrc/">NHMRC</a>  <a href="/syd_health/">Sydney Health</a> and the amazing support of so many rural people withCKF
Amanda Dominello (@dominelloamanda) 's Twitter Profile Photo

Sharing a personal story is courageous, doing so with such humility and candour is remarkable Jen @PlasticSoul05. Thank you for leading the way #patientsincluded #ANZSNASM

CARI Guidelines (@cariguidelines) 's Twitter Profile Photo

Over 4 years of nationwide collaboration, driven by community voices and needs. "Recommendations for Culturally Safe Kidney Care for First Nations Australians" launched and celebrated in both Sydney & Adelaide. Kidney Health @ANZSNasm #ANZSNASM More at – bitly.ws/vv4S

Anita van Zwieten (@anitavanzwieten) 's Twitter Profile Photo

Quality of life is a critically important outcome. Work from Kids with CKD led by Chandana Guha — children on dialysis experience substantially reduced quality of life but seem to experience improvement over time — likely linked to transplantation #ANZSNASM CKR Germaine Wong

Quality of life is a critically important outcome. Work from <a href="/KidsWithCKD/">Kids with CKD</a> led by <a href="/ChandanaGuha/">Chandana Guha</a> — children on dialysis experience substantially reduced quality of life but seem to experience improvement over time — likely linked to transplantation #ANZSNASM <a href="/CKRRenal/">CKR</a> <a href="/germjacq/">Germaine Wong</a>
BEATCKD (@beat_ckd) 's Twitter Profile Photo

CRE-PACT has officially launched! Better Evidence and Translation – Chronic Kidney Disease (BEAT-CKD) Centre of Research Excellence – Partnering with Patients with Chronic Kidney Disease to Transform Care and Outcomes (CRE-PACT) officially launched on the 14th of November 2022.

CRE-PACT has officially launched! 
Better Evidence and Translation – Chronic Kidney Disease (BEAT-CKD) Centre of Research Excellence – Partnering with Patients with Chronic Kidney Disease to Transform Care and Outcomes (CRE-PACT) officially launched on the 14th of November 2022.
Anita van Zwieten (@anitavanzwieten) 's Twitter Profile Photo

#lifeparticipation is a critically important outcome for trials in #ckd . Great to hear qual evidence on the patient perspective on life participation in #ckd from Nicki Scholes Andrea Matus G SONG at #dnt2023 Allison Jauré Jonathan Craig

#lifeparticipation is a critically important outcome for trials in #ckd . Great to hear qual evidence on the patient perspective on life participation in #ckd from <a href="/scholes_nicki/">Nicki Scholes</a> <a href="/AndreaMatusGon/">Andrea Matus G</a> <a href="/song_initiative/">SONG</a> at #dnt2023 <a href="/allisonjaure/">Allison Jauré</a> <a href="/JonathanCCraig/">Jonathan Craig</a>