
Allison Jauré
@allisonjaure
@ The University of Sydney & CKR // patient-centred research to improve patient-important outcomes
ID: 525966232
16-03-2012 02:45:02
1,1K Tweet
1,1K Followers
919 Following

Congratulations to the ACTA inaugural Emerging Leader Investigator Awardees including our very own Andrea Viecelli ACTA: Australian Clinical Trials Alliance #ACTAASM21


The CARI Guidelines working group for the Management of Chronic Kidney Disease in Indigenous Australians project are seeking individuals to share their lived experience of #kidneydisease. Follow the link to register interest: 🔗 bit.ly/3Cp8wi5


Powerful talk on the power and impact of #patientinvolvement in research by Nicki Scholes // Sociedad Chilena de Nefrología #congresonefro2021 CARI Guidelines Andrea Matus G eduardo lorca Dani gallego Jonathan Craig NIHR Involvement Amanda Dominello Chandana Guha @yakobia


Great discussion on est. a core outcome measure for infection in kidney transplant recipients Elmi Mulller Andrea Viecelli Karine Manera Andrea Matus G Jonathan Craig Matty Hempstalk Nicki Scholes Chandana Guha Simon Carter Brooke Huuskes David W Johnson Christoph Wanner


Well done Nicki Scholes … and happy bday 🥳🥳😊!!

From our Highly Cited collection: Patient and Caregiver Priorities for Outcomes in CKD: A Multinational Nominal Group Technique Study bit.ly/2XYl1z5 (FREE temporarily) ArmandoTeixeiraPinto David C Wheeler Dave White Martin Wilkie Wolfgang C. Winkelmayer Allison Jauré #CKD


So excited to see my thesis all bound, but think my dad is more excited. None of this would have been possible without my #livingdonor Allison Jauré Jonathan Craig Dr Martin Howell BEATCKD NHMRC Sydney Health and the amazing support of so many rural people withCKF



Over 4 years of nationwide collaboration, driven by community voices and needs. "Recommendations for Culturally Safe Kidney Care for First Nations Australians" launched and celebrated in both Sydney & Adelaide. Kidney Health @ANZSNasm #ANZSNASM More at – bitly.ws/vv4S

Quality of life is a critically important outcome. Work from Kids with CKD led by Chandana Guha — children on dialysis experience substantially reduced quality of life but seem to experience improvement over time — likely linked to transplantation #ANZSNASM CKR Germaine Wong


The long journey of community consultations underpinning the inaugural CARI Guidelines for #kidney care in #FirstNations peoples in Australia Rhanee Lester AKction Kidney Health Dr Jaqui Hughes PhD


Powerful plenary talk Nicki Scholes ANZSN #anzsnasm systems-response urgently needed to address inequities and barriers for the rural/ remote community Jonathan Craig Anita van Zwieten kass widders Siah Kim Shilpa Jesudason Anna Francis RathikaKrish David Tunnicliffe CARI Guidelines


The inspirational, beautiful & amazing Carmel Hawley sharing some nuggets of wisdom from her epic journey Yeoungjee Cho Andrea Viecelli David W Johnson RathikaKrish @dialysisbloke Jonathan Craig Shilpa Jesudason AKTN Donna Reidlinger Anita van Zwieten Germaine Wong #anzsnasmbrookbr




#lifeparticipation is a critically important outcome for trials in #ckd . Great to hear qual evidence on the patient perspective on life participation in #ckd from Nicki Scholes Andrea Matus G SONG at #dnt2023 Allison Jauré Jonathan Craig


Cancer screening survey Have your say about cancer screening in transplant candidates and recipients! qualtrics.flinders.edu.au/jfe/form/SV_8B… Allison Jauré Jonathan Craig Billie Bonevski Anita van Zwieten Nicki Scholes Naoka Murakami Chandana Guha Kenar Jhaveri Greg Knoll

Thank you to all contributors to this paper which we hope can aid trialists in standardising CV outcomes in dialysis trials Allison Jauré Kenneth Mahaffey David C Wheeler Fergus Caskey James Burton Angela Wang Vivekanand Jha | विवेकानन्द झा Dr. Chris Defilippi authors.elsevier.com/a/1gzwCJOcprVQi

Allison Jauré Siah Kim Nicole Evangelidis Jonathan Craig CKR Editorial by Caroline Tait and Marcello Tonelli: The Importance of Indigenous Leadership for Reducing Inequities in the Treatment of Kidney Failure bit.ly/3G2qKKR (FREE) UCalgaryMedicine


Increible insights from #spanish speaking patients/family re life participation in ckd at #ISNWCN muchos gracias! World Congress of Nephrology Brooke Huuskes Andrea Matus G Lilia Cervantes Allison Jauré adeera levin Ana Malvar Germaine Wong Andrea Viecelli Chandana Guha
