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Heading to Parliament to meet our MP’s to talk about how important early access to Givinostat is for our UK Duchenne community. #TimeIsMuscle

Huge thank you to The LTDA for all of their help today! #thebestsupporters #timeismuscle

We sat down with Health Secretary, the Rt Hon Wes Streeting MP to discuss the challenges the Duchenne community faces right now when he attended an event hosted by Duchenne UK See more: Speaking truth to power: an extraordinary update on our #Time is Muscle campaign | Duchenne UK

We're delighted to share our End of Year Research Report, providing an update on all active and completed projects funded by Joining Jack alongside our partners and the national patient charity Duchenne UK joiningjack.org/what-we-do/res… #thebestsupporters #TeamJJ #Makeadifference 👉👈

Loads of luck to Richard Askam who leaves BBC North West after 25 years. Richard was incredibly supportive of Team JJ and the Duchenne community and covered and completed our 1st Develop UK Wigan Bike Ride in 2017 and came back in 2019 to ride the 50 mile main route again! #thebestsupprters 👉👈

On Rare Disease Day 2025, the latest on our Time is Muscle Campaign in the The Independent - Children denied access to life-changing drug due to paperwork, say families | The Independent #timeismuscle

Good luck Ellis Palmer 📻 🙌

This week we met Wes Streeting to discuss the challenges we are facing implementing the Givinostat EAP. Our Duchenne community needed access in November when the scheme opened! #TimeIsMuscle Duchenne UK duchenneuk.org/wes-streeting-…

Our co-founder Alex is presenting at the annual DMD Care conference today. Alex has dedicated the past four years to ensuring ALL Duchenne patients in the UK get access to the best care! Duchenne UK #TeamJJ #DMDCare #MakeADifference 👉👈

Huge thanks to the ladies and men's teams at Worsley Golf Club who chose Joining Jack and Duchenne UK as their Charity of the Year and raised an incredible £9,110! Our co-founder Alex caught up with former captains Carole Speakman and Sir John Jones #thebestsupporters #TeamJJ 👉👈

This morning our co founder Alex, main man Jack alongside Jill & Jack Binns took part in some filming . They spoke about the Time is Muscle campaign. You can see the footage this evening at 6pm on ITV Granada Reports. Duchenne UK #TimeisMuscle #MakeADifference #EndDuchenne

Our piece on ITV Granada Reports Givinostat was made available through an Early Access Program in November. It’s been licensed. 6 months on patients are still waiting for access to a drug proven to slow the progression of the disease Duchenne UK 🏥 Alder Hey 💙 #TimeIsMuscle

Huge thank you to our lovely friend and supporter James Hooton donating a terrific £2,000 in memory of his wife Sylvia, and son Stephen, a fellow Duchenne warrior. Stephen lost his battle with DMD 35 years ago aged just 19 #thebestsupporters #TeamJJ #makeadifference 👉👈

Tomorrow Duchenne UK will be on BBC Breakfast at 8:20am talking about our #timeismuscle campaign. Please watch Wes Streeting Lisa Nandy MP You can help us end the horrific postcode lottery of access to this treatment!

Huge congratulations to the legendary Sir Billy Boston being made a Knight Commander of the Order of the British Empire Wigan Warriors 🍒⚪️ greatest ever player becomes the first RL player to receive a knighthood at Buckingham Palace today #rugbyfamily #TeamJJ #makeadifference 📷📷

We're thrilled to confirm this September's 13th HW Moon Toyota HW Moon Toyota Wigan10k is set to smash £1/2M fundraising milestone for Joining Jack! Huge thanks to everyone who has made this possible - can't wait to see you on the startline! ❤ #thebeststupporters #TeamJJ #makeadifference 👉👈

Congratulations Jack on winning the Creative Arts Leadership Award Wigan & Leigh College What a great end to the academic year!

Can't wait for Develop UK Golf Day for Team JJ with a Ryder Cup theme and a host of legends from rugby league and union Taking place on September 11 at Manchester Golf Club teams of 3 will be allocated a rugby legend - email [email protected] #rydercuprugby #TeamJJ 👉👈

A massive thank you to the terrific team at MiRiDERuk supporting Joining Jack at their 5th birthday celebrations today A raffle to win a MiRiDER bike drawn by Wigan Warriors 🍒⚪️ boss Matt Peet raised an amazing £1110 for Team JJ ❤ #thebestsupporters #TeamJJ #makeadifference 👉👈

Massive congratulations to our awesome ambassador and lovely friend Leigh Leopards Joshua Charnley scoring his 250th try and STILL remembering to do a JJ salute for his mate! ❤️ #rugbyfamily #thebestsupporters #TeamJJ #MakeADifference 👉👈