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Two-year-old has only 15 days of medicines left Parents of Aakriti Singh, who has rare spinal condition, left in limbo following SC stay on a Delhi HC order allowing govt aid for special medicines mid-day.com/mumbai/mumbai-… Mid Day; Alpana Sharma

Akriti & many children Cure SMA Foundation of India 🇮🇳 r sufferin frm this gruesome disease , despite an approved treatment available in India our children r dying as these treatment r not affordable #Risdiplam #Zolgensma can save lives Devendra Fadnavis PMO India Narendra Modi Ministry of Health Jagat Prakash Nadda

People with #SpinalMuscularAtrophy (SMA) in Tamil Nadu deserve equal access to life-saving treatments like #Risdiplam.We humbly request the M.K.Stalin Udhay to uphold Tamil legacy of inclusivity by ensuring justice for SMA இடைமறியாத நீதி, தமிழ்நாட்டின் அடையாளம்!

On this Republic Day, let us honor the spirit of our Constitution, which guarantees justice and equality for all citizens. For Indians with #SpinalMuscularAtrophy, time is a ticking bomb—every delay in accessing life-saving treatments like #Risdiplam costs precious lives.

HEALTHCARE FOR ALL! Let's celebrate our right to healthcare and request #UrgentTreatmentAccess4SMA in India! With collective action, we can create a brighter future Ministry of Health President of India #right2life #right2health #curesmaindia #battleagainstSMA #acchedinkabayenge

Congratulations Dr Dinesh Pendharkar MD PhD FASCO Sir so heartening to see #PendharkarModel what you have demonstrated across states for last 10 years is now scaled across the country as district cancer care centre. A model which was recognised by Harvard Health as well Great initiative Jagat Prakash Nadda

Many thanks vinod kumar menon Mid Day 4 supportin rare disease community we Cure SMA Foundation of India 🇮🇳 hv been writin to Nirmala Sitharaman Ministry of Finance 4 GST exemption on #Risdiplam lifesavin drug4 SMA in India Narendra Modi Jagat Prakash Nadda Ministry of Health PMO India #BattleAgainstSMA mid-day.com/mumbai/mumbai-…

We Cure SMA Foundation of India 🇮🇳 r requestin Ministry of Health Ministry of Finance Nirmala Sitharaman PMO India 4 GSTexemption Thank vinod kumar menon Mid Day 4highlight d urgentneed #raredisease mid-day.com/mumbai/ mumbai-news/article/budget-2025-why-no-gst-relief-for-rare-disease-drugs-ask-parents-23477119

Join Us for the 2nd edition of #Aahvaan 2025: NGO-CSR Conclave! Day 1 is set to be power-packed with insightful discussions led by our esteemed guest speakers, sharing their expertise and perspectives on the theme. #Aahvaan2025 #CSRConclave #Leadership #CSR #NGO #Collaboration

Samay Raina The Indian SMA (Spinal Muscular Atrophy) community demands a public apology from u 4 hurting d sentiments of a parent n child battling this life threatening neuromuscular rare disease Ministry of Health Ministry of Social Justice & Empowerment, GOI Supreme Court of India Teena Thacker Vikas Dandekar Abhijit Majumder

On this Rare Disease Day, we honor the strength, resilience, and courage of all those living with Spinal Muscular Atrophy (SMA). Your journey is one of extraordinary determination, and your perseverance inspires hope and progress in the fight against rare diseases.

You are not alone—there is a community standing with you, advocating for better treatments, greater awareness, and a future where SMA no longer limits dreams. Together, we believe in breakthroughs, in support, and in the power of never giving up.

Today, we celebrate you—your courage, your spirit, and your unwavering fight. Keep shining, keep hoping, and keep pushing forward. 💙💜 #RareDiseaseDay #SMAStrong #BattleAgainstSMA Ministry of Health CDSCO_INDIA_INFO Ministry of Social Justice & Empowerment, GOI Roche Novartis India Biogen Scholar Rock

Gujarat's Shocking Drunk Driving Case

🎉 Mark your calendars for March 21, 2025 ! We are thrilled to announce the SMA Research & Technology Summit (SMArT)! 💡 Join experts, patient orgs & researchers for a day of knowledge sharing to advance SMA diagnostics, treatment & care! 🌟 Register now: bit.ly/3EQKYd3

Heartfelt thanks to Kerala Government | കേരള സർക്കാർ for pioneering SMA treatment in India! A pre-symptomatic baby received #Risdiplam medicine at just 2 weeks old, marking a historic milestone.Kudos to Dept. of Health & FW, Govt. of Kerala for their unwavering support to patients with SMA! #SMAawareness #KeralaHealthcare

Dr.Radha Rama Devi, Senior Geneticist, Dr.Giriraj Chandak, expert on Rare Diseases, CCMB GIRIRAJ R CHANDAK & our SMArt Warriors Pratyush n Anushka for joining us in this event. See you on 10 Aug 2025, 6AM in Gachibowli stadium to join the Run!!! #SMAAwareness #RunForCause #RunForSMA

#RunforSMA Proudly led by a Indian Coast Guard Veteran & Cure SMA Foundation of India 🇮🇳, the 3rd edition of #RunForSMA is happening on 10 Aug 2025 at Gachibowli Stadium, #Hyderabad. Join this Run of hope, purpose & awareness for Spinal Muscular Atrophy – a rare yet preventable genetic disorder.

Indian Coast Guard Cyberabad Police Telangana CMO Ministry of Health DGP TELANGANA POLICE रक्षा मंत्री कार्यालय/ RMO India Sanjay Seth Ministry of Defence, Government of India Ministry of Information and Broadcasting PIB India ANI Digital Heartfelt gratitude 2 Indian Coast Guard 4 coming forward 2 support ur cause of spreading awareness on early screening n prevention of #SpinalMuscularAtrophy thru #RunForSMA event on 10th Aug in #Hyderabad. V hope 2 have huge numbers n gathering 2 support,Cure SMA Foundation of India 🇮🇳 👍🙏.