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By signing up for the National ALS Registry, you will be sent notifications for clinical trials and studies that you may participate in. Learn how you can make a difference in the fight against ALS at ow.ly/5cbR50W5FeY

A Huge Win for ALS care in Nevada! Governor Governor Joe Lombardo has signed SB 292 into law, making affordable Medigap insurance available to people under 65 with ALS. This new law ensures that more people in Nevada can access the care they need without facing overwhelming medical

Thank you Senator Dick Durbin for sharing our statement calling on Congress to protect vital ALS Research during today's Senate Appropriations Committee hearing with Jay Bhattacharya, MD, PhD Bhattacharya. To find a cure, ALS research funding needs to increase, not decrease. Read our full

We applaud Rep. Cammack Press Office and Congressman Kevin Hern for reintroducing the Protecting Health Care for All Patients Act (H.R. 3864) and their dedication to advocating for individuals with disabilities. This bill that would ban the use of QALYs (quality-adjusted life year) in federal

ALS research depends on people living with ALS to join the National ALS Registry. Every individual can contribute to our understanding of the disease, its causes, and how to fight it. Join today and help us learn more about ALS cdc.gov/als/ALSJoinALS…

We are heartbroken by the violence in Minnesota and are keeping Senator John Hoffman and his wife in our thoughts as they recover from an apparent assassination attempt. Senator Hoffman has been a steadfast leader and ally to the ALS community, playing a pivotal role in securing

As we honor #FathersDay, Leslie shares her father’s ALS journey and the deep bond forged through love and caregiving. Leslie and her sister care for their dad, Orvil, who was diagnosed with ALS in 2024. Their story is one of resilience, grief, and purpose. als.org/blog/FathersDa…

Thanks to Eric Dane for sharing his ALS journey with Good Morning America and making sure others don’t feel alone in their ALS diagnosis. This is a devastating disease and he is bravely helping the world understand the challenges of living with ALS. We urgently need new

Today, we commemorate Juneteenth. At the ALS Association, our mission is to make ALS livable and cure it, for everyone, everywhere. ALS does not discriminate. It can affect anyone, at any time. We are committed to equity in care, access, and research for all communities.

We’re closer than ever to making ALS a livable disease. We are looking forward to continuing our conversations, Secretary Kennedy. Together, we can find a cure for ALS with continued NIH and CDC funding for research. Read our statement: bit.ly/ALS-Associatio… #EndALS

Big win for Texans! The #ChrisLarkinAct is now law—expanding access to affordable Medigap coverage for Texans with ALS. Huge thanks to Rep. Ryan Guillen, Chris & Cissy Larkin, and all #ALS advocates statewide. This is how we make ALS livable. #ALSAssociation #AdvocacyMatters #Medigap

When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als

Everyone’s journey with ALS is unique, and your story matters. Whether you’re a patient, caregiver, friend, or advocate, your story can inspire, connect, and raise awareness. Tell us how ALS has touched your life by visiting als.org/share-your-als…

86 years ago today, Lou Gehrig gave his "Luckiest Man" speech and brought international attention to #ALS. His legacy continues to raise #ALSAwareness and support in the search for a cure.

When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als

We have exciting news! Thanks to our generous sponsors, virtual registration for #ALSNexus is now FREE for people living with ALS and their caregivers! We're grateful for the support that makes this possible and hope you’ll join us. Register today to attend ALS Nexus:

While no two people living with ALS are alike or will experience the disease the same way, there’s a great deal of collective knowledge and wisdom to be shared by health care providers, people living with ALS, family members and caregivers. We want to support you throughout your

Thank you Dr. Marty Makary , for saying you'd love to see a cure for neurodegenerative diseases like ALS. We'd love to see that, too. Can we count on you to preserve federal funding for ALS research at the U.S. FDA c-span.org/clip/washingto…