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Jam pack empowerment of patient advocates today at #HealtheVoices22 thanks JanssenUS for supporting!

"We know our bodies. We know when something’s wrong. And that’s why it’s so important to advocate for ourselves as patients." – Vanessa Broadhurst, EVP, Global Corporate Affairs, Johnson & Johnson #HealtheVoices22 #HealtheVoicesLIVE

Journalist Ed Yong from The Atlantic inspires us at #HealtheVoices22 with understanding about #longcovid and our job for change.

#HealtheVoices22 discussing diversity and equity headon. Pushing for change across therapeutic areas. Eager to help. #healthequity

Right now, Rhonda Meckstroth is talking about her WHY as an advocate: being a care partner to her husband, Jeff, who has been living with stage 4 #lungcancer for almost 8(‼️) years. ♥️🫂Their love story: thepatientstory.com/cancers/lung-c… #HealtheVoices22 #lcsm #caregivers The White Ribbon Project™

Important discussion about cultural stigma as barrier to effective care. Yay Tina talking frankly about IBD. #HealtheVoices22 #ibdpatients

Leadership of #janssen supports staff hearing from patients bigtime. And amplifying our voices. Keep funding #HealtheVoices22

Request for pharma to be an accomplice (more involved) than just an ally (passive) to push for accessibility to research and care. And ASK community before plans are made! #HealtheVoices22 #healthequity

#MultipleMyeloma is a cancer where great progress has been made But people die because they don't have awareness (themselves or their doctors) or access. People in the Black community especially. Patient Power Power tackles this head-on this Saturday. patientpower.info/multiple-myelo…

NEW! We’re joining @patientpower, Tigerlily Foundation & New Life Southeast to address the issue of delayed #breastcancer diagnosis & treatment for many Southside Chicago residents. This unique in-person or online event will take place Nov 12th. Sign up today: patientpower.info/events/we-will…

At Del Mar, CA coffeeshop yesterday woman recognizes me as “MPN Guy”. We both have MF and same doc. How Internet connects patients with rare conditions! Patient Power #mpnsm UC San Diego Health

Next Saturday I'l be in Southeast Chicago to help at a Tigerlily Foundation Patient Power event dedicated to raising awareness about breast cancer among Black women, where mortality is way too high.. #bcsm Please share:

For anyone is "cancerland" - including docs, researchers and pharma. Please watch this terrific conversation with one of our most inspiring patient-advocates ArmorUp for Life Esther Schorr youtu.be/X9qKOAyIz2k

Please join me allassana sylla in the 6/5 8 am education session. I will share patient perspective on FDA accelerated approval. >300 responses to my pt survey. Hear results. #FDA #cancerpatients #clinicaltrials

322 responses to my survey of cancer patients on their perspective on FDA approval process, especially accelerated approval. The data presented next Monday 8 am room S102 at ASCO in Chicago. Me, FDA MD, pharma savvy college expert. Provocative discussion! Join us! #asco23

Off to ASCO for just two days. Hope to see old friends. #ASCO23

Delighted FDA has approved momelotinib to give myelofibrosis pts like me a new option. GSK U.S. FDA

So sad about death of my friend Jack Aiello, myeloma advocate. He taught me so much and I am forever grateful.

Patient panelist on NCCN CLL webinar tomorrow at 2 pm here’s link nccn.org/patientresourc…

Very upset with verizonwireless as they made it impossible to get refund after family member passed. Customer service no help. Switch to T-Mobile!