mygivingcircle.org/invest-in-me-r… Please support biomedical research into #MyalgicEncephalomyelitis by voting every 7 days for @invest_in_me (Invest in ME Research) 🇪🇺 Research. Only requires a name & an email address. No need to donate. #MECFS #SevereME #MyalgicE #pwME #MyalgicEncephalomyelitis #helpneeded

We still know precious little about PEM, but one thing's for certain--it represents an impaired recovery response to exertion. How do we know this? We had data from systems to molecules, replicated across myalgic encephalomyelitis cohorts originating regardless of patho-etiology.

A Wholesome Thread which will melt your heart🧵 Don't open if you can't handle too much happiness ❣️ 1. Be always happy

Vote and Donate to Invest in ME Research during the £50,000 in 100 Hours Donation Challenge MyGivingCircle mygivingcircle.org/invest-in-me-r…

I just voted for Invest in ME. Easy to do and helps to raise much needed funds.

Apple turned on some Big Brother shit in their latest updates. Here is how you turn it all off.

🧵Jarred Younger on saline could help #pwme. Theory insufficient blood volume to the brain when upright 1600ml every 3 weeks, on 22 CCC patients. Did tilt table to confirm posture issues. Drop in severity from avg 48 to 34. One harmed, 45% dropout! youtube.com/watch?v=zN8fdh…

If only we had a Disabilities Minister willing to push back against the endless falsehoods about Motability etc. Instead he spends his time plotting and scheming against the disabled he is supposed to represent and help with the occasional bit of gaslighting on Twitter.

My dad suddenly seemed so detached from reality I honestly couldn't tell if it was dementia or a psychotic break. But after sitting near a bunch of far right knobbeads in the pub a lightbulb went off in my brain and I disabled GB News on his telly. Sorted.

“She would ask me something for the 15th time, and in my head I was screaming, but I would just try and smile.” Scott Mitchell, widower of Dame Barbara Windsor, talks about caring for his late wife who died with dementia. #Newsnight

Misdiagnosis of a B12 deficiency meant the wrong treatment - psychotherapy & physiotherapy. The deficiency went undetected and untreated 😢 How many other children/adults are being left undiagnosed? 😬 The distress caused by misdiagnosis is truly awful #FND #B12

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The gut microbiome limits neuroinflammation and neurocognitive decline in acute graft-versus-host disease by modulating microglial activation via a mechanism mediated by the microbial metabolite TMAVA (Chatterjee et al. doi.org/10.1084/jem.20…).

If you read my thread a few days ago on asylum “perks” you may be able to spot the obvious whiff of 🐄💩. If not, let me enlighten you! 👍🏼 🧵1/8

These Illnesses are a cesspit of opportunist clinicians and patients who suddenly get massive social media followings with paid partnerships usually young women with the exception of a couple Men. People wonder why nothing ever changes. You have to call these charlatans out.

Starting a comprehensive list of things disabled people aren't allowed to do (apparently): have a garden, go on holiday, wear black, own cashmere, order takeaways, go on holiday, shop at M&S, dress nicely, have your nails/eyelashes done Feel free to add anything

🛏️ Getting a Good Night’s Sleep Without MCAS: A restful recharge, feeling refreshed after a night of sleep. With MCAS: Sleep can be disturbed by environmental triggers such as dust, mould, or fragrances in bedding or room air fresheners.

GB News has broadcast an interview with a pensioner who moved to Spain because there are 'too many foreigners in the UK'. I swear I'm not making this stuff up.

Clip from The Guardian’s Science Weekly podcast: NickyProctor describes how doctors dismissed her #MECFS as psychological, before she crashed completely and became mostly bedbound, unable even to hold a conversation.

Uni of Birmingham Are you aware that one of your professors is mocking patients with a serious neurological-immune illness ? #MEcfs