JP Summers (@authorjpsummers) 's Twitter Profile
JP Summers

@authorjpsummers

#1 Best Selling Author / Senior Patient Advocate Community Outreach Manager @GHLForg #migraine #heartdisease #rheumatoidarthritis / Tweets Are My Opinion

ID: 427688911

calendar_today03-12-2011 21:06:42

34,34K Tweet

3,3K Followers

4,4K Following

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

At EULAR 2025, Dr. Rachel Knevel of Leiden University Medical Center explains how stakeholder input—from clinicians to patients—is reshaping how we understand and treat rheumatic diseases. Learn how she’s using science, big data, and patient stories to move the field forward.

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Dr. Grace Wright, President of the Association of Women in Rheumatology, shares why EULAR 2025 is such an important space for global collaboration in advancing rheumatology care. From scientific innovation to inclusive stakeholder conversations, hear why she’s optimistic about the future of treatment and

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

How can drug development truly meet patient needs? Dr. Stephan Hegge of HotSpot Therapeutics explains why engaging with patients and clinicians at EULAR 2025 is essential for guiding meaningful innovation in lupus and autoimmune disease care. #EULAR2025 #LupusResearch #DrugDevelopment

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

🚨 HHS just removed all 17 members of the vaccine advisory panel (ACIP). What does this mean for vaccine access, trust, and chronic illness patients? Steven Newmark breaks it all down in this week’s #TheHealthAdvocates episode. 🎧 ghlf.org/the-health-adv… #HealthPolicy #Vaccines

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Prof. Merete Lund Hetland of the University of Copenhagen shares why this congress is vital for advancing research in inflammatory arthritis. Learn how global collaboration is shaping the future of rheumatology. #EULAR2025 #Rheumatology #InflammatoryArthritis #GlobalHealth

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At EULAR 2025, Dr. Felix Mühlensiepen, a Health Services Researcher at Brandenburg Medical School introduces his latest research using AI to identify who may or may not benefit from digital health tools in rheumatology. Find out how his work could help make care more inclusive

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Dr. Salome Kristensen from Aalborg University Hospital shares why international collaboration is key to advancing care for people living with rheumatic diseases. Learn how she’s working toward more personalized and effective treatments for arthritis, vasculitis, and lupus.

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

At EULAR 2025, Clinical Scientist Rachel Basile shares why patient voices must be at the center of clinical trial design—especially for emerging therapies like CAR T and cell therapy. Discover how she’s working to make research more aligned with what matters most to patients.

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Dr. Alexis Ogdie shares why shared decision-making is becoming a critical focus in psoriatic arthritis and axial spondyloarthritis care. Learn how new research and global conversations are helping move this concept from theory to real-world practice. #EULAR2025

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Alopecia affects 6.7M Americans. Supriya opens up about her journey of loss, resilience, and finding support through care teams like pharmacists. 🔗 linktr.ee/YourSkinYourHe… #AlopeciaAwareness #Walgreens #GHLF #YourSkinYourHealth Supriya Surender

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

🏳️‍🌈 This Pride Month, we’re shining a light on the challenges faced by LGBTQ+ individuals living with inflammatory bowel disease (IBD). Our latest survey found that people in the LGBTQ+ community living with IBD often face higher emotional distress, delayed diagnoses, and

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Join Seth D. Ginsberg, Co-Founder and President of the Global Healthy Living Foundation and CreakyJoints, as he presents the OA Compass project at EULAR 2025 in Barcelona. Over 360 million people worldwide live with knee osteoarthritis (OA), yet so many feel left on their own to make complex treatment

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🫀 New #HealthcareMatters: Cardiovascular breakthroughs vs. policy pitfalls. Alison L. Bailey, MD joins Robert Popovian 🇺🇸 🇦🇲 & Ben Blanc to discuss: ✅ Inflation Reduction Act’s impact on drug development ✅ siRNA & gene-targeted therapies ✅ Why stable funding saves lives Listen:

A Chronic Voice (@achvoice) 's Twitter Profile Photo

“It wasn’t until I personally became #disabled that I truly grasped the concept of #ableism..I found myself belonging to one of the largest groups frequently subjected to #prejudice.": buff.ly/LBERnjR from @creakyjoints Eileen Davidson - Rheumatoid Arthritis Advocate #ChronicIllness #awareness

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

For millions of us living with arthritis, autoimmune diseases, and chronic pain, we know a Band-Aid won’t cut it — but support and community do. 💪 #ChronicPain #InvisibleIllness #SpoonieHumor

For millions of us living with arthritis, autoimmune diseases, and chronic pain, we know a Band-Aid won’t cut it — but support and community do. 💪 #ChronicPain #InvisibleIllness #SpoonieHumor
CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Chronic illness comes with symptoms — and way too much advice you never asked for. Drop yours below and let’s remind the world: giving advice is easy — living with a chronic illness isn’t. #ChronicIllness #PatientVoices #SpoonieLife #Ableism #UnsolicitedAdvice #InvisibleIllness

Chronic illness comes with symptoms — and way too much advice you never asked for. 
Drop yours below and let’s remind the world: giving advice is easy — living with a chronic illness isn’t.
#ChronicIllness #PatientVoices #SpoonieLife #Ableism #UnsolicitedAdvice #InvisibleIllness
A Chronic Voice (@achvoice) 's Twitter Profile Photo

“Relish the #chores you actually like - Believe it or not, some #HouseholdChores may actually help your #arthritis feel better. “I do dishes a lot as the hot water feels wonderful on my hands,” says Debra": buff.ly/2RqJAj6 from @creakyjoints #ChronicIllness #RA