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Hey Doctors, why not do this weeks #CPD on #MECFS #ME with this excellent study module 1 hour CPD credit certificate. #PwME #CarersOfME why not share with your #GP & GP surgery Repost & SHARE! Myalgic Encephalomyelitis | Chronic Fatigue Syndrome | CPD studyprn.com/p/chronic-fati…

For those just learning about the history of the treatment of #MECFS #PwME please watch this excellent summary of how such deliberate neglect & minimising came to be dialogues-mecfs.co.uk/films/the-tang…

Great stuff Matt Green thank you!! #LongCovid #Brexit #Gaza Whatever you do “don’t mention it” And avoid ‘nasty tweets’ & ‘stupid’ right wing newspaper opinion pieces ‘Better to bully disabled ppl back to work’ 😬🙄😉😂🤬

Talk about marking your own homework, then promoting it as new🙄 Original r/v on #CBT in #ME Done by: - someone involved in all 8 papers - 3 profs careers depend on CBT treating ME - 2 reviewers had potential financial conflict of interest! Thx Mark Vink, MD for great new r/v

Don’t take the ship down for the sake of the captain MEA The ship has done some V V important & significant things, it has some important & influential crew members & helps lots of people in need & helps find a way out. Please don’t sacrifice an impt ship, for a misguided captain

Caption competition for #PwME #PwLC - let’s go!! What interactions cause you to end up like this honey badger? - PIP application? - Trying to explain how yoga isn’t the answer? Let’s hear ‘em!! #ME #MECFS #LongCovid (Photo courtesy of Wildlife Photographer of the year)

We are delighted to share our first CrunchME report, aimed primarily at policymakers 🙌 The Future is a Policy Choice - Addressing Infection Associated Chronic Conditions This report has been led by eIisa and we're extremely grateful to her work on it. 🧵 1/n

Karen Hargrave @karenlhargrave.🦋.social and Emma GL 🐙🦋 have created a brilliant (and beautifully designed!) MP briefing. It’s perfect for sharing with your MP, making it easy for them to support the cause (they appreciate that!). Link to the briefing in the next tweet. #ThereForME

‘Invisible’ illnesses aren’t actually invisible at all, are they?!?! They aren’t invisible to those close to them, to family, to partners, to friends that can cope & can stay, they are very very f&cking visible!!

#LongCovid Segment on BBC 5 Live (9 mins). Oonagh Cousins and Binita Kane interviewed about #LongCovid 5 years on from the start of the pandemic. youtu.be/9Wh6lIEYZcg?si…

“The evidence is now so strong that #MECFS is a serious multisystem neuro-immune disease that it becomes intellectually embarrassing for anyone to continue to consider it to be a psychosomatic disorder.” Exceptional letter by Countess of Mar in 2015, just as relevant today

Clip about the Lightning Process and #LongCovid on BBC Con or Cure. Oonagh Cousins explains the process of saying stop out loud to stop negative thoughts. Dr Melissa Heightman says it doesn't make "medical sense" also mentions #MECFS NICE Guideline.

Annoyingly my ‘disordered health beliefs’ & ‘lack of will to recover’ & ‘secondary gains’ stop me resuming my successful medical career & tbh pretty good life.. & mean a good response to ‘opinion’ piece in The BMJ is beyond me atm, but Putrino Lab puts it pretty well🤷‍♂️ #MECFS

When you really don’t have any expertise, beyond your own short, limited experience… But think you know more than expert medics, researchers & real sufferers… And keep going on & on about your own opinion to anyone who’ll listen (or pay 🤔), without listening… Maybe JUST STOP!

#pwME please help me with a brief anon survey. DWP’s response to my FOI request 👇🏽implied that v few #pwME access PIP DLA and many will lose this with the cuts. To act, I’d first like to understand what’s up… focussing on severe ME. Thank you! forms.gle/tqnzRUAki1nUiN…

The BMJ Paul Garner 1/Response to Miller et al from 115 international experts: After decades of medical gaslighting, hope for ME/CFS must come from biomedical research, funded treatment trials, and better medical education—not unproven belief reframing. A 🧵 bmj.com/content/389/bm…