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#SickleCellAdvocacy #SCDAC

Congratulations @ Dr Dzifa Dordunoo! #BoardMember

A lire Absolument!

SCD Advocacy has been a powerful testament to the strength of nonviolent action rooted in community, compassion, and resilience. We have chosen dialogue, education, partnership over confrontation by raising awareness, engaging healthcare systems, and collaborating #MLKCenter

We need to pass Bill S-280 in Canada! Thank you Sénatrice Marie-Françoise Mégie

"When I'm not consumed by pain, I'm anxious about the next time it strikes" Shelly-Ann on living with #SickleCellDisease. Université d'Ottawa | University of Ottawa-led coalition pushes for a national framework at the Senate to improve the lives of people with SCD. Full story👉bit.ly/3zKwxoH #NPAW2024

Today, December 5th is Happy International Volunteer Day, IVD! 🥳🤗🌏 To all our amazing volunteers in this group, we extend our heartfelt gratitude for your selfless dedication and tireless efforts. Thank you for being the change-makers, the helpers, and the heroes.

Striking how they can estimate how many will be born with sickle cell,even without comprehensive registries. Yet, they fail to track how many die each day We are seen as numbers at birth but become invisible in death! Uncounted overlooked lives lost perpetuate neglect & inequity!

#SickleCellLifeMatter

#Sicklecellca

February is Black History Month : You are invited to join us for an important discussion - facebook.com/share/p/1BJabG…

It's in 2 days! Register to join us for this virtual event

#MalariaDeferralMustGo #Swab4Ezra Did you know that only 16-19% of Black patients in need have a matched unrelated donor, compared to 75% of White patients? More Black donors are needed to close this gap Join a life-saving session, register: bit.ly/EBY2025

#BHMCollabseries | 9 🚨 Transforming sickle cell disease care in Canada means saving lives! ⚠️ Neglected for too long, it leaves thousands of black Canadians facing stigma and inadequate care. ➡️ Find out more: shorturl.at/9KZwW

Today is Rare Disease Day. I'm sharing my personal journey from caregiver to advocate patientvoice.io/shorts/my-why-…

🙏🏾Thank you!

Plan to join: this discussion is important! bit.ly/EBCBloondStemC…

We're highlighting the challenges faced by Black donors in Canada due to current policies. SCD requires frequent blood transfusions, but finding compatible blood can be tough Stem cell registry: Black people are severely underrepresented bit.ly/EBCBloodStemCe… 2:00 PM (EST)

Don't miss our Mother's Day webinar Empowering Caregivers: Navigating Access to Care for Sickle Cell Disease. Join us in celebrating the strength, love, and courage of our warrior moms bit.ly/SCCWarriorMoms… Let's honor their dedication and work to improve care for all

Word!