Breaking the shackles of disease-led limitations and soaring to international fame and recognition. #sicklecelldisease #sicklecellwarrior #sicklecellpatient #sicklecellcommunity #sicklecellachievers #mysicklecareapp #sicklecelldiseasemanagement #sicklecellpatientadvocacy

Dalili za Ugonjwa wa #Kisukari ➡️Kukojoa mara kwa mara ➡️Kuhisi kiu mara kwa mara ➡️Kuhisi njaa kila wakati ➡️Kupungua uzito ➡️Uoni hafifu ➡️Uchovu usio wa kawaida ➡️Uponyaji wa polepole wa jeraha #Tafadhali uonapo dalili hivi fika viwanja vya mnazi mmoja #DSM Upime #AfyaYako

Tawonashe was diagnosed with #SickleCellDisease as a baby and then with #Type1Diabetes just last year. #PENPlus gives him lifesaving treatment and optimism; he gives us inspiration! Give him a shoutout in the comments! #WorldDiabetesDay SolidarMed buff.ly/45LcTCO

Day 3: Workshop on "Patients as Partners in Health Research." Our session leads today are Kita Magangana, Arafa Salim Said and Gragevis. We are developing a toolkit for engaging patients as partners in SCD research. This work is supported by #SickleInAfrica ELSIhub | CERA. Nchangwi Syntia

Join us for an enlightening discussion on X-Space! Topic: Genetic Counselling: A Catalyst in SCD Management Speaker: Mrs. Chinma Emereole, Head of Genetic Counselling, SCFN Date: Thur, Mar 7, 2024 Time: 7:00 PM (GMT) Link: bit.ly/scfn-x-space

Biba Tinga Melody M Arindagye Roofings Group Uganda Arafa Salim Said EXECUTIVE DIRECTOR Sickle Cell Patient Community, Tanzania 🇹🇿 We celebrate you. #InternationalWomensDay #InvestInWomen

We have resumed our monthly sickle cell disease patient-centric webinars. This month's webinar is on psycho-social distress. Registration link: zoom.us/meeting/regist…. This webinar is a primer for another webinar on a similar topic. #sicklecelldisease. NyaBanda Nchangwi Syntia

Meet the speakers at #ICPPA2024👇🏿! 🔹 H.E. Samia Suluhu Hassan 🔹 Dr Matshidiso Moeti 🔹 Mr James Reid 🔹 Dr Gene Bukhman 🔹 Prof Ana Olga Mocumbi Don't miss their insights. Register now to join the conversation⬇️! who.zoom.us/meeting/regist… #EndingDiseaseinAfrica #PENPlus

It takes all of us! 🤝 “Nsa baako nkura adeso”, a popular proverb from Ghana means a hand is never enough to lift a heavy load. Severe #NCDs needs all of us collectively advocating for increased investment and access to resources while thriving with hope. Bring it to the table!

#VoicesforPENPlus Arafa Salim Said tells #ICPPA2024 “walk the talk” Let’s NCDs Commission by centering & learning from those living w/ NCDs like this ⭐️ panel Arafa Salim Said Edith Mukantwari #DisarmingDiabetesDaily @mechodu_ Ruth Ngwaro

Voices for #PENPlus advocates infused #ICPPA2024 with the passion and wisdom of people living with noncommunicable diseases. Pictured, from left: Edith Mukantwari #DisarmingDiabetesDaily and Arafa Salim Said, both Voices advocates, and Apoorva Gomber, the Network’s advocacy lead! ❤️ #EndingDiseaseInAfrica

Incredible to witness Uganda's commitment to healthcare equity at #ICPPA2024! With PEN-Plus, they're breaking barriers and bringing essential care to those who need it most by empowering providers at general hospitals to tackle noncommunicable diseases head-on. #BeatNCDs #PENPlus

Today is #WorldSickleCellDay. Sickle cell disease is the most prevalent genetic disorder in Sub-Saharan #Africa. 66% of the 120 million people with SCD globally live in Africa. Adequate investment in sickle cell services can save the lives of thousands of children in #Africa.

50-80% of infants born with #SickleCellDisease in Africa die before the age of 5. Symptoms start early in childhood and range from mild to severe, including: 🔴Pain crises 🔴Anaemia 🔴Stroke 🔴Organ damage 🔴Other complications: blood clots, leg ulcers bit.ly/3z932fI

🌟 Invitation to the THGO X-SPACE Join Dr. Siana Nkya and Ms. Arafa Said as they lead an insightful discussion on #SickleCellDisease 🗓️ Date: 30th Sept. 2024, 16:00 - 18:00 HRS 🔗 Link: bit.ly/4eekeQp #GetToKnowSickleCell #SCDAwareness #SickleCellWarriors

Today, October 18, the global #inheritedblooddisorders community celebrates #WorldInheritedBloodDisordersDay #WIBDsDay with the theme "From Awareness to Action: Transforming Lives". Join us now! GANSID

Most #Inheritedblooddisorders are rare except for #sicklecelldisease. Together, as #inheritedblooddisorders, we are stronger. Join the movement #TieRed #WIBDsDay #WorldInheritedBloodDisordersDay #GANSID GANSID

Join us this evening on our X Space x.com/i/spaces/1dRJZ…

Are you ready for the 2nd International Conference on PEN-Plus in Africa—#ICPPA2025? 🗓️ July 8-10, 2025 📍 Abuja, Nigeria This year’s #ICPPA will be both in-person & virtually! Learn more: bit.ly/4dNpv1Z Register to attend virtually here👇🏿: who.zoom.us/meeting/regist…

#ICPPA2025 has officially kicked off in Abuja, Nigeria 🇳🇬! It’s not just a conference. It’s a platform to redefine solutions for severe NCDs in Africa. Amid rising NCD burdens and funding challenges for #EndingDiseaseinAfrica, #ICPPA2025 aims to advance collective action rooted