cf/Aware (@cfaware) 's Twitter Profile
cf/Aware

@cfaware

All about Cystic Fibrosis. Always refer to your team for specialist advice. Oh and we don't always agree with RTs.

ID: 492168041

linkhttp://cfaware.co.uk calendar_today14-02-2012 12:28:25

79,79K Tweet

12,12K Followers

9,9K Following

cf/Aware (@cfaware) 's Twitter Profile Photo

Half of children taking 'miracle' cystic fibrosis drugs may be struck by severe mood changes, study reveals | Daily Mail Online dailymail.co.uk/health/article…

Eli Fritz McDonald (@elifritzmcd) 's Twitter Profile Photo

Trikafta revolutionized treatment for Cystic Fibrosis, reaching >90% of patients variants. But what about the remaining untreatable 10%? We studied several poorly responsive, FDA-unapproved variants and paved a path forward for drug development. biorxiv.org/content/10.110… 1/7

Trikafta revolutionized treatment for Cystic Fibrosis, reaching >90% of patients variants. 

But what about the remaining untreatable 10%?

We studied several poorly responsive, FDA-unapproved variants and paved a path forward for drug development.  

biorxiv.org/content/10.110… 1/7
Robert Sandler (@robertdsandler) 's Twitter Profile Photo

UK #CysticFibrosis community! Tell us about your thoughts on inhaled meds & interacting with your care providers post-Kaftrio in this anonymous 5-10 min research survey. Your voice matters! Please share! [shef.qualtrics.com/jfe/form/SV_6V…] #CF

cf/Aware (@cfaware) 's Twitter Profile Photo

NICE approves three cystic fibrosis drugs for NHS use - The Pharmaceutical Journal pharmaceutical-journal.com/article/news/n…

cf/Aware (@cfaware) 's Twitter Profile Photo

NICE Board says new method allowing greater weight to be given to severe diseases is working | NICE nice.org.uk/news/articles/…

Dr Katie Gathercole (@katieguacamole) 's Twitter Profile Photo

GRAMPUS-CF aims to understand gut symptoms in people with cystic fibrosis (CF) so that we can develop treatments. If you are a person with CF, you can help! Visit our website for participant information, online consent and to download the app. grampus-cf.org Thank you!

The Lancet Respiratory Medicine (@lancetrespirmed) 's Twitter Profile Photo

🚨 New in The Lancet Respiratory Medicine Phase 3 data on vanzacaftor–tezacaftor–deutivacaftor in #cysticfibrosis Read open access here: Patients aged 6–11 years tinyurl.com/446ju86t Patients aged 12 years and older tinyurl.com/5y453b56

🚨 New in The Lancet Respiratory Medicine

Phase 3 data on vanzacaftor–tezacaftor–deutivacaftor in #cysticfibrosis

Read open access here:
Patients aged 6–11 years tinyurl.com/446ju86t
Patients aged 12 years and older tinyurl.com/5y453b56
cf/Aware (@cfaware) 's Twitter Profile Photo

Body composition changes and clinical outcomes in pediatric cystic fibrosis during 24 months of lumacaftor ivacaftor therapy based on real-world data | Scientific Reports nature.com/articles/s4159…

cf/Aware (@cfaware) 's Twitter Profile Photo

Do intravenous antibiotics improve pulmonary exacerbations (flare-ups) in people with cystic fibrosis? | Cochrane cochrane.org/CD009730/CENTR…

cf/Aware (@cfaware) 's Twitter Profile Photo

Mycobacterium Abscessus Infections and Cystic Fibrosis | Nature Research Intelligence nature.com/research-intel…

Vertex Pharmaceuticals (@vertexpharma) 's Twitter Profile Photo

Today the European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion for the label expansion of our fourth cystic fibrosis (CF) medicine to include an expanded population with certain mutations. This marks an important step

Today the European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion for the label expansion of our fourth cystic fibrosis (CF) medicine to include an expanded population with certain mutations. This marks an important step
Vertex Pharmaceuticals (@vertexpharma) 's Twitter Profile Photo

Today the European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion for our fifth cystic fibrosis (CF) medicine. This is an important step towards our goal of treating all people living with CF.